Hi @Fernweh, thankyou for sharing your story and hope that you find some valuable connections here with online network members.
You mentioned you are worried that you may be missing something critical, therefore I thought I would share BCNA resources and external information that may be of support to you:
Cancer Council - Your Guide to best cancer care
https://www.cancer.org.au/assets/pdf/breast-cancer-optimal-cancer-care-pathway This resource can help to guide you as
to the national standard of high-quality cancer care that all Australians
should expect.
Breast Care Nurse
Your treating hospital should link you in with your
breast care nurse over the coming days , however if you haven't received a call
you can contact The
McGrath Foundation provides specialist breast cancer information and
their Breast Care Nurses can be contacted on 1800 183 338. Referral to a
McGrath Breast Care Nurse is available to you for free, whether you’re in the
private or public health system. McGrath Breast Care Nurses can support you
from diagnosis and throughout your treatment and provide support for the
various stages of breast cancer.
BCNA’s My
Journey resource which is accessible online or as a downloadable app.
This resource provides high quality, evidence-based information which can be
tailored to your individual diagnosis and which provides insights from
others diagnosed with breast cancer (It also has a symptom tracker). It is easy
to access via computer, tablet or smartphone.
My Journey was developed with assistance from breast
cancer specialists and offers:
•
Information and support tailored to specific needs at all stages of the breast
cancer journey including DCIS, early breast cancer and metastatic breast
cancer.
•
Immediate updates as new insights, research and clinical trials become
available
•
Videos, webcasts and podcasts
Charlotte Tottman’s Podcast mini series ‘What you
don’t know until you do’ https://www.bcna.org.au/understanding-breast-cancer/resources/podcasts/
You may enjoy listening to Dr. Charlotte’s journey, which
lays out her lived experience, provide explanations of psychological triggers
and responses, and practical strategies that may help someone on their own
cancer journey.
Just Diagnosed: what’s next? https://www.youtube.com/watch?v=NRW7g5tBx5A
This is an on-demand webcast for people recently diagnosed with breast
cancer. This video will provide practical tips about the information need
to help you through this time and guidance on how to make the treatment
decisions that are best for you.
My Care Kit
My
Care Kit for women who have recently had breast surgery. It contains a
specially designed Berlei bra and soft form/s, provided through a partnership
between BCNA and Berlei. Available free of charge to women in Australia who
undergo surgery for breast cancer, and is ordered by your health professional (or you can call our member support team 1800 500 258)
I hope this above information if helpful for you. If you
would like to chat with one of our Member Support Team please contact us on 1800 500 258. We can discuss and identify any additional supports you need.