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Jane_Elizabeth's avatar
Jane_Elizabeth
Member
9 years ago

Someone who understands

So I was in the kitchen, preparing to cook an eggplant moussaka, and ruminating on the well known side effects of chemo (like hair loss) and the not so well known side effects that I have experienced (like changes in pigmentation on the face similar to the "mask of pregnancy), which I am experiencing.

And I came across someone who really really got it. We were both feeling a bit out of the norm, a bit different to those around us, a bit....not quite right. I felt like we really connected through our shared experiences of being a bit odd, even if for some one of us it would be only temporary. 

I got a photo of us together:

 

 

hair-loss

16 Replies

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  • jd48's avatar
    jd48
    Member
    9 years ago

    OMG Jane you should not be chicken about being seen with no head covering... You seriously look hot ????????

    Jel.

  • jd48's avatar
    jd48
    Member
    9 years ago

    They have let me loose from the hospital when they rulled out blood clots and heart function - got admitted as previous 9 days heart rate would not get below 125 and was too tired to walk across the house so GP ordered me into Emergency since it sounded all too extreme to him.

    Oncology guys never seen it but since heart seems healthy enough they were happy for me to crawl back gome and hoping it is just a weird sideffect that will go away soon enough.

    I am not stressing too much over it - to be honest the stains and marks and all that stuff I am well over stressing ... I hope it goes away but if it does not it is not the worst thing that can happen...

    I reckon a lot will get better eventually but even if these things linger so be it... Still beats having BC and worrying about it spreading ??

    Jel.

  • Jane_Elizabeth's avatar
    Jane_Elizabeth
    Member
    9 years ago

    Thanks Janine (of course I am too chicken to go out of the house without something on my head) and everyone who commented. I'm glad people got a laugh. Some days you just gotta laugh, other days you can't help but have a little cry. Jane

  • Jane_Elizabeth's avatar
    Jane_Elizabeth
    Member
    9 years ago

    Sorry to hear Jel you have been in hospital, hope all is good now. The onc nurse told me that what I have is like the mask of pregnancy which many people get, and which goes soon after birth, because it is hormone related. I will wait and see! It is unnerving to have all these changes and not know which are going to be permanent. Maybe it's better to find out slowly?

    Thanks for the comments, you have given me a few laughs over the last few months! Jane

  • JanineG's avatar
    JanineG
    Member
    9 years ago

    Thank you Jane, your smile is infectious??No idea what you looked like with hair, but you sure do look great without ??JanineG

  • jd48's avatar
    jd48
    Member
    9 years ago

    oh bugger... I allways thought dry flaky skin was temporary... mine is horrible - I mean that dry that bits stand up so hard and coarse materials catch if rubbed against it....

    Is that is permanent I really will be devastated. I can deal with staining but the dryness is killing me.

    Guess back to soaking it in shea butter praying it helps :(

    Jel.

  • ScorpionQueen's avatar
    ScorpionQueen
    Member
    9 years ago

    My skin has darkened in some places...my Onc told me this can be permanent.....my skin is still sensitive and still very very dry and flaky...these changes can all be permanent :( and with no clear indication when they will go....if ever....