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Molly001's avatar
Molly001
Member
8 years ago

First dose Palbociclib down the hatch... Pallas trial

For those who have an interest in clinical trials or the drug Palbociclib... The Pallas trial follows early er+ bc ladies at high risk of recurrance. The drug, Palbociclib, is given alongside hormone drugs for 2 years to one group, whilst the other has just hormone drugs alone to see how well Palbociclib is tollerated and if it can help prevent recurrance. So, just when I thought I'd done all I could to keep my cancer from returning, I was invited to participate in the trial. There are some possible unpleasant side effects from the drug, so not an easy choice. I got randomised to the drug group, and away we go with the trial that I was soooo hesitant to join. After a lot of fumbling around to get the right blood tests through the lab, and several hours waiting around for results, I got the go ahead. First dose taken this evening and so far so good. Hoping not to wake up shitting or spewing. I was feeling fairly guilty about getting this drug on the trial, as I know there are stage 4 gals out there desperately wanting access to this wonder drug, which is not on the pbs and thousands a month. My treating team were able to reassure me, though, that the more research etc is done, the better the chances of Palbo getting on the pbs. I hope in some small kind of way my participation aids bc treatment for future patients. We all know how important research is and has been at giving us hopeful futures.