Forum Discussion
Nicksta
8 years agoMember
Newly diagnosed invasive carcinoma stage 2
Hi there , new to this ....
Diagnosed with invasive ductal carcinoma in my right breast . Had a lumpectomy 3 weeks ago , 2 nodes removed and 18mm Tumor .Nodes were clear . Had satellite nodules in my margins which were not seen in any scan or during surgery, so margins were not clear , so had a second surgery last week . Tomorrow is the day I get the next lot of results . Prognosis seems good but the last 4 weeks seem to be waiting for lots of results with always more results that I wasn’t expecting .
My left boob feels like it has lumps and am getting paranoid . Feels like from now on there will be suspicious lumps and can’t help but wonder if a double Mastectomy is just better for peace of mind ....surgeon says there is no need . It’s more about lowering stress levels and just wanting to make the best decision now . I guess tomorrow’s results will determine what is best depending on if I get clear margins . So many questions why not just do an MRI now even if it’s just to check the left breast ....anyone have similar thoughts , stories ??
Diagnosed with invasive ductal carcinoma in my right breast . Had a lumpectomy 3 weeks ago , 2 nodes removed and 18mm Tumor .Nodes were clear . Had satellite nodules in my margins which were not seen in any scan or during surgery, so margins were not clear , so had a second surgery last week . Tomorrow is the day I get the next lot of results . Prognosis seems good but the last 4 weeks seem to be waiting for lots of results with always more results that I wasn’t expecting .
My left boob feels like it has lumps and am getting paranoid . Feels like from now on there will be suspicious lumps and can’t help but wonder if a double Mastectomy is just better for peace of mind ....surgeon says there is no need . It’s more about lowering stress levels and just wanting to make the best decision now . I guess tomorrow’s results will determine what is best depending on if I get clear margins . So many questions why not just do an MRI now even if it’s just to check the left breast ....anyone have similar thoughts , stories ??
36 Replies
- arpieMember@Nicksta - congrats on finishing your Rads & all the best on the tabs! I hope your burn/peeling isn't too bad & the cream/ointment works well for you.
You may feel even more fatigue over the next few weeks as it works thru your system ..... the warmth will 'hang in there' for a while yet.Take care xx - kmakmMemberWell done @Nicksta. Give yourself a pat on the back and get planning for the next holiday so you've got something new to focus on.
I had two lots of DCIS that only turned up in surgery. Occult cells invisible to mammograms & ultrasounds. It's a bugger eh? Hopefully the MRI will put your mind at ease. K xox - NickstaMember@kiwi Angel, yes I have been following you throughout and only today went to tamoxifen section as I don't want to look ahead too much .Glad you are ok and moving ahead as well xx
@Sister, yes a great feeling nearly couldn't finish due to skin breaking up but I did it ! Didn't know it would be so good and cant wait to get back to some sort of normal and going to the gym again . - SisterMemberCongratulations on the end of radiation! It's a great feeling, isn't it?
- Kiwi_AngelMember@Nicksta - congrats on finishing your treatment. I too am on Tamoxifen - about 6 weeks now and I seem to be going ok. Pity about the holiday but at least it will be something to look forward to and many more fun times ahead when you recover xo
- NickstaMemberThought I thought I would post here with an update . Tomorrow my last day of radiation . I can’t believe it’s the last one .
I start on tamoxifen within 2 weeks . I had hoped to go away skiing this weekend but not feeling up to it and oncologist said no anyway .She prescribed flamazine silver cream for the burns which I am hoping will go quickly . I’ve worked through the whole time which has been good except the last week was tough . Needed some light at the end of these last 5 weeks ,hence why I had focused on a ski trip with my 12 year old daughter ), oh well . I am so glad I found this online network especially now as I feel like I am being pushed out in the big world again . I have an appointment with my surgeon in November to organise MRI ( due to DCIS in surgeries that did not show in my mammogram and ultra sound ). I hope all this radiation blasted it all away. Thank you everyone for all your posts , it’s been a huge comfort ( being a single mum it can get lonely ) . Am sure I will pop on again soon xx - nikovMemberHey @Niksta I agree, with that amount of biopsies and surgeries in such a short amount, I would've lost my mind. I understand why they've done a lumpectomy but would it be worth maybe just suggesting to have a skin-sparring mastectomy so that you don't have to keep having surgeries and biopsies?
- Harvey1903MemberHi there - similar to you I have had two re-exisions, going to have an MRI today as there are still no clear margins. Seems like it keeps getting bigger everytime they go in! Anyhow I had the slushing sound in my boob after the second op. Went away after about a week. Its called a seroma. Quite normal apparently after surgery.
I go to BS on Friday to hopefully get my treatment plan.
Hang in there Julie - EastmumMemberHi @Nicksta - I’m right here awake with you! Had my fourth AC chemo today and feeling well just went to sleep quite early and now I’m awake - also listening to my husband snoring away in his ‘non-snoring’ position - sigh - only one direction to go to from here and that’s towards the couch!
I can’t help you with the slushing sound - I’m just sending you bucket loads of good wishes and positive thoughts. You are an absolute trooper! What a traumatic time it’s been for you - 3 biopsies and 3 surgeries in a month!! Good lord that would be enough to test the patience of a saint!
I had the same reaction to endone - absolutely hated it. I found that one panadeine forte together with one panadol or one nurofen, absolutely did the trick for me after my mastectomy. Helped me function - ask your dr. If you’re ok with codeine it works a treat.
Hang in there! It sounds like your surgeon is really approachable and it’s awesome to have a good prognosis and treatment plan ready. Crossing my fingers for you that you’ll get the result you’re hoping for - otherwise, if you have to go down the mastectomy road, at least you’ll know conclusively. There are so many of us here that can support you with that.
Lots and lots of hugs. Yvette xxx - NickstaMemberThanks everyone for all your feedback and comments . I went to my go nomal doctor today as my right breast makes a slushing sound . ( had my 3rd surgery last Friday ) . I went to get the breast checked and found myself sat there asking many questions . Dr said to keep an eye on it it can be normal after that amount of surgery , seeing surgeon on Friday so just to keep an eye on it .
My prognosis is good treatment plan is radiation and hormones once we get clear margins . We are hopeful for clear margins but have been since we did the first surgery where we were looking for a 4 mm tumour that ended up being 4 times the size plus a satellite nodule . ( these were not on my mammogramme or ultra sound . )Since then I have DCIS and margins have not been clear hence why the 3rd re excision . So what if I have a clear margin on Friday how do I know that there is not more DCIS in the rest of my breast did we just fluke the margin . I know I just need to wait for the results as margin may not be clear and then there is no question re a mastectomy . Oh boy this is the time my head starts to spin in all directions .....
A core biopsy 3 samples and 3 surgeries in one month is taking its toll . I am in pain and just using panadol as I am a single mum and I need to function , I have a 12 year old daughter and a business so need to be able to drive and function . The Endone was keeping me too alert and made me feel sick.
Ok maybe now I have said it all out loud I can go to sleep .....anyone else have the slushing sound in their breast ?
Thanks everyone x