Summit- Need to share

Mich x
Mich x Member Posts: 1,530 ✭
edited August 2013 in Day to day

Hey my beautiful pink sisters

I just needed to let everyone know that I did go to the Summit BUT I became very unwell. I got through the Thursday, just, and went back to my room and slept the night away.

Friday I managed to get up get dressed and I even forced myself to walk to the Summit which was a 20minute walk thinking the fresh Sydney air would do me good. BUT by the time the first speaker had finished speaking I couldn't hang in there anymore.  I found my way to the bathroom and somehow had managed to alert some people that I was unwell.  

The next thing I knew I was then taken by beautiful BCNA staff back to my room where I slept and woke feeling slightly better. I was still so sick I had to call the Perth Hospital to get results of my skin punches I had had done on the Tuesday afternoon before flying out on the Wednesday to Sydney as I had major concerns that my illness could be something sinister.  I was told my skin punches showed no inflammatory breast cancer BUT they wanted me to have an urgent MRI and see surgeon.  I feel there has to be something wrong for them to put so much pressure on me and with being so unwell I decided not to extend my stay and came home yesterday instead of the 16th as originally planned.

I am absolutely devastated. I have been so looking forward to the Summit for so long.  I wanted to learn so much, I wanted to connect with all the beautiful people that were apart of the summit, I wanted to get to party and let my hair down with all the beautiful people I know and would get to know and who understood why it was so important to party with my pink sisters.  I wanted to get to know all the BCNA staff, I wanted to do my speech on CONNECT which is something I am very passionate about.  I wanted to sit and listen and learn from all the experts. I also had planned to spend a week with my beautiful BCNA Beastie.  I got to do very little and I am devastated

I cannot speak highly enough of BCNA organisation and the very special people who work for BCNA.  I was so touched by all the love, support, attention and concern that was shown to me. There is one very very special person who has been my lil guardian angel and that is Kim Hyman.  I can't ever show her how much gratitude I have for the wonderful care and attention you gave to me Kim, thank you precious girl.  You and all the other staff are incredible people.  

In my whole BC journey I have never ever received so much love and support but the compassion shown to me over those few days was something that will stay with me for the rest of my life.  All of the BCNA staff were there for me, Raylene Boyle showed me so much compassion, the ladies even in the toilets to start with, my absolute beautiful and precious pink sisters and especially the girls from the community liaison course I did back in April sent me lovely concerned messages, plus any other precious pink sisters who learnt of my drama.

I can tell you now that I never ever want to be this ill again as I so feel like I am back at the end of my chemo BUT I can think of no better place to have been sick than with all the beautiful BCNA staff and pink sisters and then to have my BCNA beastie come and stay with me on Friday night to look after me and to at least get to spend one night together. 

I so hope I get to go to another Summit but under very different circumstances in the not too distant future.  

I can say on a very positive note that the speakers I got to see were amazing and one thing I did manage to learn is that there is so much research and so much pressure being put on the Government through BCNA and anyone associated with them to do whatever can be done to introduce better treatments with less side effects and just better treatment all round.  We need to continue to keep on supporting BCNA, raising funds for research and keep on getting the word out there about breast cancer.

Out of all of this to date I can say that I do not have cancer but need to find out what horrible thing is going on in my body to be causing such unwellness.  I will keep you updated on any news.

Luv all you  beautiful pink people with all my heart.  Mich xoxo

 

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Comments

  • Chris
    Chris Member Posts: 813 ✭
    edited March 2015
    Hi Mich, so sorry to hear that you missed half of the Summit, and you were so unwell. I hope you get answers soon. Hope you won't have to wait too long for your MRI. Fingers and toes crossed for good results. Love Chris xx
  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thank you Michelle.  As my BCNA Beastie said today her and I are both due for a break soon.  Fingers crossed it isn't too far around the corner for both of us.  Hope you are going good.

    Lots of love always, Mich xoxoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thanks Chris

    I will definitely be needing that contact with my Perth Pink Sisters on the 24th to keep my spirits up.  Not far away now.  We all need something to look forward to don't we? It keeps us going.  

    Lots of love always, Mich xoxo

     

     

  • TonyaM
    TonyaM Member Posts: 2,836 ✭
    edited March 2015

    I was trying to find you on Friday and then again at the gala dinner.So I asked Daina and Kim if you were ok -gut feeling?They told me you were unwell and that you were resting in your room.I felt so sorry for you Mich and missed seeing you again.I did note taking so if I can decipher my scribble,I'll fill you in on what you missed on Friday.Take care my friend and I hope you are feeling better.Let us know how the MRI goes cos we'll be thinking of you.

                          love Tonya xx

  • TonyaM
    TonyaM Member Posts: 2,836 ✭
    edited March 2015

    I was trying to find you on Friday and then again at the gala dinner.So I asked Daina and Kim if you were ok -gut feeling?They told me you were unwell and that you were resting in your room.I felt so sorry for you Mich and missed seeing you again.I did note taking so if I can decipher my scribble,I'll fill you in on what you missed on Friday.Take care my friend and I hope you are feeling better.Let us know how the MRI goes cos we'll be thinking of you.

                          love Tonya xx

  • TonyaM
    TonyaM Member Posts: 2,836 ✭
    edited March 2015

    I was trying to find you on Friday and then again at the gala dinner.So I asked Daina and Kim if you were ok -gut feeling?They told me you were unwell and that you were resting in your room.I felt so sorry for you Mich and missed seeing you again.I did note taking so if I can decipher my scribble,I'll fill you in on what you missed on Friday.Take care my friend and I hope you are feeling better.Let us know how the MRI goes cos we'll be thinking of you.

                          love Tonya xx

  • Melg
    Melg Member Posts: 174 ✭
    edited March 2015
    Like you I was very disappointed and very saddened that our week long catch up didn't go to plan. I was worried when I got the call that you werent well at the summit and drove straight down to Sydney and was lucky enough to get at least a night to catch up with my special bestie though she wasn't feeling very well at all.
    The staff at BCNA did a great job looking after her and rebooking flights etc so she could return home. Thank you so much to all involved.
    Mich the main thing is you are home safely and your team of doctors etc will get to the bottom of what is making you so unwell.
    I promise I will be coming to Perth to visit you as soon as we know we are both well and ready to really have some fun together.
    Love you lots my gorgeous pink sister
    Mel xxx
  • adean
    adean Member Posts: 1,036 ✭
    edited March 2015
    We all love you we will be starting a fan club,ha ha . We missed you because we feel like your part of our spirit and heart we are all women who have just put our hands out for understanding and I think that's what we give each other. So sorry you missed out on what you wanted to do, but remember we are going to be here for a long time. All body parts crossed for today. Luv and hugs adean
  • adean
    adean Member Posts: 1,036 ✭
    edited March 2015
    We all love you we will be starting a fan club,ha ha . We missed you because we feel like your part of our spirit and heart we are all women who have just put our hands out for understanding and I think that's what we give each other. So sorry you missed out on what you wanted to do, but remember we are going to be here for a long time. All body parts crossed for today. Luv and hugs adean
  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thank you Al and Adean for your precious words.

    I am so lucky to have so many beautiful people who do care but Fan Club might be stretching it a bit far hee hee hahahaha.

    What would I do without all you peoples out there?

    New quote to share given to me yesterday by a very beautiful friend.  You need both rain and sunshine to make a rainbow.  So true so keep looking for those rainbows.

    Lots of love always, Mich xoxoxoxoxo

     

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thank you Al and Adean for your precious words.

    I am so lucky to have so many beautiful people who do care but Fan Club might be stretching it a bit far hee hee hahahaha.

    What would I do without all you peoples out there?

    New quote to share given to me yesterday by a very beautiful friend.  You need both rain and sunshine to make a rainbow.  So true so keep looking for those rainbows.

    Lots of love always, Mich xoxoxoxoxo

     

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thank you Mandy. I am so sorry you got landed at the last minute with coming up with a talk.  Connect is something I am very passionate about and know that BCNA does such a wonderful job of connecting us all together world wide so I was happy to give my speech in the end.  Extremely nervous to start with when i was first asked buy had a complete turn around in the end.  It was one of my many disappointments that I was unable to do this.

    BUT in saying that I am so very glad that it was you that was asked and that you stood up there in my place. Thank you and sorry to put you on the spot.  I am sure you have more experience with public speaking than I have ever had hee hee :-) 

    Take care, lovely lady and I am so glad I got to finally meet you face to face.  We can continue our online chats knowing what the real person looks like now.

    Lots of love always, Mich xoxoxoxo

  • MandaMoo
    MandaMoo Member Posts: 500 ✭
    edited March 2015

    Oh Mich - sorry to hear you had such a rough time and missed out on the fun you had planned. I hope that you find the source of what is makin you unwell soon so that you can heal. A xx

  • MandaMoo
    MandaMoo Member Posts: 500 ✭
    edited March 2015

    Oh Mich - sorry to hear you had such a rough time and missed out on the fun you had planned. I hope that you find the source of what is makin you unwell soon so that you can heal. A xx

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thank you so much Amanda for your kind wordsand thoughts.  I hope I get to the bottom of it all soon. 

    I hope you are doing okay my precious.

    Lots of love and wellness today,tomorrow and always, Mich xoxoxoxo

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