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JenAli
Member
13 years ago

Jen Ali

I am one week post skin sparing mastectomy and sentinal node bx and DIEP flap reconstruction for DCIS.

I have lost one sister to breast cancer and mine was picked up on mammogram after my other sister was diagnosed with breast cancer.

My sister decided to reject regular medical treatments and I tried very hard to change her mind. In the end she just would not talk to me. She has had two lots of treatment at the radiowave clinic in Perth and after 5 months since her initial lumpectomy her cancer has come back; same size and site, and biopsy confirmed.

The radiowave clinic made her sign a non discloure agreement prior to treatment and for a so called non for profit organisation she has paid $30,000!

I want people to know about this rip off place that may well have cost my sister her life!

  • If anyone is thinking about going to the Radiowave Clinic in Perth, please don't. My sister and I are going through breast cancer at the same time. I chose mastectomy and immediate Diep flap recon, and tamoxifen and she decided to go to the radiowave clinic, after she was diagnosed with a 1.8cm triple negative breast cancer and there were no signs of metastases and her lymph nodes were clear on her staging. After $30,000 and two 6 week bouts of treatment her cancer is back and has now spread to her lungs, after only 5 months since diagnosis.

    Yes the clinic is run by doctors but they are are conartists and charlatans.There is proof that their treatments don't work. If you are considering this treatment look at the NHRMC report from 2005 which reviewed all their work over 30 years and shows NO BENEFIT. I just wish I had found that report before my sister took this path.

  • If anyone is thinking about going to the Radiowave Clinic in Perth, please don't. My sister and I are going through breast cancer at the same time. I chose mastectomy and immediate Diep flap recon, and tamoxifen and she decided to go to the radiowave clinic, after she was diagnosed with a 1.8cm triple negative breast cancer and there were no signs of metastases and her lymph nodes were clear on her staging. After $30,000 and two 6 week bouts of treatment her cancer is back and has now spread to her lungs, after only 5 months since diagnosis.

    Yes the clinic is run by doctors but they are are conartists and charlatans.There is proof that their treatments don't work. If you are considering this treatment look at the NHRMC report from 2005 which reviewed all their work over 30 years and shows NO BENEFIT. I just wish I had found that report before my sister took this path.

  • Hey Jen

    Put this new question you have up as a new post so everyone can see it. Currently only a few people will see it. Only the ones that have commented on your original post.

    When you post something it comes up as a new post. Everyone can comment on it that way.

    Mich xoxo

  • Hwy Jen

    My life hasn't been easy and I have a sister who is suffering majorly with rheumatoid and osteo arhtritis since siagnosed at age 35 when she also had small children of her own to deal with. I hav fought with her for many many a year because for some reason whether to do with her diagnosis or our very disfunctional childhood that she would not take anything laying down and let me tell you she hasn't, she has fought every step of the way and continues to fight every day BUT there comes a time in your life where you can't fight anymore and that is what she is finiding. It breaks my heart to watch the fight she has gone thru and to be there for her every step of the way. BUT she has won the fight up till now and will continue to fight in every way she knows how.

    CAn I just say that it has been her choice, this is her life and I am just there for her if and when and should she need me. It has been so very very tough on top of what I have been travelling but choices, we all make choices and it is our life, no one elses but ours. Just be there if they need you to be - to support them in every way they want u to.

    I hope it helps because I really really do know how tough it is from both sides.

    Lots of love, Mich xoxo

  • Hwy Jen

    My life hasn't been easy and I have a sister who is suffering majorly with rheumatoid and osteo arhtritis since siagnosed at age 35 when she also had small children of her own to deal with. I hav fought with her for many many a year because for some reason whether to do with her diagnosis or our very disfunctional childhood that she would not take anything laying down and let me tell you she hasn't, she has fought every step of the way and continues to fight every day BUT there comes a time in your life where you can't fight anymore and that is what she is finiding. It breaks my heart to watch the fight she has gone thru and to be there for her every step of the way. BUT she has won the fight up till now and will continue to fight in every way she knows how.

    CAn I just say that it has been her choice, this is her life and I am just there for her if and when and should she need me. It has been so very very tough on top of what I have been travelling but choices, we all make choices and it is our life, no one elses but ours. Just be there if they need you to be - to support them in every way they want u to.

    I hope it helps because I really really do know how tough it is from both sides.

    Lots of love, Mich xoxo

  • Hello,  I am very sorry to hear about your family's bc "curse".  I have four sisters and would feel desperate if any of them were to receive a diagnosis.  I have had two diagnosis of bc and they have supported me.  Still they really do not understand the pain, discomfort and ongoing fears that I live with.  Not sure how I would feel if it was one of them "doing the same hard yards".  My advice to you is be there for your sister when she needs you whilst always paying top attention to your own needs.  Everyone is different - and everyone has a choice as to how they want to live their life.  All you can do is show others how you handle the treatment and how it affects/improves you.  Take care XLeonie

  • Hello,  I am very sorry to hear about your family's bc "curse".  I have four sisters and would feel desperate if any of them were to receive a diagnosis.  I have had two diagnosis of bc and they have supported me.  Still they really do not understand the pain, discomfort and ongoing fears that I live with.  Not sure how I would feel if it was one of them "doing the same hard yards".  My advice to you is be there for your sister when she needs you whilst always paying top attention to your own needs.  Everyone is different - and everyone has a choice as to how they want to live their life.  All you can do is show others how you handle the treatment and how it affects/improves you.  Take care XLeonie

  • Hello,  I am very sorry to hear about your family's bc "curse".  I have four sisters and would feel desperate if any of them were to receive a diagnosis.  I have had two diagnosis of bc and they have supported me.  Still they really do not understand the pain, discomfort and ongoing fears that I live with.  Not sure how I would feel if it was one of them "doing the same hard yards".  My advice to you is be there for your sister when she needs you whilst always paying top attention to your own needs.  Everyone is different - and everyone has a choice as to how they want to live their life.  All you can do is show others how you handle the treatment and how it affects/improves you.  Take care XLeonie