Now the waiting

SweetpetalSweetpetal Member Posts: 29
edited December 2018 in Newly diagnosed
So I've had my portacath inserted (totally lost it it the room), had my echo, CT Chest/Abdo/Pelvis and Bonescan.  Kinda feel like a science experiment.  Now to wait until next wednesday to start chemo.....


  • BlackWidowBlackWidow Lake GardensMember Posts: 109
    Thinking of you  <3 <3 <3 <3 <3 <3 <3
  • SisterSister Adelaide Hills, SAMember Posts: 3,877
    The losing it bit can happen sometimes.  Don't let it bother you - I think the health professionals are used to it.
  • Blossom1961Blossom1961 VicMember Posts: 944
    Portacath. Torture chamber for me. Most people find it not an issue. I feel for you, BIG time. I felt lost between the end of my testing and the start of treatment. Not long to go for you now. Go to your favourite eating place this weekend to treat yourself just in case you don't feel like it later.
  • kmakmkmakm MelbourneMember Posts: 6,869
    edited November 2018
    I caused quite the scene at my first chemo. Left alone in a room with the cold cap on and going for hour before the chemo started. Burst into noisy uncontrollable heaving sobs. My hands were over my face and the machine was loud. I was in the far bed in a two bed room (no one else in the other bed) so I thought no one would hear. Too many BC traumatised kids at home to cry there. I suddenly heard a voice. I took my hands of my face to see a very old woman in a hosital gown shuffling towards me on a walking frame and a crowd of people gathered round the door all staring in. "Are you all right dear?" "Yes. No. Yes" followed by bitter weeping laughter (mine). The nurse was fetched and the crowd dispersed. She held my hand and told me to cry as much as I like, that I was in a safe space. I cried for an hour! They're used to it.

    As my dear grandmother-in-law used to say, better out than your elbow!

    I also cried all the way through my CT scan. But that was just after the PS had told me I'd have to have implants (which I didn't want and in the end didn't have), that I was destined to put back on all the weight I'd lost (not yet I haven't), that I wouldn't be able to lose enough to get into the BMI safety zone before my operation (I did), and that I'd never look good naked (see my husband!). There aren't the words in my vocabulary for that man...
  • Jen029Jen029 MelbourneMember Posts: 16
    Hi @Sweetpetal I'm also starting chemo on Wednesday, although the last few weeks have been very stressful with lots of appointments etc I now feel like I'm in limbo waiting for what is coming next.
  • kezmusckezmusc Member Posts: 1,101
    edited November 2018

    It does start to feel a bit that way with all the poking, prodding and scanning.  You feel like every man and his dog has seen your boobs and bits. Tears are par for the course along the way I'm afraid. My "totally losing it episode" was after the initial oncology appointment.  I walked out of the office and promptly collapsed on the floor in tears in front of everyone waiting for their appointment.  They very quickly ushered me into another office so as not to scare anyone I think.

    Number one is the hardest because of the unknown.  I don't think I spoke a word to anyone the morning of chemo 1 and could hardly fill out my forms at the desk I was shaking that much. I  kind of just followed instructions like some kind of zoned out zombie until the cold cap got turned on.  That sure woke me up lol.

    It will get better as you start to work out the routine of things.  For me the afternoon of chemo was spent on the couch.  Day 2 and 3 were awesome with a huge burst of energy from the steroids.  Crash day was day four and then better until the next one.  It depends on the drug as well.  I found the AC (not sure what chemo you are having) was cumulative and round 4 took the longest to recover from. 

    All the best lovely.  We'll be thinking of you.

    @kmakm.  What an asshole.  "How to not be an insensitive jerk" should be part of med school. Sounds like my first oncolgist, what a cow.  Glad I got rid of her. 
  • kmakmkmakm MelbourneMember Posts: 6,869
    @kezmusc It beggars belief how rubbish some of them are at it...
  • SweetpetalSweetpetal Member Posts: 29
    @Jen029 I with u there 
    Thanks for all the support ladies
  • arpiearpie Mid North Coast, NSWMember Posts: 2,522
    Thinking of you as you go thru all this, @Sweetpetal -  big hugs coming your way xx

    I think the wheels fall off for most at least once thru active treatment ..... sometimes more often - all totally normal.   I was a bawling mess during my rads as my husband fell off his bike & broke a rib - so I was looking after him with 4hrly meds as well as doing the rads (and also lost a valued piece of jewellery when the chain broke)  ... As with @kezmusc - I was spirited away to a separate room with door closed, with social worker to 'recompose  myself' ..... most of the health professionals you will deal with will be lovely.  Just the occasional arsehole pops up, as @kmakm found!   :(  

    All the best for your ongoing treatment xx
  • PaynePayne Forster NSWMember Posts: 149
    @Sweetpetal, best of luck for Wednesday.  Do you have someone to go with you?
  • SweetpetalSweetpetal Member Posts: 29
    @kezmusc I've stopped counting how many strangers have seen my boobs now. People have said just cut it off and I'm like um no I like my boobs thanks.
    @Payne yeah my other half is taking me to it. Hes been great
  • SisterSister Adelaide Hills, SAMember Posts: 3,877
    @sweetpetal I was big and brave and went to my rads consultation by myself.  I checked in and went where I was directed to go, got weighed and sat in the waiting room and waited...and waited... Asked if I was in the right place and waited...and waited... Asked how long the doctor would be and told that he wasn't in, someone was filling in for him on another floor and clinic was now over.  Directed through the maze of the hospital to the other floor, trying to find my way through the tears.  Got to reception and couldn't talk because I was bawling by then.  Talk about losing it.  And when I did recover, I stayed shaky for the rest of the afternoon.  Not my fault but certainly not how I would have reacted pre-bc.  They have boxes of tissues around for a reason!
  • SweetpetalSweetpetal Member Posts: 29
    @Sister that almost happened when I had to have my echo before the portacath got put in.  Not sure if some people realise how stressful things are.  Just because we look outwardly calm doesn't mean we aren't treading water like a mad person to keep our heads above the water
  • arpiearpie Mid North Coast, NSWMember Posts: 2,522
    That was a shocker, @Sister    :(    

    @Sweetpetal - They have NO IDEA of the stress etc, until it happens to themselves!
  • SweetpetalSweetpetal Member Posts: 29
    @arpie just frustrating sometimes.  I work in health and I try to show compassion but some of the people i have encountered during this i wonder why they ever took a job like that.
Sign In or Register to comment.