Food, drink and metal mouth food suggestions please!

Hi @LMK74...do you have 'normal' taste now?  I asked the rad onc today and he said rad can give you more of a smelly taste in your mouth...glad I didn't get that!  I wish that I had weight loss as a side effect from taste loss!  I needed to lose weight before the whole drama but it didn't factor in.  Might be the antidepressants I'm on that make me hungry in the night.  I need to do some walking.  It's weird when you are hungry but next to nothing is appealing. My poor pharmacy assistant lost all her taste and saliva from throat cancer, and won't be regaining it. She says food now holds no interest...she just has to go through the motions.  She also uses a bottle of lubricating mouth wash per week.  Makes me see how others are in much worse positions and be grateful. Bloody cancer!

@viking1, it took months for food to taste reasonable. I had zero appetite on chemo and I still have a poor appetite now. I finished chemo in July last year and rads in November. For me radiation made things taste gross and I lost 7kg in those 6 weeks of rads. The radiation nurses told me radiation can alter taste sometimes permanently and yet my rads oncologist said it doesn't. Go figure, maybe I was unlucky lol.

Hi ladies,
I thought I would be well over the metallic taste re chemo by now!  My last chemo was three weeks before Xmas and it's early March now.  It has lessened.  But I have no appetite for anything healthy.  I'm not losing weight as sticking to things I can taste properly.  But when I shop nothing much jumps out.  Have had some cravings for fresh orange juice.  I asked the chemo nurse last week when I got my herceptin shot if I should be over it now.  She said it is all individual.  I feel like the metal fillings in my mouth are leaking! Saliva is metallic.  Pity no weight being lost!  3 more rads to go! 27 down.

if you're looking for something healthy and filling and you don't mind the taste, I've found a spoonful of hommuous does the trick - can get you over the yucky bit to where you can eat something else.

I'm on Docetaxel & Cyclophosphamide and my mouth is like the bottom of a bird cage. Tastebuds shot, oral thrush every cycle, little to no appetite. My GP suggested something that has worked for me. Slice up a fresh pineapple and freeze it. Something about the enzymes seems to cut through. I have a couple of slices everyday.

@TripleTea Thank you ... it does then sound like if Bunbury deals with cancer patients I might be lucky and be able to have herceptin there...will get on to asking the chemo onc here in the New Year.  The trial for the new drug sounds promising. I am sorry you have to go through all of that.  My niece is 26 and on her father's side of the family her grandmother and aunts have had the same so carry the gene.  My niece has a three month year old and got married last year.  She hasn't thought about testing yet. I suppose she needs to decide if she wants another bub first.  I did some background research of my own and one of the outcomes was that they said it is a good idea to decide what you would want to do treatment wise before having the test.  I thought that was an interesting take on things.  Yes, my eyes water too!  I think I look more like a heroin addict tho as you should see my horrible scar tissue and red circle in the crook of my arm.  Result of one canulla being inserted in wrong place and bursting out after being left in for 7 days which was too long apparently.  Now pathwest struggles to get blood and veins are terrible.  But always aware that it could be worse!  Will try and find nose oil today.  xxx keep in touch.  Will you be at Charlie's or St John? I hope you have a good break before Feb and time to just relax and enjoy.

@viking1 yes it does sound like our regime is the same. I have my treatment in Bunbury but have triple negative breast cancer so no herceptin or tamoxifen or anything after chemo but they have mentioned I may be eligible  for a trial of a new drug that is for BRAC1 positive patients. I will be having a hysterectomy and double mastectomy Feb next year but that will all be done in Perth. 
Australind is a beautiful little area!

I will have to suss out the nose oil too. I had nose sores in the first week of this round and then constant runny nose and watering eyes? I feel like a crack addict(not that I know what that’s like but just based on movies

Isn't it awful?  I could eat pretty much anything but everything (yes, even chocolate)  had next to no taste unless it was loaded with salt.  I think I ate my weight in peppermints to try and get rid of that awful taste...blah.

Oh dear, that sounds like you were rather desperate! Last time I used the coloxyl I had an ‘oops’ moment, luckily I was at home though! 
I am thinking I will get this cough checked out by my GP if it doesn’t settle soon, as I’m not back at the hospital until 25th Jan. It’s starting to feel a bit like a cold, which is strange as I’ve been hiding out at home & not gone anywhere to have caught a cold. 

Nose oil - who knew?!  That might soften things.  Thank you!  Those smoothies sound delicious - be careful with your cough.  I had one pop up after chemo and kept complaining about it.  Was pneumonia.  Maybe get someone with a stethescope to listen for crackles as the swab testing takes ages.  I was surprised it was pneumonia as it didn't feel painful, just a bit heavy. I will ask the Dr on the floor at my next herceptin injection about the peripheral neuropathy as I have officially finished chemo and they've shut my file on that! My next herceptin shot is Xmas Day and so I have been 'weight listed' for an appointment as they're closed. Hopefully the chemo will be out of my system on the 25th ... 3 weeks after my last chemo.  I tried the movicol. I overstretched the mark and had prune juice, movicol, coloxyl, and pear halves on the same day to see if I could get a breakthrough. I did!