Not benifical for the site

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Sarah54
Sarah54 Member Posts: 164
edited February 2015 in General discussion

I apologise to all newcomers who have to read one or two blogs that have become negative between I and another. I have decided that this site should only ever be positive and have decided to say good-bye as I know it is not going to stop. Having had brain surgery just over 2 weeks ago I find I must only receive positive input and although 99% of you lovely pink ladies are just that and will miss you all the remaining 1% is like a bad apple at the bottom of the barrel.

Good luck pink sisters and cyber hugs

Over and out

Sarah54

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Comments

  • rowdy
    rowdy Member Posts: 1,165 ✭
    edited March 2015
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    Hi Sarah you have to decide what is right for you, so sorry to see you leave please take care of yourself. If you know how to talk privately I would love to hear how you are going. I'm not very tech savy about this sort of thing.Sending you huge cyber hugsxx

  • Robyn W
    Robyn W Member Posts: 1,932 ✭
    edited March 2015
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    I don't know if you wanted a reply to your post,but I feel that I can't just let you go like this!!!!! Believe it or not,I was just about to write a new post called" what is a blog?" I have noticed lately,that on more than one occasion,there have been replies to posts that probably cross the line.I say probably,because everyone's perception of what is correct on this network,is obviously different.However,there are a couple of things that I believe strongly that EVERYONE should follow.For me,this online network of beautiful,beautiful ladies,exists so that we might support each other the best way that we can,because of the common link that we have with Breast Cancer.We are all so different,and our cancers are also different.NOT ONE is the same!!! So with this in mind,this blog is for general support,compassion,someone to LISTEN to us when we need it.When advice is asked for,I feel that IF we have direct experience or knowledge pertaining to the particular question,then we should answer.But I feel that for the most part,our support should be mainly offered as 'a shoulder to lean on'.Even if I was a doctor,I would not offer advice on anyone's particular Cancer diagnosis on this blog.It would not be correct to do so,and we should all remember that NONE of us are in a position to offer medical advice or otherwise.ONLY our doctors should do this!! Yes we have Dr.Google,and if we want to use it,then that is up to us,but what we find on there ,we should not be posting on here as facts and figures to other ladies.So much of what you read online is rubbish,and that is why we have places like BCNA,Cancer Council etc.to use as places where we can find the latest and most up to date CORRECT information.Lets remember ladies,that because of the nature of BC,some of us are not in a good place,physically or emotionally,and the rest of us ,if we don't rememebr the rules of the blog,could do these ladies more harm than good.I hope that I am not talking out of turn in any way,but this blog is VERY important to me,and I feel that every once in a while,it doesn't hurt us to remind each other just WHY we came here in the first place.Cheers xoxoRobyn
  • Robyn W
    Robyn W Member Posts: 1,932 ✭
    edited March 2015
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    I don't know if you wanted a reply to your post,but I feel that I can't just let you go like this!!!!! Believe it or not,I was just about to write a new post called" what is a blog?" I have noticed lately,that on more than one occasion,there have been replies to posts that probably cross the line.I say probably,because everyone's perception of what is correct on this network,is obviously different.However,there are a couple of things that I believe strongly that EVERYONE should follow.For me,this online network of beautiful,beautiful ladies,exists so that we might support each other the best way that we can,because of the common link that we have with Breast Cancer.We are all so different,and our cancers are also different.NOT ONE is the same!!! So with this in mind,this blog is for general support,compassion,someone to LISTEN to us when we need it.When advice is asked for,I feel that IF we have direct experience or knowledge pertaining to the particular question,then we should answer.But I feel that for the most part,our support should be mainly offered as 'a shoulder to lean on'.Even if I was a doctor,I would not offer advice on anyone's particular Cancer diagnosis on this blog.It would not be correct to do so,and we should all remember that NONE of us are in a position to offer medical advice or otherwise.ONLY our doctors should do this!! Yes we have Dr.Google,and if we want to use it,then that is up to us,but what we find on there ,we should not be posting on here as facts and figures to other ladies.So much of what you read online is rubbish,and that is why we have places like BCNA,Cancer Council etc.to use as places where we can find the latest and most up to date CORRECT information.Lets remember ladies,that because of the nature of BC,some of us are not in a good place,physically or emotionally,and the rest of us ,if we don't rememebr the rules of the blog,could do these ladies more harm than good.I hope that I am not talking out of turn in any way,but this blog is VERY important to me,and I feel that every once in a while,it doesn't hurt us to remind each other just WHY we came here in the first place.Cheers xoxoRobyn
  • Robyn W
    Robyn W Member Posts: 1,932 ✭
    edited March 2015
    Options
    I don't know if you wanted a reply to your post,but I feel that I can't just let you go like this!!!!! Believe it or not,I was just about to write a new post called" what is a blog?" I have noticed lately,that on more than one occasion,there have been replies to posts that probably cross the line.I say probably,because everyone's perception of what is correct on this network,is obviously different.However,there are a couple of things that I believe strongly that EVERYONE should follow.For me,this online network of beautiful,beautiful ladies,exists so that we might support each other the best way that we can,because of the common link that we have with Breast Cancer.We are all so different,and our cancers are also different.NOT ONE is the same!!! So with this in mind,this blog is for general support,compassion,someone to LISTEN to us when we need it.When advice is asked for,I feel that IF we have direct experience or knowledge pertaining to the particular question,then we should answer.But I feel that for the most part,our support should be mainly offered as 'a shoulder to lean on'.Even if I was a doctor,I would not offer advice on anyone's particular Cancer diagnosis on this blog.It would not be correct to do so,and we should all remember that NONE of us are in a position to offer medical advice or otherwise.ONLY our doctors should do this!! Yes we have Dr.Google,and if we want to use it,then that is up to us,but what we find on there ,we should not be posting on here as facts and figures to other ladies.So much of what you read online is rubbish,and that is why we have places like BCNA,Cancer Council etc.to use as places where we can find the latest and most up to date CORRECT information.Lets remember ladies,that because of the nature of BC,some of us are not in a good place,physically or emotionally,and the rest of us ,if we don't rememebr the rules of the blog,could do these ladies more harm than good.I hope that I am not talking out of turn in any way,but this blog is VERY important to me,and I feel that every once in a while,it doesn't hurt us to remind each other just WHY we came here in the first place.Cheers xoxoRobyn
  • SusanF
    SusanF Member Posts: 202 ✭
    edited March 2015
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    I send you peace and health.
  • SusanF
    SusanF Member Posts: 202 ✭
    edited March 2015
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    I send you peace and health.
  • Rosanna
    Rosanna Member Posts: 284
    edited March 2015
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    Sarah

    Live is beautiful, everyday living is a reward.  You are beautiful.

    I send you the biggest hug ever and lots of kisses

    Rosanna

  • mum2jj
    mum2jj Member Posts: 4,330 ✭
    edited March 2015
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    I wish you peace.
    I will miss your blogs.
    Sorry to see you go.
    Sending you a cyber hug.
    Paula x
  • mum2jj
    mum2jj Member Posts: 4,330 ✭
    edited March 2015
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    I wish you peace.
    I will miss your blogs.
    Sorry to see you go.
    Sending you a cyber hug.
    Paula x
  • TonyaM
    TonyaM Member Posts: 2,836 ✭
    edited March 2015
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    I can't begin to imagine what you are going through,dealing with brain mets and surgery.I'm sorry to hear you are leaving this network - perhaps you just need a break.(never say never)Lots of support here if/when you feel like 'dropping in'again.I understand and am sending you best wishes and a big hug.Tonya xx
  • Robyn W
    Robyn W Member Posts: 1,932 ✭
    edited March 2015
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    So true Tonya,' never say never'
  • TonyaM
    TonyaM Member Posts: 2,836 ✭
    edited March 2015
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    Robyn,you are so right.We are here in a peer support role and not a professional one.It is not ethical for any of us to give medical or mental health advice to others at this network.We can only share our own experience of bc and how we feel.This may be quite different to another person's experience.As for statistics,my bc has never conformed to them.Stats are best left to the specialists and even they can't always predict.I think it's good to question our treatments but this doesn't mean we won't follow through.Having discussions at this network can help us ask the necessary questions at our specialist appointments.After that,we can then make informed/confident decisions for ourselves. I've been a registered nurse for almost 40 years and have a lot of medical and counselling experience.But when I log onto this network,I'm a bc survivor,a pink sister offering friendship and support.Tonya xx
  • Cook65
    Cook65 Member Posts: 733 ✭
    edited March 2015
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    Hi Sarah

    You do what you need to do. We are all here for you if you every need us. Take care and good luck to you.

    Karen xox
  • Cook65
    Cook65 Member Posts: 733 ✭
    edited March 2015
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    Hi Sarah

    You do what you need to do. We are all here for you if you every need us. Take care and good luck to you.

    Karen xox
  • Aliskin
    Aliskin Member Posts: 21 ✭
    edited March 2015
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    Hi Sarah
    I'm new here and I'm sorry your leaving. I wish you 100% positive thoughts and good health. Cyber hug to you and your loved ones, Ali xx

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