Post mastectomy shoulder pain
Hi Ladies, I had mastectomy, reconstruction, recurrence, removal of implant(another mastectomy) and finished chemo and radiation on April 2020. My question is i keep on getting this bad shoulder and neck stiffness and pain on the right side where my surgery was, I was wondering if anyone experienced the same. I called the breast clinic physio and she is no help, didn’t even bother to ask me to come in to have a look. Also if I have any issues am I meant to follow with them or a private physiotherapist? would love to hear from you beauties. much appreciated.
Happening so quickly
Hi,im new to all of this,everything has just been a whirlwind,in the space of 3 month,found a lump,had tests which confirmed cancer,had right breast mastectomy and fitted with expander Thursday 19/7 home Sat 21/7 with drains.drains look clogged up to me but community nurse seemed to think they are fine and I've developed a weird sunken space in my non boob in the last few hours..sorry for the long post just a little worried,has anyone had the same experience??
Diep surgery recovery
hi everyone I’m having double mastectomy and diep reconstruction in about 3 weeks and I was wondering if anyone could give some insight into recovery and how they managed once at home from hospital ? Are you able to move around the house yourself and do small things like make a sandwich ? They have said to expect to be in hospital for 7 nights Thanks!!
How long between mastectomy and reconstruction
Hi, new to this online group and after some advice please. I was diagnosed with stage 2 IDC HER 2 positive. End of March this year. Have just finished 4 th round of AC dense chemo and start paclitaxel and hercepin in 2 weeks then mastectomy and radiotherapy . When I asked the surgeon about how long do I have to wait for reconstruction she said 2 years. I was really shocked it seems so long. What is other people’s experience?? Thanks
Breast Implants following major double mastectomy and lymph nodes removal
I am having surgery in May for breast implants and am anxious of what to expect. Though I have been told by my surgeon it will be 2 operations and very painful I am still going through with it. My double mastectomy was in October 2014 followed by a second operation in November 2014 to remove cancerous lymph nodes on my left side not originally found. Went through chemo, allergies to the drugs, etc etc. If there is anyone who might have some insight or advice on this operation I would appreciate it. Judy
Decision time: bilateral mastectomy with recon OR radiotherapy
Hello wonderful ladies. What would you (or did you) do if you were me? Cancer details: triple negative, grade 3 tumour 9mm, lumpectomy with clear margins, three nodes removed and all tested clear, BRCA negative. I'm 33 years old. 6 rounds of chemotherapy - FEC and Docetaxel. When my genetic test results came back I thought it would be straightforward pathway - onto radiotherapy after chemo is completed. But my radiation oncologist surprised me by saying if she was sitting in my chair, she would have a bilateral mastectomy now as radiotherapy will only be beneficial to one breast. She'd want to be doing everything she could to ensure the cancer doesn't reappear in the other breast too. Because I'm so young. I know this is ultimately a personal decision but I'm putting the question out there to get as many thoughts as possible before I inevitably see what my gut tells me to do. I'm also seeing my surgeon again soon to get his thoughts. I appreciate you taking the time to respond. Libby
Choosing breast recon members from Perth can you help Leem28, Also pop in and see Mels Pics :)
@Leem28 could do with some support re plastic surgeons in Perth. Also a huge thanks to the lovely @melclarity for posting her pictures post her mastectomy and DIEP surgery. I know many of you have been following Mel's progress and she has very kindly shared her photo's with us. This is a great way to give you an idea of what this type of surgery will look like in the early stages. I have added the pictures to our photo stories announcement. It is because of the generosity of ladies like Mel sharing their pictures that we have this great resource. Thanks Melinda :) Pop on over if you haven't been for a while and see if you can offer words of encouragement. Paula :)
Double Mastectomy: to reconstruct or not?
Hi Everyone, I went through surgery last September + re-excision on October for Stage 1 bilateral disease. Lots of DCIS with a very small invasive component. I have avoided Chemo/Radio for the time being. I lost both nipples. I opted for immediate recon, but during surgery surgeon chose to put in tissue expanders. I haven't had the full recon yet and now I've got doubts about going ahead with the full recon. Part of me just wants to take the expanders out and call it a day. I had large breasts (12DD). At the time, recon seemed to be the right decision because it was all so fast. Opting for the double op seemed like a big enough decision. But the tissue expanders are pretty weird, being nipple free is too. Also, there's no sensation of course. So it's purely for the lumps. Now I'm at this point, I don't know how much I care about the cosmetic. I am really flip flopping all over the place. One day I think, yeah, at least I can still play with being a busty babe and then other days I think how neat it would be to be a flat top and just free of the extra weight! I'm 34. Married. And, you know, I am a bit vain. I like to look good. I feel as though I have a second chance at life coming through with my diagnosis, so I working hard at living well and appreciating every day. But at the same time, I can be vain and also enjoy life with boobs or not, right? I just don't know! It is a weird space to be in. I am seeking stories from other women who've had mastectomy surgery (single/double, recon/not). And, in particular, anyone who's been through a bit of a struggle with the decision. I know it is my decision at the end of the day, but I am just curious to hear stories. Thanks all and take care, Jen
