TNBC reducing risk through removal of ovaries, fallopian tubes and uterus-anyone else advised this?

JSN
JSN Member Posts: 34
edited July 2018 in Health and wellbeing
TNBC July 2017-partial mastectomy, chemo & rads. 

I spoke with the oncologist and surgeon about having a bilateral mastectomy to reduce my risk of recurrence.  I trust both of these medical specialists but I am trying to work out whats best to do.  I know of women who have chosen to have bilateral mastectomy but only a few who have had ovaries etc removed.

They both stated that removal of ovaries and fallopian tubes was more advisable to reduce risk of recurrence.  Has anyone else been advised this and gone through with this?

My dilemma is should I do the lot-removal of ovaries, fallopian tubes, uterus and bilateral mastectomy (I had partial mastectomy). The thought of it is overwhelming to say the least.

I am really interested to hear what others have been advised or where to go for the most current treatment options following TNBC and reducing the risk of recurrence.

Comments

  • onemargie
    onemargie Member Posts: 1,264
    Hi there love as you know I’ve had the double and I’ve had a hysterectomy but kept my ovaries prior to my diagnosis and my oncol told me that because I had TNBC and it wasn’t hormone receptive I didn’t need to have my ovaries out and also because the chemo put me into menopause they would no longer work anyway and also because I was negative for the gene it wasn’t needed. But In saying that I see dr bigby on 23rd so I’ll ask him again and let you know.  Where do you see your oncol love is it at Redcliffe ?  Margie xx
  • JSN
    JSN Member Posts: 34
    You are such an awesome support @onemargie as always thank you
  • onemargie
    onemargie Member Posts: 1,264
    @SamJgS you’re welcome love. Happy to chat anytime you know that. Information overload is definitely overwhelming isn’t it. Everyone is different. I got advice from my team then trusted my gut and did what I thought was best for me and have no regrets about my decision. You’ll get your head around it all and decide what’s best for you. Big hug. Margie xx