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Friday Update - 25th February 2022

Mez_BCNAMez_BCNA VictoriaAdministrator, Staff, Member, Moderator Posts: 288


Friday Update 25th February 2022

Hello members

Welcome to another Friday update as we round out the month of February. Included in this week’s update is a re-cap on the Carman’s Fun Run event and link to ‘Ask the Expert: Triple Negative Breast Cancer’ digital event that was held on 17th February (On-demand recording available). There are also updates to share on My Journey regarding COVID-19 resources.

The Beacon is out on the 1st of March, so watch your inbox! (What is The Beacon? Check out previous issues here ).                                                                                                               

Community highlights

Popular forum discussions

Members new and old may have missed some of the forum discussions that have been most active the past fortnight:

1. Elective preventative mastectomy advice?

2. I thought I'd gotten over the hand/wrist pain!

3. How to answer! Am I in remission?

4. Radiation On Lesion

P.S If any of you are animal lovers, check out the discussion thread What pets do you have? There have been alot of gorgeous pictures shared lately

 

Community News

My Journey – COVID-19

There is now a ‘What’s new?’ section at the top of the My Journey COVID-19 Information article. It will provide a summary of new information relating to COVID-19 with links to more detailed information. This will save members having to read through the whole article to look for anything new. You can check it out by clicking the link https://myjourney.org.au/article/3154

The content team have also added a link to a new article by Cancer Australia on what to do if you test positive to COVID while having cancer treatment - https://www.canceraustralia.gov.au/covid-19/covid-19-information-people-affected-cancer/managing-your-cancer-care-context-covid-19  The article was developed with significant input from BCNA Consumer Representative Dr Susannah Morris.


DCIS (Ductal Carcinoma in situ) Resources

My colleague’s and I have had quite a few chats on the helpline this week with women diagnosed with DCIS and who were not sure what this means for them. I thought it was a timely reminder to share some of the DCIS resources available:

·        BCNA Booklet ‘Ductal Carcinoma in situ’ (call us 1800 500 258 to order)

·        What is Ductal Carcinoma in situ? (BCNA website link)

·        John Boyage’s book DCIS of the breast: Taking control  (available from bookshops)

·        BCNA Podcast 'Upfront about breast cancer': EP 24 DCIS

·        BCNA Webcast: The Role of Radiotherapy in the Treatment of DCIS and Early Breast Cancer

·        Communication aid: Understanding ductal carcinoma in situ (DCIS) and deciding about treatment (Cancer Australia).


Carman’s Fun Run - Recap


A massive THANK YOU to all the wonderful participants, attendees, volunteers, donors, and event staff who made this year’s Carman’s Fun Run an incredible day! It was so special to all come together in real life after two years as a community, with an outpour of support and love for those affected by breast cancer.  BCNA managed to raise a phenomenal amount of just under $125,000! The Gaudry Foundation very generously dollar matched the first $10,000 raised. BCNA would love to thank our partners Sole Motive and Carman's Kitchen for making this event so wonderful.


Cancer Council - Digital mammograms a step closer to reality to help catch breast cancer

Researchers are now a step closer in developing automated life-saving breast cancer risk-prediction tests. These tests could revolutionise how mammography is used to detect the disease earlier.  For more info CLICK HERE  


Counterpart – Whats On?


For those of you who haven’t heard of Counterpart. They connect, support and inform people living with breast or a gynaecological cancer to live well. They have a variety of sessions in March including; ‘Why and how to exercise’, ‘Lobular cancer’, ‘Self-care for lymphoedema’, ‘Chair Yoga’. CLICK HERE to check out the events page.


Webcasts (Did you miss last week’s event?)

Ask the Expert: Triple Negative Early Breast Cancer with Dr Nick Zdenkowski


Thank you to everyone to tuned into our first Ask the Expert digital event with @DrNickZdenkowski, on triple negative early breast cancer. ⠀We hope you found it valuable and informative.⠀⠀

If you missed the event, the video is now available to be viewed on-demand. To view now and see all our previous digital events, click the link: https://buff.ly/3I5LgJZ

Books / Movies/ TV Series/ Documentaries

The Patient Chef - Chris O'Brien Lifehouse


A collection of recipes and tips donated by cancer patients and carers from the Chris O'Brien Lifehouse. Every aspect of producing the book was donated including recipes, graphic design, editing, photography and printing by Random House. And every cent from the sale of the book goes towards supporting cancer patients at Chris O’Brien Lifehouse.


Take care until next time and in the meantime, if you have feedback or any concerns while online, please contact one of the moderators -  

@Jenny_BCNA @Carissa_BCNA @Anna_BCNA @Pat_BCNA @Mez_BCNA

If you need to speak with someone regarding your concern, please call 1800 500 258 alternatively, you can email [email protected]

Take care,

The mod team – Mez, Carissa, Jenny, Anna & Pat

“You can’t wait until life isn’t hard anymore before you decide to be happy.” –  Jane Marczewski aka Nightbirde

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