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ShazLou's avatar
ShazLou
Member
9 months ago

Must-haves for chemo

Hi all. I am about to start chemotherapy next week, fortnightly for 8 weeks and then weekly for 12. There is SOOOOOOOOOO much out there about what it will be like, what the side effects will be, what to expect... but then it is also so much to navigate when one's head is already full!

I was wondering if anyone had some very basic recommendations of things that are 'must-haves' or was a 'go-to' for them when they went through therapy. I know that everyone responds differently and everyone would have different experiences, but I guess I want to at least start with a shortlist of items that I can have on hand in preparation for the first few rounds.

Haha am I even making any sense :wink:

Thanks in advance :smile:
  • Hi @ShazLou
    Glad to hear you are on the front foot!
    I found days 4-6 were my worst on the AC chemo.  Definitely mention the shaking to your team to see if they can recommend anything to ease or stop it. I had a lot of side effects from the steroids and we were able to tweak the dose on the recommendation of my oncologist.  You'll get into your own pattern of your chemo cycles and be able to recognise your good and bad days and be able to work with them.
    I'm 2 weeks post radiation and I'm starting to feel more like my old self! I have also started hormone therapy now too. 
    Best wishes for your treatment moving forward.....it's a long haul and can feel daunting when you're in the thick of it but it seems each stage is not quite as bad as the last and you will get through it! 
  • Thank you @Coastiejas! I appreciate your advice reflecting your own experience. Yes, my worst days were similar on Day 4-6, and I am hopeful there will be a little bit of a pattern to it, so as you say, I can almost 'prepare' for it. Nice to feel a little bit human right now! I am not sure how this will feel when I have to go to weekly does :worried:

    I am so glad to hear that you are starting to feel like your old self and that there is definitely a light at the end of the tunnel... even though it's 20 weeks away! I am just trying to take it one day at a time and just deal with what is in front of me. It is truly inspiring to read your story and others to know that all these brave warriors have stepped before and fought bravely and have come out strong. Enjoy feeling more and more like yourself and hope the hormone therapy does not have too many adverse affects.

    Have a beautiful week!
  • Great to hear you’re managing as well
    as can be @ShazLou and I do hope the after effects settle soon for you @Joleystub I found my side effects varied from one treatment to the next at first. Sending you lots of virtual good vibes for the weeks ahead 🌸🌼🌻

  • Something really small that i found helped is to use  hankies and NOT to use tissues if you need to cry/wipe your eyes. Once you lose your eyelashes, the 'dust' on tissues can be irritating. 
    A bigger issue was with loss of hair and wigs. I found i hated them all. It wasn't until my eyebrows grew back that I realised that was the problem. So maybe learn to use those temporary eyebrow tattoos. 
  • Great tip @imy65 the eyes do dry out too so that is a good reminder. Before my niece sent me some transfer temporary eyebrows I was using a bit of eyebrow powder/wax (you can also use a matt brown eyeshadow) to create eyebrows; like you I gave up on wigs 
  • Hi Ladies
    @imy65 the hankies are a great tip. I lost all my eyelashes (they all ended up in my eyes!) and brows too on the taxanes and my nose ran all the time... I have large strong glasses frames that covered up my lost eyebrows. I gave up on wigs too, hot, itchy and complicated.... I got some hair caps on temu, basically they are a cap with fake hair attached. I had some fun with them as they are about $10 each, I got them in all different styles and colours so I could have lots of different looks (no one had ever seen me with black hair before!!). As a dear friend said to me if you don't have hair you might as well have some fun!! 
  • Yes, the wigs are itchy and tricky. I have a couple of the caps from TEMU and lots of soft beanies in many different colours and styles. I much prefer them. :)