Blog Post
I would love to read more stories in my edition of the beacon around ABC.
I have EBC and I understand the fear hearing about ABC creates. but it is the reality of our lives i think. we have to deal with our pink sisters getting diagnosed with ABC or hearing stories of ABC. but i find knowing you Amanda and others with ABC very uplifting and I learn so much from you all. your spirit, the way you want to fight is just inspirational. I think they should do a story on you for the Beacon :-)
I'd be very interested to see what BCNA have to say regarding this. I never realised we had different issues.
BCNA is only quiet new and needs opinions like this and those replying to this to know what this community truely needs.
I feel if there was to be a story in the Beacon regarding ABC you could always put a kind of disclaimer on it saying this is a story regarding ABC please read at own risk or something like that. give the reader the choice.
some may benefit, some may not. but i know I would love to read stories no matter the diagnoses. you should not be excluded.
I think the fantastic thing about BCNA is that u learn u are not alone. I am so sad u feel that way right now... huge hugs amanda. keep warm and good on u for speaking up.
Merylee