Secondaries in the liver

Hi Anne Maree,

Thanks so much for responding to my post. 

It really helps to speak to positive and inspirational women like you.  I'm not quite there yet, at the moment I would describe myself as feeling a bit flat and resigned to things.

I started chemo again last week  - I'm having 6 rounds of Gemcitabine & Paclitaxel.  I had a bone scan yesterday and see my Oncologist again next week for the results of that.  I find it difficult living in the country where it is a 3 hour round trip for tests, treatment and Oncologists at our nearest regional centre.  The Oncologists fly in and out of there once a week from RPA and you rarely see the same one more than a few times.  We love the country but as things go along might have consider a move back to a city.

Something I still cannot get my head around is why I had no scans from my original diagnosis in December 2009 until a few weeks ago after I started to feel intense pain in my abdomine.  By this stage the mets where all over the liver!  Wouldn't it have been better if they had of been detected months ago when still very small???  I've asked this question many times after initial diagnosis (why no scans??) unsatisfied.  One Oncologist told me 'the outcomes are no better with regular scans'.  Can you understand this?  I'm going to grill the Oncologist about this yet again next week.  Can you advise me to ask any more questions of him?  I notice you had information about your secondaries being estrogen positive.  Should they biopsy mine?  This has not been discussed.

I sometimes feel a bit intimidated by this site because so many of the posts are extremely upbeat.  I don't want to bring people down by moaning and groaning but I can't fake what I don't feel at the moment!!

All the best to you,

Cathy XX