I purchased my first sleeve through the breastcare surgeons rooms and cost $79 for Jobst sleeve. However as I was made aware I would now need to wear this EVERY DAY for the rest of my life I checked ...
@SoldierCrab I think it was about $800-, you could ring them and find out. First you get a referral from your GP, then see the Professor and have the mapping which I think may be a part of the diagnostic clinic https://www.mqhealth.org.au/hospital-clinics/lymphoedema-clinic/make-an-appointment I've attached photos below, so you can see what they do. As you can see one arm is significantly larger than the other, which means what has been happening hasn't been working for me over the past 10 years. I wish it had been done 10 years ago (although it wasn't available then). This was just the first part of the diagnosis. I went to Mt Wilga rehabilitation hospital for 3 weeks (supposed to be 4) for daily therapy and education and to be fitted for a garment which I found out that many people who have lymphodema go there every 6 months. This was covered completely by the health fund. Next, I am looking at surgery (liposuction and then LVA). Happily, I feel that my lymphodema is at least under control now, since my DIEP breast reconstruction with lymph node transfer, rather than continuing to get worse and worse. My plastic surgeon referred me to Macquarie Uni and he told me that having the scar opened up and fresh, new flesh transplanted there would help me first and foremost. He said that he couldn't guarantee the lymph node transfer, but the mapping confirmed that it is alive and working :)
I don't have lymphoedema but in my internet noodling today I came across these. Thought they looked rather fun. No idea if they're any good but the woman I saw wearing one has had cancer three times a...
After months of trying to use a sports bra with a lymph flow pressure pad my lymphoedema physio has just recommended I move to proper lymphoedema compression bras and am gobsmacked at the cost. I ran...
The ALERT (Australian Lymphoedema Education, Reseach and Treatment) team at Macquarie University are looking for people living with primary or secondary lymphoedema to complete an online survey which...
Hi everyone. So I’ve just come back from one of my lymphoedema clinic appointments and they said my sozo measures and arm measurements were a bit high. I’ve been given some extra exercises and self ly...