Forum Discussion
- lrb_03MemberIf the radiation oncology nurses aren't helping, do yo have a breast care nurse you can talk to? I'm sure there are options out there but they can be hard to find. Even so, the R/O nurses should be familiar with what is available. Having said that, I like the suggestion you had from a doctor much more than what your radiation nurse said.
Once you remove a dressing, you're increasing your infection risk by putting that same dressing back on, I would have thought. I agree with @primek, maybe a few days in hospital, or with community nurses coming to you to chage the dressings would be beneficial
Hope your appointment tomorrow goes ok
Take care - FinchMemberThis looks very painful and sore. Sending you big gentle hugs.
I'm surprised you've been told to put MooGoo on your burns. I had very similar burns to you nearing the end and after my radiation last year. I was seen by the radiation nurse every day for the last two weeks of radiation and this continued after radiation until it was decided I could go to two days and then three days to have the site dressed. The nurse took a swab at one stage to rule out infection, which came back negative.
i was told to stop using the MooGoo equivalent ,QV cream, once I started to burn. MooGoo/QV cream is a moisturiser and used at the beginning of treatment when the skin is intact and not blistered.
The radiation nurse used Solugel on me , which is used for burns, and used in burns wards, it was smeared on very thickly, with mepilex over the top of my entire breast area. I then popped a fitted tank top on top to hold the dressing in place. I healed up very quickly once it started to heal.
My concern for you is the MooGoo is not a sterile ointment and is not used for severe burns. I think you need to be seen and treated by an experienced burns nurse/radiation nurse.
Best wishes and take care. Hugs Xxxx - AnnskiMemberGood grief @Shakalker I thought mine was dreadful but that looks so much worse. I went back to the radiation unit and they gave me heaps of gel gauze dressings and changed it a couple of times. Flamazene made it worse. If you don't feel confident with the nurses there go straight to the hospital emergency service. It will pass eventually but in the meantime you must be in agony. Nobody should have to deal with that on their own. Thinking of you.
- BlondyMemberOh @Shakalker. I think we all think our own is the worst, but you take the cake. That needs some serious attention. Please dont leave your appointment without some sound treatment in place, and you're satisfied. That is your right. Sometimes we have to be the pilot. I never knew the strength of my radiations but one if my friends knows hers. It might be useful to know what strength you had and has your rad onc seen similar reactions. At the centre I go to I'm always told that I can make an appointment at anytime. Hooefully you can too. The rad nurses did daily dressings after I was finished, and then a community nurse called in at home. I felt guilty using her time so my husband watched what she did and then took on the job. The bottom line is, you need some intense TLC on that and I hope you can get it sorted quickly. I can't even imagine the pain you must be in. Hugs ti you.
- kezmuscMember@Shakalker. I had the solugel for a few days, then the flamazene (obviously don't use if it feels worse) it started to heal really quickly with that. I think the hospital might be a good idea as suggested, they will have a wound care nurse as well.
@JoeyLiz. Can you help at all lovely??? - SisterMemberI agree with the others - if the radiation nurses aren't giving you any real help, seek it elsewhere. If you don't want to go out of the radiation sphere then insist on speaking to your rad onc. I can't imagine that putting MooGoo on burns like that would be advisable but I'm not medical expert.
- JoeyLizMemberOh you poor thing. I'm so sorry that the nurses let you get that bad.
Talking to my colleagues, it needs to be dried out, so sudocrem smothered all over and a non adhesive dressing to stop clothes rubbing. Nothing adhesive that will pull the skin away. Once dried up then apply the moo goo to rehydrate new skin.
Best wishes - Lisa1407MemberOhh you poor thing. What a nasty burn and no wonder you are in agony. Time to speak up loudly (or scream and cry) at the hospital and get some attention. Hopefully, you will be given some assistance at your appointment. Hope it starts to heal soon. xxxx
- lrb_03MemberHi @Shakalker. Hope you got some good help at today's appointment, and some good pain relief
- arpieMemberHow did you go at your Onc? Was she unhappy with it?
Were you able to get specialist treatment of the wound? I hope so.
Take care xx