Blog Post
nikov
7 years agoMember
Seems as though I wasn't the only person with the lack of support from the Breast Care Nurses. Not being able to contact my treating team directly, I had to go through the Breast Care Nurses every time I had a question and in saying that, it's whenever they had the time to get back to you or whenever they're not holidays. I was told that I "somehow dropped off their radar" and my name wasn't in their system, didn't know know what organisations we're out there re: BC Support until I opened up my laptop and Googled a whole bunch of things and 4 weeks post op my mastectomy I was told about the Berlei Mastectomy bra and the My Journey Kit. I get it, not enough nurses and heaps of patients or they're plenty of nurses but not educated in a sense of BC patients but it's already hard being first diagnosed that now you also have a lack of professional support. I requested to see a Social Worker to ask about benefits etc. She told me to jump online and apply for everything myself. I requested to see the hospital dietitian "sorry, you'll be waiting months" Requested to see the physio post mastectomy "sorry, she's booked out". I'm not having a go at Breast Care Nurses but I feel as though there needs to be more support surrounding them, in order for the patients to get more support
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