Blog Post
nikov
8 years agoMember
Seems as though I wasn't the only person with the lack of support from the Breast Care Nurses. Not being able to contact my treating team directly, I had to go through the Breast Care Nurses every time I had a question and in saying that, it's whenever they had the time to get back to you or whenever they're not holidays. I was told that I "somehow dropped off their radar" and my name wasn't in their system, didn't know know what organisations we're out there re: BC Support until I opened up my laptop and Googled a whole bunch of things and 4 weeks post op my mastectomy I was told about the Berlei Mastectomy bra and the My Journey Kit. I get it, not enough nurses and heaps of patients or they're plenty of nurses but not educated in a sense of BC patients but it's already hard being first diagnosed that now you also have a lack of professional support. I requested to see a Social Worker to ask about benefits etc. She told me to jump online and apply for everything myself. I requested to see the hospital dietitian "sorry, you'll be waiting months" Requested to see the physio post mastectomy "sorry, she's booked out". I'm not having a go at Breast Care Nurses but I feel as though there needs to be more support surrounding them, in order for the patients to get more support
Related Content
Welcome to BCNA’s Online Network. The same network you know and love, but now even better and with a single login for our digital tools.
Online Network has been designed around your needs, based u...
4 months ago1.4KViews
3likes
68Comments
A roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced over the weeken...
2 years ago396Views
5likes
14Comments
1 MIN READ
Check out BCNA's metastatic data map
A visual reminder of our goal to achieve stage and recurrence reporting nationwide. Metastatic breast cancer is treatable but incurable. As people live longe...
3 months ago82Views
1like
0Comments
1 MIN READ
Every day, 58 Australians are diagnosed with breast cancer. Too many face high financial costs, and ongoing emotional and health challenges. That’s why BCNA is calling on the Government to make tr...
2 months ago39Views
2likes
0Comments
Hello Everyone,
My name is Gavin and my wife (Karen) was recently advised
she had BC (March 9th), I’ve been a rock for her and our two kids at
home (we’re in our 50’s) and have advised my girls li...
7 years ago2.9KViews
1like
56Comments