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My first blog

traxx65's avatar
traxx65
Member
15 years ago

Just been having a quick cruise through the site and figuring out how to make it all work.  Amazing to see that there really are other people going through the same stuff as I am.  I have found that a lot of friends and family have decided to drift away, I feel like they have written me off already. I have been nearly 5 years like this.  My diagnosis anniversary is National Breast Day Woo Hoo.  Instead of everyone running away I would love them to take a really good look at me and see that I am still alive, I am still working, I am still doing Karate and I am still looking after my family, and then think to themselves,"wow, look at her, you can live with cancer.  The rest of the world doesn't stop just because we get breast cancer or any type of cancer.  Kids still need to go to school, groceries need to be bought and bills need to be paid.  You still have to function as normally as possible, this is just another added extra to our daily life.

 

I haven't had chemo, but just the thought of it scares me.  I admire everyone who goes through it and I can only hope that I will be that strong, if and when my time for chemo arrives.

 

I've had my mastectomy, and just managed to convince a plastic surgeon to operate on me and put a tissue expander in and reduce the other side.  When you are a size E/F in the bra department, having only one that size can be a bit of a nightmare and literally a pain in the neck.  It is such a relief.  The first plastics guy I saw made me feel guilty about wanting to sort my body out and I ended up feeling like he thought I wasn't worth the effort because I was advanced.  Thank goodness I found someone else, who actually listened to me and made me feel like I wasn't being an idiot.

This disease takes so much away from you and we shouldn't be made to feel guilty for wanting some hint of normaility.

 

That might do it for now.  Thank you for listening.

Good luck to all in their journey

Published 15 years ago
Version 1.0

16 Comments

  • Tracey

    Great that your hubby wants to attend all the appointments with you, bless his heart!!

    We live in a little country town with very little shops, so I have to travel for my appointments and I always try to convince my husband that I will be fine on my own too, but mainly so as I can hit the shops afterwards....he he.  Sometimes I just want to browse and enjoy the time out by myself.

     

    You must really have your hands full with 3 daughters of that age!!!  My youngest is 5 going on 15, so I was thinking of her times 3...urgh!!  My son is far simplier and just does his own thing.

     

    Lovely to chat again, glad that you are finding some benefit of this site.

     

    Tanya

  • Tracey

    Great that your hubby wants to attend all the appointments with you, bless his heart!!

    We live in a little country town with very little shops, so I have to travel for my appointments and I always try to convince my husband that I will be fine on my own too, but mainly so as I can hit the shops afterwards....he he.  Sometimes I just want to browse and enjoy the time out by myself.

     

    You must really have your hands full with 3 daughters of that age!!!  My youngest is 5 going on 15, so I was thinking of her times 3...urgh!!  My son is far simplier and just does his own thing.

     

    Lovely to chat again, glad that you are finding some benefit of this site.

     

    Tanya

  • Thanks for the welcome Di.  After reading a few of the blogs, I am surprised to see just how many people there are like me out there.  We all assume there is no-one else like us and our situations are all unique to ourselves, which they are in a way, but the similarities far outweigh the differences.  Congratulations on creating such a wonderful site.  I can see it will be of great use to so many people for support, reassurance and newfound friends.

    Thanks you for a job well done.

    Tracey

  • Hi Traxx and welcome to the network!  Thanks for telling your story, the network is a great place for sharing, so I'm glad to hear you're looking forward to talking some more. Just shout if you need a hand finding your way around. :)

  • Hi Traxx and welcome to the network!  Thanks for telling your story, the network is a great place for sharing, so I'm glad to hear you're looking forward to talking some more. Just shout if you need a hand finding your way around. :)

  • Hi Tanya,

     

    Thanks for the message.  We start  school holidays here tomorrow too.  It is great to be able to switch off the alarm, that is all I ask for.

    I am currently on Femara, Bondronat and Zoladex.  My husband insists on coming with me to all my appointments which is great, but sometimes I feel like I want to do the odd one on my own.  Sometimes there are things I don't ask because he is there and I don't want him to know just how I am feeling at that stage.

    My daughters are 18, 16 and 14. At the moment I am teaching two of them to drive, hubby won't get in the car with them.  Ha ha ha

    I want to wish you all the best  with your treatments.

    Best wishes to you and your family.

    Tracey

  • Hi Trax

    Thanks for sharing your story.  I met  some wonderful woman with secondaries on the weekend at the Young womens conference.  They all just want to be treated the same and like you said live the best life that you can live. 

     

    I got to admit when a close friend of mine was diagnosed with secondaries I was scared to call in case I didn't know what to say, but one thing for me, was certain, that I would just come out and say that I really didn't know what to say, but there was no way that I was gonna say nothing.   I think people struggle for the right things to say, so they say nothing, or worse stay away.  My friend appreciated my honesty and we talked for hours, not about cancerm but just everyday stuff.

     

    Great that you have been stable for so long and great that you still have not had to have chemo.  It has come a long way.

     

    I look forward to talking some more.  School holidays start here in QLD tomorrow, so I am looking forward to no school runs and lunches for a couple of weeks and hopefully even a sleep in  (that might be pushing my luck a little)!!.

     

    Tanya

  • Hi Trax

    Thanks for sharing your story.  I met  some wonderful woman with secondaries on the weekend at the Young womens conference.  They all just want to be treated the same and like you said live the best life that you can live. 

     

    I got to admit when a close friend of mine was diagnosed with secondaries I was scared to call in case I didn't know what to say, but one thing for me, was certain, that I would just come out and say that I really didn't know what to say, but there was no way that I was gonna say nothing.   I think people struggle for the right things to say, so they say nothing, or worse stay away.  My friend appreciated my honesty and we talked for hours, not about cancerm but just everyday stuff.

     

    Great that you have been stable for so long and great that you still have not had to have chemo.  It has come a long way.

     

    I look forward to talking some more.  School holidays start here in QLD tomorrow, so I am looking forward to no school runs and lunches for a couple of weeks and hopefully even a sleep in  (that might be pushing my luck a little)!!.

     

    Tanya

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