Blog Post
I just read the report which was very informative.
However the one thing that really stood out to me (and made me both incredibly sad and absolutely furious) was to read that many people diagnosed with metastatic breast cancer felt that they had less support than when they were originally diagnosed!
WHAT??????
Particularly the bit about even less access to breast care nurses??
Is there a reason for this? Are there special "metastatic" breast care nurses (obviously not enough of them?) Or is it because most of your contact with the breast care nurse is when you are originally diagnosed - most often with early cancer? I know that I've had 2 emails with my breast care nurse in the last 2 years but I'm 4 years out from diagnosis. If I have a question she answers it but otherwise I have no contact.
I would have expected that if I had a recurrence I would again have lots of contact with her. Am I wrong in this expectation?
However the one thing that really stood out to me (and made me both incredibly sad and absolutely furious) was to read that many people diagnosed with metastatic breast cancer felt that they had less support than when they were originally diagnosed!
WHAT??????
Particularly the bit about even less access to breast care nurses??
Is there a reason for this? Are there special "metastatic" breast care nurses (obviously not enough of them?) Or is it because most of your contact with the breast care nurse is when you are originally diagnosed - most often with early cancer? I know that I've had 2 emails with my breast care nurse in the last 2 years but I'm 4 years out from diagnosis. If I have a question she answers it but otherwise I have no contact.
I would have expected that if I had a recurrence I would again have lots of contact with her. Am I wrong in this expectation?
Related Content
Welcome to BCNA’s Online Network. The same network you know and love, but now even better and with a single login for our digital tools.
Online Network has been designed around your needs, based u...
1 year ago
One great way to engage with others is by tagging them in your posts or comments. Tagging helps notify someone that you’re talking to them or mentioning them in a conversation.
What does “Tagging” ...
5 months ago
A roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced over the weeken...
2 years ago
We are absolutely thrilled to share something truly special with you - Breast Cancer Network Australia's Strategy 2025–2030 is officially available to view and it marks a bold, inspiring new chapter...
9 days ago
Last week, I had the honour of announcing the outcome of BCNA's 3-year project, as the technical report underpinning Australia’s first national estimate of metastatic breast cancer was released. This...
3 months ago