Newly diagnosed BC but I dont know stage and type

Dear @Eunyoung, Aren't our network members so lovely and understanding. I too have found the network supported me a lot.

from jennyss  in Western NSW

All the best @Eunyoung and @youngdogmum with your ongoing treatments.  I am hoping your next treatments are less harsh xx

Great news that the tumour has shrunk, @Eunyoung - Awesome!  

Take care xx

Hi @Eunyoung
Sorry to hear your first AC was bad, I hope the rest are okay.
Im officially finished with AC and move to dose dense Taxol on 28/05! I’ve managed through without anything significant so far except the emotional side of things, but am currently battling an URTI. No fevers though! Here’s hoping.

Yes my QSuper came through which has been an absolute blessing. They are keen to start talks of when I’m considering returning to work...but the doctors are more than happy for me to take my time and go back when I’m ready. 

Amazing news with the tumour; I suppose that’s one good thing about triple negative it seems to absolutely get destroyed!!! 

Take care xx

Hi @youngdogmum thanks for asking my condition. You are a such a lovely one. 
First of all, i am triple negative and started chemo-AC dense dose fortnightly from 3/5. After first chemo, I had severe reflux that made me so sick. At time of that settled, I had fever of 39.9 WoW. My neutrophils dropped to 0.16. I had 4 days of admission. Yesterday, I had 2nd cycle of AC +neulasta inj as per does dense protocol.I feel better than my first chemo. Thanks god. Hopefully, it continues. Luckily, there is no metastasis and my tumor has shrunk by nearly 50%. I feel so thankful for that.

How are you? Did you started chemo? It tested me my limit to be honest. But dont be scared we are stronger than that. By the way, can I ask about income protection claim? I presume you have Qsuper insurance. Did you have any problem with claiming?

Thanks @youngdogmum for rememebering me again. I just wanna give a big hug xoxo.

@Eunyoung how did you get on?? Hope you are well.

Wow so many of us are nurses!! 

Hi @Eunyoung I also live in Chermside.  I was diagnosed last November by routine mammogram at the Chermside Breast Clinic then had mastectomy at Holy Spirit as a private patient.  I saw Dr Melinda Cook who is really lovely and also works out of the Wesley.  I had to have an MRI which was done at the Wesley and the Breast Screen staff there were exceptional in their care.  Happy to PM if you have any questions.

@Eunyoung @kmakm @primek. Hi there. Thanks ladies for tagging me in this post. Nice to chat to you guys again. @Eunyoung I’m brisbane Northside too but had treatment at Redcliffe. I’ll tell you my story and I’ll pm you also. 

I had a routine mammogram end of April 2016 aged 43 I had a fibroadenonoma like you the year before that I was told was benign so was just following up and I had lumpy boobs so was having yearly mamms since turning 40. No family history either. I’m a nurse like you too. 

When I was told my results of my mammogram (triple neg)  I was referred to Redcliffe for surgery but I decided to see  dr rod borrowdale privately as he does private and public breast surgery and he put me on his public list so that sped things up for me I had surgery publically at Redcliffe within three weeks would of had it sooner but dr borrowdale went away.  He was great. I knew I wouldn’t get the stage or the grade until post op with the oncologist. I saw dr Kieran bigby and still do 6 monthly.

So my formal diagnosis was stage 2a grade 3 (3cm) triple neg left breast no lymph nodes involved and all scans clear. I chose to have a mastectomy so I only needed chemo and not radiation as well. (My choice) I then had a prophlaxis mastectomy of my right breast as my guts told me too and I’ve decided not to do the recon. You will need to get your results first to know what’s best for you. Please remember this is what I did i and you will need to get advice from your surgeon and oncol to see what’s best for you. Please feel free to ask me any questions and like I said I’ll PM you.  

Hang in there love once you get a plan you will feel better. It can be advantageous having a nursing background but can also be a pain in the arse as we know too much. We will catch up for sure.  Whatever the outcome you’ve got this and no matter what there is always someone on this forum to hold your head up out of the shit creek that is breast cancer. It is doable.   Big hug. Margie x 

I 

Thanks everyone for helping and reasuring me. I feel actually a lot better now. @youngdogmum .I live in north brisbane Chermside. I am going to see GP tmr and asking him to refer me wesley breast clinic. I choose to pay rather than doing nothing. Because,I am a nurse as well, I think sonographer and staff there would be more specialising in BC. I also consider mater as well.I just wanna know whether I am DCIS or IDC and any lymph node involvement. My first ultrasound result said there are 2 nodule?(very small,that could be normal) In my axillary but sentinel node are normal. That is acutally worrying,but now too much.Good thing is now my mindset is quite settle now I am ready to go through. We will see I am stronger than this bullshit :)

I just want to add,
if you do decide to see your GP tomorrow and they order more imaging, ask them to write “please kindly bulk bill” and often the imaging companies will do this!!
This will save you a few hundred dollars hopefully. I did mine through Qld X-ray and they bulk billed all of my imaging except my breast MRI, but unfortunately Medicare doesn’t pay for MRIs if BC is already known. 
Note an MRI isn’t needed for everyone so don’t worry if you don’t get one :) 

There is the Mater Private Qld X-ray womens imaging centre for mammogram; they have doctors very astute into BC, but that is of course on the other side of town for you.. 
There is also another Qld X-ray in the Mater Private that can do ct scans/bone scans if the GP decides to go ahead with any of those, hopefully you could get everything done in one day/visit :) 

At the end of the day if you can get the imaging done before seeing the surgeon for free anywhere will be fine :) 
No point driving all the way to the Mater if you don’t need to from North side. 

Take care.