Friday Update - 31st March 2023

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Mez_BCNA
Mez_BCNA Administrator, Staff, Member, Moderator Posts: 874
edited April 2023 in Community news and events

Hi everyone,

BCNA have been around town with the Port Lincoln and Warrnambool forums both being held in March. If you wish to watch the recordings when they become available, refer to the My Journey article https://myjourney.org.au/article/3662 

Easter is just around the corner too. For those who observe the occasion, may you have a lovely week. If it includes a hot drink with hot cross buns to mark the occasion, then we have come into the perfect weather here in Victoria.

Take Care and enjoy the update.



Community Highlights

March 2023 Activity

During the month of March the Online Network had 91 new discussions; 441 comments and 18,557 visits to the community.

Popular Forum Discussions

If you have missed some of the most active discussions in the past couple of weeks, you can check them out via the links below:

All the tests to update new diagnosis
Friday Funnies
Feeling a failure
Just feel like running away
Decision on chemotherapy

Posts by 'Category Name' March 2023



Community News

BCNA News - 07 March 2023

BCNA part of first ever research into Fear of breast cancer recurrence in Aboriginal and Torres Strait Islander women  

BCNA News - 23 March 2023

Findings from the study, led by Professor Jane Usher at the University of Western Sydney, found people from LGBTIQ+ communities continue to face disparities of care


BCNA Health Professional Network News - 23 March 2023

  • New Trial for Advanced HER2-Positive Breast Cancer. Breast Cancer Trials has opened a new study called the TUGETHER clinical trial, which aims to find out if adding tucatinib and pembrolizumab to the usual treatment given to people with advanced HER2-positive breast cancer, will slow down the growth of the cancer. Read further details about The TUGETHER clinical trial and discuss with your treating team if you wish to know more about accessing trials


Trans Day of Visibility


Today on Trans Day of Visibility (31 March 2023), BCNA affirms and celebrates our transgender and gender diverse members.

Trans and gender diverse people may have questions and concerns about how they will be impacted by a breast cancer diagnosis, including how cancer treatment will affect their body image and gender affirmation, how their treating team will respect their gender and how they can access inclusive peer support.

Breast cancer can affect anyone, and everyone has the right to health care that respects their identity and is free from discrimination.

Read more about challenges faced by trans and gender diverse people in this report by the Australian Research Centre in Sex, Health & Society: https://www.latrobe.edu.au/.../TRANScending...

BCNA has a suite of resources for those in LGBTIQ+ communities with breast cancer, here:

Break the cycle of hereditary breast cancer

BCNA joined a Pink Hope event at Parliament House in Canberra last week to help break the cycle of hereditary breast cancer. Representatives from BCNA's Policy & Advocacy Team heard from a consumer panel shining a light on the challenges Australians at risk of, or diagnosed with, hereditary breast cancer face.

As part of this panel, we heard from Nikki Neofitou who at 23 made the decision to undergo preventative breast cancer surgery, but it was delayed and, while waiting, she was diagnosed with cancer.

BCNA joins Pink Hope in advocating for a national approach to reducing wait times for preventative, and other breast cancer-related, surgeries.
Read the ABC News story here:

BCNA's iconic Field of Women is back at the MCG this August to mark BCNA's 25th anniversary. Early-bird pre-sale tickers will be available soon!

Register NOW to be notified when pre-sale tickets are live via the following link https://bcna.live/FieldOfWomen2023

Webcasts / Podcasts

Webcast

Details will be available next week for an upcoming webcast: 'Prioritising me - setting healthy boundaries' on the 27th April 7.00-8.00pm. Stay tuned!

Podcast

Season 2 of 'What you don't know until you do' podcast is coming in April! Following on from the success of season 1 of What You Don’t Know Until You Do with Dr. Charlotte Tottman, in which Charlotte talks about her lived experience of breast cancer over 10 insightful episodes, we're excited to be back with season 2.

This season will focus on Charlotte's clinical experience and will explore topics such as navigating relationships with your treating team, managing behavioural changes and the importance of setting boundaries for self-care.

Books / Movies / TV Series / Documentaries 

Currently reading the book The Girl Who Fell From the Sky . This is a story of a young woman's resilience and courage after falling 14,000 feet whilst skydiving. Emma wakes in hospital a paraplegic and learns how to live again.

Hope you enjoyed the update and if you have any feedback please feel free to comment below or send a private message.

@Jenny_BCNA @Carissa_BCNA @Pat_BCNA @Mez_BCNA

If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEDT), alternatively you can email helpline@bcna.org.au

The mod team - Mez, Carissa, Jenny and Pat

"I can be changed by what happens to me. But I refuse to be reduced by it" - Maya Angelou