8 Months & Counting
So an update on what the past 8 months has been like for me! Diagnosed Dec 14 with MBC (bone mets) straight up. Treatment is tamoxfen, zoladex & xgeva (both monthly injections) this is still my first treatment. I spent my birthday, 20th August, in the cancer centre Fiona Stanley Perth, now this is a birthday i never thought i'd see.. (Only cause that's what google made me think) and spent the afternoon with my youngest daughters & loving partner. I recieved news that my bone turnover count has dropped dramatically, so that's stable, my tumour markers down to 210 (not sure what it's supposed to be) but the oncologist told me that's good, she couldn't detect the lump in my breast... Not even anemic anymore and ive been anemic for as long as i can remember. She said no need for scans this month, so it's been put back again, not in any pain Dr says that that's due to there not being enough cancer in the bone, i dont know, i've never seen any of my scans... My original oncologist told me I dont need to concern myself with all of that, that's her job, and my job is to get up and live my life, she said that many people live for many years on this treatment, and then when that stops working there's plenty more to try. I owe that woman my life. Litterally.. I almost dont want to say how happy and healthy i feel cause i feel like i'll jinx it. But i do, I feel great - I feel healthier than i've felt in a long time, and if i didn't tell you i had a "terminal" disease you would never know i'm "sick" I'm happy to report that i'm doing well, living my life .. I have somedays where i think, i can't be terminally ill, perhaps they got it all wrong... And i've often heard that bone mets are the easiest of them to treat, and wont kill you, dont know how true this is, but i'd rather have that news stuck in my head than the scary statistics you see when you google this horrible disease which i dont do anymore... Not sure how many of you are out there, and how long you've been going for, but I plan on being around for a long time. We've made plans for Christmas holiday's, and another holiday next year. Please let me know how long you've been living with this for... The way I see it, is we can get up while we're healthy and able and live a happy life, or sit at home feeling sorry for ourselves ... Feeling sorry for myself is not an option for me anyway, I have 4 lovely daughters that i need to be here for.. Live, Love. Laugh xx MJT
Comments
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Hi fantastic post that is what we all need to remember life is to live and enjoy. I also love that you have also put laugh. Dr Google can be dangerous. Sending you a hug, smile and definetly lots of laughterxxx
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Hi, that was an inspiring post. What a fantastic attitude, and positive outlook you have. Sending you and your family a big cuddle, Trace ??????
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Truly inspirational post. You made my day because I have just been googling things that made me very anxious and your post just inspired me so much that I'm immediately going to stop searching and end my day right here on this positive note after I have posted this reply. Take care and keep us posted on your walk. Hugs René
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Your post was uplifting and took the scary bits away , what a lovely post to read. Good luck with everything. Adean x
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Thank you Tully76
I am only at the beginning of my journey, nearly 3 months since my diagnosis. I too was straight to secondary cancer in my bone & liver. I went from leading a very full life to currently chemo, blood test, scans and meds. I feel & look pretty good. I occasionally get some pain in my back & general aches from chemo, but overall It could be a lot worse. I'm learning to live with this chronic illness & refuse to think it will take me anytime soon. I have way too much to live for & like you have children,9 & 12 that need me around. My daughter tells me to 'be courageous' & every time I need a scan or chemo that is my mantra. I know it won't be any easy journey, but one I'm willing to give all I've got, just how I've lived life thus far. I look forward to reading & sharing many more posts. Take care & always be kind to yourself. Pocket Rocket.
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Thankyou for your wonderful post. I too was diagnosed with MBC from the beginning 3 months ago with bone and liver mets. I am on tamoxifen and goserelin injections currently and am due to get results of first scans since treatment started tomorrow. I feel very well and can almost forget I havee this disease at times. I have stopped looking at Google too, way to scary. Very glad to hear you are feeling happy xx
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You go girl!!! What an inspiring post. I have a friend who has a friend.....you know how it goes, but seriously she was diagnosed with bone mets straight up, and that was 12 years ago and she, has a monthly infusion that does not make her sick at all, she works full-time and is really living a full life. This is not a nice disease, but you are truly dealing with it in a very gracious way.
Hugs.
Paula xx
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Hi tully 76,
life is all about timing, I've not been on this site for months now & I thought I might sign in and catch up.
I was diagnosed with Triple negetive breast cancer May 2013. I had 4 rounds of chemo & a bilateral mascetomany. The last of my reconstruction surgery was june this year.
I have been back at work and life was the new sort of normal until 3 weeks ago when out of the blue came this sore back. I've had X-rays which were all clear but the pain is just persisting.
I can walk,bend,sit,stand it's just deep half way down my right side near my spine and radiate to my hip. Getting comfortable in bed at night is sometimes difficult. I'm now heading on Monday for a bone scan.
i guess my question to you is where did you pain begin and how was it picked up.
Love you positive attitude you rock girl:)
cheers Sallietj
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Hi, fantastic post. Great honesty and positive outlook. You reminded me to practise what I preach and don't do Dr Google! Keep rockin it! Karen xx
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Hi sallietj,
the way they found mine was i'd fractured my spine doing gardening. Thats when they found mets in my spine.. I knew nothing of metastatic breast cancer until i was diagnosed..
Good luck with your scans tomorrow.. And remember that its not all doom and gloom .. Xx
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Hi pocket rocket..
We have no choice but to give all we got! Kids are a great motivator ..
Im on hormone treatment and havent had chemo yet..
All the best on your journey x
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Hi Paula, thank you.. I love hearing of stories of people that live with this illness for a long time.. I know that in 5-10 years time someone will tell someone that I am still living with this..
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