Blog Post
Hi Kittykat,
Sorry about the delayed response, I am not that good navigating round this site. I was diagnosed 1 sept 2010 with liver secondaries and widespread bone mets in spine,right shoulder,sternum and ribs. My tumors were very aggressive on diagnosis and estrogen positive. I have responsed beyond my oncologists expectation as I was quite unwell at times and lost 12kg weight.
I am now 18 months post diagnosis next week and having staging ct and bone scans. I have 2 children ages 11 and 13.
Living one day at time is all we can do,enjoying life and maximizing experiences as they arrive. Living with advanced cancer is challenging as we face the unknown. I find it very important not to let it consume me. I always find my children cope well when I cope well and I strive to be at peace as much as possible. I have chosen to keep my childrens lives
as normal as possible, doing all the medical things but prioritizing appoint as much as possible. I focus a lot on psychological care , spiritual well being and nutrition and it makes a lot of difference. I remain active as much as my health allows me.
I am on 2 lots hormonal treatments, zometa , had 2 lots of chemo and radiation to shoulder and spine. surgery I am told is not very successful in ABC.There are some other treatments out there not offered in public but I havent investigated these. So far my tumors respond to chemo but regrow under six months from completion which they class as failed response but they say there are many options for chemo.
I would like to see national data collection to find out realistically what is happening out there.