Launch of the Australian Cancer Plan
Hello Online Network members, We heard from our BCNA staff members attending the Clinical Oncology Society of Australia (COSA) Annual Scientific Meeting, that the 'Australian Cancer Plan' has been launched today. To learn more about the new Australian Cancer Plan, which aims to improve prevention, screening, treatment and management of all cancers for all people across Australia see Australian Cancer Plan website.91Views0likes0CommentsFriday Update - 5th of May 2023
Hello members, There is quite a lot of BCNA activity to share in this update; new cancer treatments recommended for PBS subsidy; Season 2 of the Dr. Charlotte Tottman podcast; 'Prioritising me – Setting healthy boundaries’ webcast and more! Also, Bakers Delight’s Pink Bun campaign is back! Head into your local Bakers Delight between 11 May to 31 May, where 100% of the sales from every Fun Bun sold will go to Breast Cancer Network Australia (BCNA). I will share more details about the history of the campaign and how you can be involved. Community Highlights Popular Forum Discussions If you have missed some of the most active discussions in the past month, you can check them out via the links below: Her 2 for the second time Ways to lower cortisol. HRT (Estrogen and Progesterone Hormone Replacement Therapy) After cancer for menopause? Awaiting bone scan results... Letrazole effects Posts by 'Category Name' 1 April - 30 April 2023 Community News BCNA News 19 April 2023 - Bridging the gap in mental health support BCNA’s unique podcast, What You Don’t Know Until You Do with Clinical Psychologist and breast cancer survivor, Dr Charlotte Tottman has launched a second series – What You Don’t Know Until You Do: Unlimited CLICK HERE to read more BCNA News 24 April 2023 - New breast cancer treatments recommended for subsidy The recommendation of three breast cancer drugs for subsidy on the Pharmaceutical Benefits Scheme (PBS) is a significant step forward for all Australians affected by breast cancer CLICK HERE to read more. BCNA News 24 April 2023 - New alert for scam door knockers It’s recently came to our attention people claiming to represent Breast Cancer Network Australia (BCNA) are knocking on doors in NSW asking for donations CLICK HERE to read more. BCNA News 04 May 2023 - BCNA welcomes pharmacy prescription changes for breast cancer medications The financial impact for many who require hormone therapy following a breast cancer diagnosis will be lessened thanks to changes to the Pharmaceutical Benefits Scheme (PBS) CLICK HERE to read more. Darwin Information Forum BCNA is hosting an Information Forum in Darwin on the 17th of May 2023 for everyone affected by breast cancer, including their supporters, covering a range of vital topics CLICK HERE to register. Pink up your May! Between 11 May and 31 May 2023, 100 per cent of the money from sales of all Fun Buns sold in Bakers Delight bakeries around the country (not just pink ones) will be donated to BCNA. Over the last 23 years, Bakers Delight has raised nearly $23 million for BCNA. Your support ensures BCNA continues to provide free services and resources to the 20,741 people expected to be diagnosed this year as well as their families and supporters. If you do not wish to purchase a pink bun you can also support the campaign during the 11 May - 31 May period by: Purchasing a Tote bag for $7 or collecting all 3 Fun Bun Friends for $5 each Purchasing a BCNA Field of Women Beanie or Bucket Hat for $25 each, only available online https://pinksportsday.bcna.org.au/store or at selected bakeries Asking the friendly Bakers Delight staff to add a donation to your purchase when visiting a bakery Scanning the donation QR code on the Pink Bun Donation tins at Bakers Delight stores making a donation online Visit https://bcna.grassrootz.com/pink-bun-parties-2023/donate and donate to BCNA online A Pink Bun party is another wonderful way to get involved together with friends, family, or work colleagues. Read more via the link https://pinkbunparties.com/ Counterpart - workshop Counterpart are holding an ‘Chair Yoga’ online workshop on the 31st May 2023 for women affected by cancer. The session is designed to leave you energised and relaxed CLICK HERE to read more about ‘What’s on’ at Counterpart. Webcasts Did you miss last week’s webcast? Have you had trouble setting healthy boundaries with those around you during and beyond your breast cancer experience? Our Prioritising me - Setting healthy boundaries webcast is now available for viewing on demand via the following link https://bcna.live/PrioritisingMeWebcast (If you have not previously registered, you will need to register to watch recording). We had 168 registrations and the session went overtime with great viewer questions and subsequent chats from the panel! Books/Movies/TV Series/Documentaries Last Monday’s ABC Australian Story featured actress Heather Mitchell, who shared the dramatic twists and turns in her life; including her breast cancer diagnosis: Taking the Lead | Heather Mitchell - ABC News Hope you enjoyed the update and if you have any feedback please feel free to comment below or send a private message. @Jenny_BCNA @Carissa_BCNA @Pat_BCNA @Mez_BCNA If you wish to speak with the Helpline team regarding your concern, please call 1800 500 258 Mon-Fri 9:00am - 5:00pm (AEST), alternatively you can email helpline@bcna.org.au The mod team - Mez, Carissa, Jenny and Pat "Walls keep everybody out. Boundaries teach them where the door is." - Mark Groves121Views2likes0CommentsMy Care - Understanding Best Timeframes for Treatment
Hi members, During October for breast Cancer Awareness Month, BCNA will shine a light on optimal breast cancer care. The aim is to raise awareness in the community, the health sector and amongst the BCNA network about what optimal care means. I know not all of you are on other social platforms so I thought this would be a good idea to share the key October social media posts through the online network that relate to the theme of 'understanding my care'. The third of the five key areas of the Optimal care pathways for people with breast cancer is: 'Best Timeframes for Treatment ' We know being diagnosed with breast cancer can be overwhelming. You receive a lot of information, attend many appointments, and have to make decisions about the treatment and care that is right for you. The optimal care pathway for people with breast cancer outlines the timeframes in which you can expect tests or procedures to happen. They are only a guide, but can assist you in asking the right questions to help make informed decisions about your care. If you would like more information about timeframes for your treatment or the the optimal care pathway, you can visit our website https://bit.ly/BCNA_BCAM_ or call BCNA's Helpline on 1800 500 258 between 9:00 am - 5:00 pm AEST Monday to Friday121Views0likes0CommentsOnline Q & A Event - Breast Cancer 2021: Research, Risks and Recovery - Thu, 4 Feb 6:00 PM – 7:00 PM
Join Breast Cancer Trials and Australia's top breast cancer experts for a virtual Q&A to discuss the latest in breast cancer research. https://www.eventbrite.com.au/e/breast-cancer-2021-research-risks-and-recovery-registration-132884618471 I registered for this event. The previous one was interesting.181Views5likes5CommentsDense Breast info - which USA states advise their women .....
This is a map of the USA - where the 'pink' currently show states that already advise 'some' of their women that they have dense breast tissue and may require further assessment by Ultrasound and/or MRI ..... but even the 'pink' states don't tell ALL the women! This article Below indicates that the FDA is proposing to make it mandatory to advise women if they have dense breast tissue! I can only hope that Breast Screen Australia follows suit, when it comes thru in the USA. https://www.health.harvard.edu/womens-health/dealing-with-high-density-breasts Late last year, I actually received a letter from Breast Screen NSW telling me NOT to post on their Facebook page about the need for those with Dense Breast Tissue to be advised & to ask for an ultrasound ..... I was also posting the fact that Mammograms are available free of charge to all women in Australia aged 40 plus (NOT 50 plus as is in most of their advertising on TV and online.) They asked me to stop doing that too. But I am keeping on doing the "Free from 40" bit, anyway!! ;) So once the FDA comes thru and makes it compulsory for their breast screeners to advise women of their breast density - it should be a BIG kick up the arse for our own Breast Screening to do the same.171Views1like8CommentsResearch study - Share your views about how cancer treatment and care can be improved
If you've been diagnosed with breast or any other cancer and want to have a say about how cancer care can be improved, you are invited to share your views about how cancer treatment can be improved via an online survey being conducted by All.Can. All.Can is an international initiative which has been set up to identify common issues people affected by cancer experience around the world and identify how cancer care can be improved. This survey is part of a global research project to better understand people's experiences of cancer treatment, what barriers exist which are preventing people from receiving the best cancer treatment and care and what improvements can be made. The survey takes about 10-40 minutes to complete. You can find out more information about the research project and participate in the online survey here: http://www.myonlinesurvey.co.uk/allcan_ENAU/. Thanks very much for taking the time to consider this opportunity!361Views3likes13Comments