Blog Post
October 13th 2024
“If we can’t be counted, how can we be looked after properly?”
Counting matters, as Lisa Tobin, BCNA Consumer Representative, reminds us.
It’s been two years since our Making Metastatic Breast Cancer Count campaign and a year since releasing our paper ‘Time to Count People with Metastatic Breast Cancer - A Way Forward’.
BCNA advocates every day for those living with metastatic breast cancer to be consistently counted in cancer registries.
“Despite being raised as an issue throughout BCNA’s 25-year history, we remain in 2024 with no picture of metastatic breast cancer – not just in Australia, but around the world” said Vicki Durston, BCNA’s Director of Policy, Advocacy & Support Services.
Vicki, speaking in Portugal as President of the General Assembly for the Advanced Breast Cancer Global Alliance, emphasised the urgent need for accurate data to drive the changes that will improve outcomes for people with metastatic breast cancer worldwide
🔗Read our paper Time to Count People with Metastatic Breast Cancer - A Way Forward via the link https://www.bcna.org.au/resource-hub/research-reports/time-to-count-people-with-metastatic-breast-cancer-a-way-forward/