🌟Join the LeanOn Lymphoedema Self-Management Study
About this opportunity Have you been diagnosed with breast cancer and are currently living with, or at risk of developing, breast cancer-related lymphoedema? Researchers from Flinders University are inviting people to participate in the LeanOn Lymphoedema Self-Management Study, which is evaluating a new online platform designed to support self-care and improve quality of life for people affected by lymphoedema. Your participation will help researchers understand how well the platform supports people in managing their symptoms and navigating their lymphoedema care. What you'll do: If you choose to take part, you will: Access the LeanOn online platform. Explore evidence-based information and self-care resources. Receive a personalised care plan. Use tools to monitor symptoms and track your progress. Complete short surveys at the beginning of the study, and again at 6 and 12 weeks. Optionally participate in a feedback interview. Who can take part? 👥 You may be eligible if you: Have a history of breast cancer. Are currently living with, or at risk of developing, breast cancer-related lymphoedema. Are aged 18 years or older. Can read and understand English. Why get involved? By participating, you'll have the opportunity to: Access a new self-management support platform. Build confidence in managing your lymphoedema. Help improve resources and support available to people affected by breast cancer-related lymphoedema. Contribute to important research that may benefit others in the future. Interested? 📝 To learn more, read the Participant Information Sheet and register your interest here: If you have any questions, please contact the research team: Navaz Naghavi – [email protected] | 0433 805 014 Katia Ferrar – [email protected] | 0411 234 885📢 Loneliness & Social Isolation Research Study for People Living with Long-Term Health Conditions
Researchers from Monash University are looking for people with lived experience of loneliness or social isolation to take part in an important study. The research aims to better understand what makes support programs most useful, accessible and appealing for people living with long-term health conditions, including breast cancer. You may be eligible if you: ✅ Are aged 18 years or older ✅ Have experienced loneliness or social isolation (currently or in the past) ✅ Have been living with a diagnosed health condition for 12 months or longer. Examples include breast cancer, other cancers, heart disease, diabetes, anxiety, depression, arthritis, asthma and other long-term health conditions. 📝 What's involved? A confidential online survey taking approximately 25 minutes to complete. Participants can also choose to enter a prize draw to win one of ten $50 e-gift cards. Your feedback will help researchers design better support and social connection programs for people living with long-term health conditions. 🔗 Take the survey For research questions, contact: Sharon Clifford Monash University 📞 (03) 9902 4474 📧 [email protected] Thank you for considering this opportunity to share your experience and help shape future support services. 💗📱 Help Shape a Support Program for People Living with Metastatic Breast Cancer
Researchers from the University of Sydney, in partnership with Breast Cancer Network Australia, are adapting EMPOWER-SMS, a text message support program, to better meet the needs of people living with metastatic breast cancer. They're looking for feedback on the types of support, information and messages that would be most valuable. What's involved? ✅ Complete a short online survey ✅ Takes around 15-20 minutes ✅ Share your thoughts on support needs and message content 👉 Complete the survey here🌱Wednesday Wellness - Creativity, Colour & Caring for Yourself - 16Sep26🎨
When you're living with breast cancer, or are post-treatment, there can be days when finding the right words feels difficult. Sometimes, emotions sit quietly beneath the surface, and sometimes the mind just needs a gentle break from appointments, scans, treatments, recovery, or the everyday challenges that come with navigating cancer. This week, let's explore the healing power of creativity. Creativity isn't about being an artist or creating something "perfect." It's about giving yourself permission to play, express, explore, and simply be present in the moment. Whether it's painting, colouring, knitting, gardening, photography, journaling, pottery, crafting, or even rearranging flowers in a vase, creative activities can help us slow down and reconnect with ourselves. Many people find that creative pursuits offer: 🌿 A sense of calm and mindfulness 🌿 A healthy outlet for emotions 🌿 A break from worry and overthinking 🌿 A boost in confidence and self-expression 🌿 Moments of joy, accomplishment, and connection Spring is also a wonderful reminder that growth can happen in unexpected ways. Just as new buds appear after winter, creativity can help us discover new strengths, perspectives, and possibilities within ourselves. You don't need special skills or fancy supplies. Sometimes the simple act of putting colour on paper, taking a photo of a beautiful flower, or writing down a few thoughts can be enough. This week, why not set aside a little time to try something creative? Start small, be kind to yourself, and focus on the enjoyment rather than the outcome. 🎨 If you'd like to explore watercolour painting in a supportive environment, Counterpart is hosting a Water Colour Workshop in Melbourne on October 13th. You can find out more here:👉 https://counterpart.org.au/events/water-colour/ Wishing you a gentle, creative, and restorative week. 💖 💬 We'd love to hear from you. Do you have a creative hobby that helps support your wellbeing? Have you discovered a new artistic outlet during or after your breast cancer experience? Share your ideas, photos, or creations with our community below.📣 Have Your Say on the Future of Hospital Care in Australia
You are invited to contribute to an important national consultation on the next edition of the National Safety and Quality Health Service (NSQHS) Standards. These Standards help guide the safety and quality of care provided in public, private and day hospitals across Australia. They are reviewed every 10 years, and this is your opportunity to help ensure the next edition reflects what matters most to patients, families, carers and consumers. 💬 Why participate? Your experiences and insights can help shape future hospital care, ensuring the voices of people affected by breast cancer are heard. Whether your healthcare experiences have been positive, challenging, or somewhere in between, your feedback is valuable. 📝 About the survey Takes approximately 20 minutes to complete All questions are optional You can skip questions, take breaks, and return later using the same device You may review the draft Standards or a shorter Patient and Consumer Requirements summary before participating Survey closes 25 September 2026 Please note that some questions may ask you to reflect on personal healthcare experiences and may feel sensitive. If at any time you need support, you can contact Lifeline on 13 11 14. 🔗 Complete the survey 📢 Feel free to share this opportunity with others in your networks who may be interested in providing feedback. Your lived experience is powerful. By having your say, you're helping shape safer, higher-quality healthcare for current and future patients across Australia. Thank you for helping ensure the voices of people affected by breast cancer are part of this important conversation. 💕⏱️Last chance: BCNA's Policy & Advocacy survey closes at midnight❗
Complete the survey before it closes at midnight today: https://researchsurveys.deakin.edu.au/jfe/form/SV_5p9gsRqbkfZf5zw We've already received a huge range of voices helping to shape our future Policy & Advocacy efforts - and we would love to hear from you too! Your insights will help identify what's working well, where gaps exist, and what issues need greater attention over the next four years. 📝 The survey takes approximately 15-20 minutes to complete and closes at midnight tonight. Participation is voluntary, and you can skip any questions or exit the survey at any time. Thank you to everyone who contributes to this important work and helps ensure the voices of those supporting people affected by breast cancer are heard. 💕🧠 Research Opportunity: Have You Experienced "Brain Fog" After Cancer Treatment?
Many people affected by cancer notice changes to their memory, concentration, thinking or mental clarity during or after treatment. Researchers at Griffith University are looking to better understand these experiences and how support can be improved for older Australians affected by cancer. 💗 Your experiences could help shape future support, information and services for people affected by cancer. 👥 Who can take part? You may be eligible if you are: A person who: ✅ Is aged 60 years or older ✅ Has a current or previous cancer diagnosis ✅ Has noticed changes to memory, concentration or thinking OR A caregiver, family member or support person who: ✅ Supports someone aged 60 years or older with a current or previous cancer diagnosis ✅ Has noticed changes to their loved one's memory, concentration or thinking You must also: ✅ Live in Australia ✅ Be able to complete the survey in English 📝 What's involved? Participants are invited to complete a short online survey, which takes approximately 15 to 20 minutes. The survey explores: 🔹 Experiences of cancer treatment 🔹 Changes to memory and thinking 🔹 The impact on everyday life 🔹 What support would be most helpful At the end of the survey, you can also choose to take part in a one-hour follow-up interview. 🎁 Participants will receive a gift card as a thank you for their time. Interview participants will receive an additional gift card. 🔬 About the research This Griffith University study is investigating cancer-related cognitive impairment, sometimes referred to as "brain fog", including changes to memory, concentration and thinking that can occur during or after cancer treatment. The research has been approved by the Griffith University Human Research Ethics Committee (GU Ref No: 2025/816). ❓Questions? Research Team Associate Professor Kerryn Pike 📧 [email protected]📢 Share Your Experience: Emotional Wellbeing After Breast Cancer Treatment
Researchers from Federation University Australia are seeking Australian women who have completed active breast cancer treatment to take part in a short anonymous survey exploring: 💗 Self-compassion (being kind to yourself) 💗 Fear of cancer recurrence 💗 Emotional wellbeing after treatment By sharing your experiences, you'll help researchers better understand the emotional and psychological impacts of breast cancer and contribute to improving future support for those affected. You may be eligible if you: ✅ Are an Australian woman aged 18 or older ✅ Have completed active breast cancer treatment (surgery, chemotherapy and/or radiation therapy) ✅ Can complete a survey in English Please note: ongoing hormone therapy or medication after active treatment does not exclude you from participating. 📝 What's involved? • Anonymous online survey • Takes approximately 10-15 minutes • No identifying information is collected Complete the survey here Whether you finished treatment recently or many years ago, your experiences are valuable. Study Title: Self-compassion, Fear of Cancer Recurrence and Emotional Wellbeing in Breast Cancer After Active Treatment For more information, contact: Dr Bianca Denny 📧 [email protected] 📞 0411 221 847 Thank you for considering this opportunity to help shape future breast cancer support and care. 💗📢 Research Opportunity: Share Your Views on Online Exercise Programs for People Affected by Cancer
Researchers from the University of Melbourne are inviting people living with cancer actively or post-treatment to take part in a study exploring how remotely delivered, group-based exercise programs can be made more engaging, supportive and accessible. 🤸♀️Exercise can play an important role in cancer care, helping to improve physical fitness, reduce treatment-related side effects such as fatigue, and support emotional wellbeing. While telehealth exercise programs can make it easier to access professional support, researchers are keen to better understand what helps people feel connected, motivated and supported when participating online. Who can take part? You may be eligible if you: ✅ Are aged 18 years or older ✅ Have been diagnosed with cancer at any time ✅ Are able to complete a survey online (or by telephone with research assistant support if needed) The survey is available in English, Mandarin and Vietnamese, with telephone support available in these languages. What's involved? Participants will be asked to complete a survey (approximately 25 minutes) that explores: Views on online group exercise programs Factors that would encourage participation Strategies that could improve support, engagement and personalisation Experiences with telehealth Information about cancer diagnosis, treatment and demographics Some questions may be personal, and you are welcome to skip any questions you do not wish to answer. How will your feedback help? The findings will help exercise professionals and health services design future telehealth exercise programs that better meet the needs of people affected by cancer. 🔗Participate in the survey here This study has been approved by the University of Melbourne Human Research Ethics Committee (Reference No. 2026-36117-82542-4). As always, participation is entirely voluntary. If this research is of interest to you, we'd love for you to consider sharing your experience and perspective. 💕 Thank you for helping to improve support and care for people affected by cancer.📢Have You Taken Endocrine Therapy After Breast Cancer Surgery? We'd Love to Hear From You
Have you been diagnosed with Stage 2 to 3 HER2-negative, HR-positive breast cancer and received treatment after surgery? BCNA is partnering with Inherited Cancers Australia (ICA), So Brave, healthcare professionals, and independent healthcare research agency Elbow Insight and Strategy to better understand the experiences of people diagnosed with this type of breast cancer. The findings will help improve understanding of the challenges, needs, and experiences of people affected by breast cancer, and help inform future support for our community. 🌸 Who can participate? 👇 You may be eligible if you: ✅ Are aged 18 years or older ✅ Have been diagnosed with Stage 2 to 3 HER2-negative, HR-positive breast cancer ✅ Are currently taking, or have previously taken, treatment after breast cancer surgery, including hormone-blocking (endocrine) therapy What's involved? 📝 The study starts with a few short screening questions to confirm eligibility. If eligible, you'll be invited to: ✨ Complete a 25-minute online survey ✨ Optionally register your interest in a second phase involving a 7-day online diary (approximately 45 minutes in total) As a thank you for their time, participants will receive a payment for participating. 💕 👉 Interested in participating? Register for the Research Study Here Thank you for helping us better understand and support people affected by breast cancer. 💖
