Blog Post
I just read the report which was very informative.
However the one thing that really stood out to me (and made me both incredibly sad and absolutely furious) was to read that many people diagnosed with metastatic breast cancer felt that they had less support than when they were originally diagnosed!
WHAT??????
Particularly the bit about even less access to breast care nurses??
Is there a reason for this? Are there special "metastatic" breast care nurses (obviously not enough of them?) Or is it because most of your contact with the breast care nurse is when you are originally diagnosed - most often with early cancer? I know that I've had 2 emails with my breast care nurse in the last 2 years but I'm 4 years out from diagnosis. If I have a question she answers it but otherwise I have no contact.
I would have expected that if I had a recurrence I would again have lots of contact with her. Am I wrong in this expectation?
However the one thing that really stood out to me (and made me both incredibly sad and absolutely furious) was to read that many people diagnosed with metastatic breast cancer felt that they had less support than when they were originally diagnosed!
WHAT??????
Particularly the bit about even less access to breast care nurses??
Is there a reason for this? Are there special "metastatic" breast care nurses (obviously not enough of them?) Or is it because most of your contact with the breast care nurse is when you are originally diagnosed - most often with early cancer? I know that I've had 2 emails with my breast care nurse in the last 2 years but I'm 4 years out from diagnosis. If I have a question she answers it but otherwise I have no contact.
I would have expected that if I had a recurrence I would again have lots of contact with her. Am I wrong in this expectation?
Related Content
Welcome to BCNA’s Online Network. The same network you know and love, but now even better and with a single login for our digital tools.
Online Network has been designed around your needs, based u...
27 days ago
A roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced over the weeken...
2 years ago Hi everyone! My name is Erana, and I am the Consumer Engagement Coordinator at BCNA. I work with our wonderful Consumer Representatives and oversee our Review and Survey Group. In the coming...
5 months ago
1 MIN READ
With October being breast cancer awareness month, we wanted to share updates with you throughout! So simply scroll down this post to see updates within the comments! Breast Cancer Awareness Mon...
7 months ago1 MIN READ
Hello Online Network members, We heard from our BCNA staff members attending the Clinical Oncology Society of Australia (COSA) Annual Scientific Meeting, that the 'Australian Cancer Plan' has been ...
2 years ago