Suggestions for letter to federal minister for health

Thanks marg for your encouragement I'll give it a crack anyway and let you all know xx

Don't give up yet, @onemargie
The thing about advocacy is that new people have to keep joining the fight. The pressure has to be maintained. I was heavily involved in a variety of committees for years and worked closely with the Cancer Council Victoria. I firmly believe that five years on a committee is long enough, so fresh heads need to get involved.  
Yes, it can all seem a bit pointless, but these are real issues that will only be addressed if we keep banging on about them. 

@Zoffiel I actually have to agree with you, we need the backing and support to get things looked into and moving. Loveyoursister I think would be interested in helping to advocate for better assistance on all levels. 

Sounds like I'll be pushing shit up hill then doesn't it.souns like going to the media is gong to end up with no change either.  How fucked is it that we have to be on here on this forum in the first place number one and number two  have to even speak about the issues we've  all bought up on this post alone. They shouldn't even be an issue in the first place for fucks sake. Margie

The program focusses on physical/mental well being and the practical aspects mentioned impact on these 

Flinders Uni also has an interest in this area called the Finding My Way program - an online course for people with bc  

He might have graduate students who might like to research post bc life. 

I have been  talking to Professor Ian Olver today - he has recently returned to SAto head the Samson Institute at Unisa and was formerly head of Cancer Council Australia .He is an internationally recognized medical oncologist and a compassionate human being - he has both profile and opportunity to research these aspects of bc patients - might be worth a shot. He is an early riser and chatted by emails to me at 6am this morning - his email address is online 

That's a really good idea. Does anyone have a direct contact?

Loveyoursister is a new player with a high pubic profile at the moment While their initial focus may be research for cure, I'd wonder how receptive they would be to using a tidal wave of public support to lobby for the sort of changes in general survivorship welfare that are long over due.
Bless you all  at @BCNA  but your wheels turn slowly (though surely) and I wonder if a more 'agile' consumer led online push may pave the way for a research based approach from the mother ship later.
Noise makes news. I think we are in accord that the focus needs to be narrow if it is to travel any distance. 2 years ago I'd have had a go at this. I'm too tired now and would just stuff it up.