Blog Post
I just read the report which was very informative.
However the one thing that really stood out to me (and made me both incredibly sad and absolutely furious) was to read that many people diagnosed with metastatic breast cancer felt that they had less support than when they were originally diagnosed!
WHAT??????
Particularly the bit about even less access to breast care nurses??
Is there a reason for this? Are there special "metastatic" breast care nurses (obviously not enough of them?) Or is it because most of your contact with the breast care nurse is when you are originally diagnosed - most often with early cancer? I know that I've had 2 emails with my breast care nurse in the last 2 years but I'm 4 years out from diagnosis. If I have a question she answers it but otherwise I have no contact.
I would have expected that if I had a recurrence I would again have lots of contact with her. Am I wrong in this expectation?
However the one thing that really stood out to me (and made me both incredibly sad and absolutely furious) was to read that many people diagnosed with metastatic breast cancer felt that they had less support than when they were originally diagnosed!
WHAT??????
Particularly the bit about even less access to breast care nurses??
Is there a reason for this? Are there special "metastatic" breast care nurses (obviously not enough of them?) Or is it because most of your contact with the breast care nurse is when you are originally diagnosed - most often with early cancer? I know that I've had 2 emails with my breast care nurse in the last 2 years but I'm 4 years out from diagnosis. If I have a question she answers it but otherwise I have no contact.
I would have expected that if I had a recurrence I would again have lots of contact with her. Am I wrong in this expectation?
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