Forum Discussion
What to do?!!
Morning all! Yes should be sleeping but too much on my mind. Diagnosed approx 5 weeks ago with bc & after lots of tests, scans & angst had a lumpectomy & sentinel node biopsy last week. Great!! But no.... Need more surgery but now back to the decision of re-excision or mastectomy & to top it off found out 2 days ago am pregnant. Confused much?!
17 Replies
You have had to make some very BIG decisions and none of them easy.But I'm glad you have a plan in place and you sound confident and comfortable with it all.Good luck in the coming weeks -you have support from your pink sisters here so let us know how you are going. Tonya xx
- Good luck with that all! These groups are great for the practical side of dealing with side effects of chemo and rads. I just finished 24 weeks of rads, about to have 5 weeks of chemo. I've been fortunate in that had income protection so been able to rest a lot and other than fatigue haven't had very bad side effects.
- Good luck with that all! These groups are great for the practical side of dealing with side effects of chemo and rads. I just finished 24 weeks of rads, about to have 5 weeks of chemo. I've been fortunate in that had income protection so been able to rest a lot and other than fatigue haven't had very bad side effects.
- Good luck with that all! These groups are great for the practical side of dealing with side effects of chemo and rads. I just finished 24 weeks of rads, about to have 5 weeks of chemo. I've been fortunate in that had income protection so been able to rest a lot and other than fatigue haven't had very bad side effects.
- I've been in contact with the gene testing place n have an appointment. They've indicated that I may be able to get it publicly as I worked it out that I'm the 5th generation of breast cancer in our family! Not sure why the pattern wasn't noticed before. So that being said, I've decided to terminate the pregnancy, go for the re-excision with chemo to follow, then when I get the results of the test if positive will have a double mastectomy & most likely have my ovaries removed as well, but if negative continue with chemo & then radiation, and enjoy my girls while I can xxx
- I've been in contact with the gene testing place n have an appointment. They've indicated that I may be able to get it publicly as I worked it out that I'm the 5th generation of breast cancer in our family! Not sure why the pattern wasn't noticed before. So that being said, I've decided to terminate the pregnancy, go for the re-excision with chemo to follow, then when I get the results of the test if positive will have a double mastectomy & most likely have my ovaries removed as well, but if negative continue with chemo & then radiation, and enjoy my girls while I can xxx
- If you have a family history of cancer then I would recommend getting tested. I don't have the brca gene but a different one which I why I got regular screening. My partner and I also opted for pgd and ivf to ensure that I don't pass the gene down to our kids. I went private but the time from my first surgery (nipple sparing bilateral mastectomy and reconstruction) to the second surgery of replacing the tissue expanders with the silicon implants was only 4 months. I was pretty much back to normal after that period (my husband and I said that if someone told me I would be back to normal in less than 6 months we wouldn't have believed them). You do have a loss in strength and movement but that is all.
OMG, you guys are amazing!!! What life throws at us!
Thanks to everyone for your comments, it really does help put things in perspective and I know will help my decision making a bit easier.
It has been suggested to me by someone to have the gene testing done or is this normally done anyway once diagnosed? I havent been told too much about that.
And with reconstruction, the surgeon has said he can do an implant reconstruction at the same time if I choose the mastectomy path. Is that the best option? I have been looking a pictures online and some of the reconstructions are fantastic!
- I am not sure what type of bc you have but I had dcis and was given choice of lumpectomy and radiation or mastectomy. I opted for a double mastectomy and reconstruction. Whilst that decision was hard I have no regrets. After the surgery I was not allowed to use my arms and if I had children at the time I would not have been able to lift them. I also had a good chance if the bec turning up in my other breast. To have that surgery with kids I think would be harder. I am now a proud mother of a 5.5 month old boy. Bottle feeding has had its advantages. Ask lots of questions from the nurses and surgeons about recurrence and being pregnant if you go through surgery etc. good luck and I hope all goes with with both your pregnancy and your diagnosis.
What a dilemma-I can't even get my head around what life has just thrown you. No wonder you are dazed.Perhaps getting the pathology from your lumpectomy first may shed some light on your decision making?It seems you will need more surgery either way if margins aren't clear.I guess radiation is a big question mark if you are pregnant.Lots of questions to ask your bc nurse. I was 47 years old for my first breast cancer.I had a lumpectomy,full node clearance and radiation. 7 years later cancer came back in the same breast,same spot so had a mastectomy and chemo.Ask your doctor about the odds of it coming back.In my case,it was 8% after the lumpectomy.Both operations are similar painwise,recoverywise but a full node clearance under your arm is the harder op to get over(in my opinion). I hope you reach a comfortable decision soon -one that feels right for you. Sending many hugs,Tonya xx
