Research study - Share your views about how cancer treatment and care can be improved
If you've been diagnosed with breast or any other cancer and want to have a say about how cancer care can be improved, you are invited to share your views about how cancer treatment can be improved via an online survey being conducted by All.Can. All.Can is an international initiative which has been set up to identify common issues people affected by cancer experience around the world and identify how cancer care can be improved. This survey is part of a global research project to better understand people's experiences of cancer treatment, what barriers exist which are preventing people from receiving the best cancer treatment and care and what improvements can be made. The survey takes about 10-40 minutes to complete. You can find out more information about the research project and participate in the online survey here: http://www.myonlinesurvey.co.uk/allcan_ENAU/. Thanks very much for taking the time to consider this opportunity!471ViewsSign in to react to this post13Comments
🌟Join the LeanOn Lymphoedema Self-Management Study
About this opportunity Have you been diagnosed with breast cancer and are currently living with, or at risk of developing, breast cancer-related lymphoedema? Researchers from Flinders University are inviting people to participate in the LeanOn Lymphoedema Self-Management Study, which is evaluating a new online platform designed to support self-care and improve quality of life for people affected by lymphoedema. Your participation will help researchers understand how well the platform supports people in managing their symptoms and navigating their lymphoedema care. What you'll do: If you choose to take part, you will: Access the LeanOn online platform. Explore evidence-based information and self-care resources. Receive a personalised care plan. Use tools to monitor symptoms and track your progress. Complete short surveys at the beginning of the study, and again at 6 and 12 weeks. Optionally participate in a feedback interview. Who can take part? 👥 You may be eligible if you: Have a history of breast cancer. Are currently living with, or at risk of developing, breast cancer-related lymphoedema. Are aged 18 years or older. Can read and understand English. Why get involved? By participating, you'll have the opportunity to: Access a new self-management support platform. Build confidence in managing your lymphoedema. Help improve resources and support available to people affected by breast cancer-related lymphoedema. Contribute to important research that may benefit others in the future. Interested? 📝 To learn more, read the Participant Information Sheet and register your interest here: If you have any questions, please contact the research team: Navaz Naghavi – [email protected] | 0433 805 014 Katia Ferrar – [email protected] | 0411 234 885ViewsSign in to react to this postComments
Share your views: Information and support needs of people following treatment of breast cancer
Hi everyone, Erana from BCNA here! I’d like to invite you to participate in a research study opportunity led by James Cook University. Please see details below. If you can't access the QR code you can also follow this link Qualtrics Survey | Qualtrics Experience Management. If you have any questions or concerns regarding this research, please contact the research lead Tracey Ahern at [email protected] This study has been approved by the James Cook University Australia Human Research Ethics Committee (#H9326).ViewsSign in to react to this postComments
Groundbreaking genomic test could spare millions of breast cancer patients chemotherapy
I wonder if there were any members ON the Optima Trial? The Optima trial, led by University College London, followed more than 4,000 patients with newly diagnosed breast cancer in the UK, Norway, Sweden, Australia, New Zealand and Thailand. It found that those with a low score on the ge https://www.theguardian.com/society/2026/may/29/groundbreaking-genomic-test-spare-breast-cancer-patients-chemotherapy-hormone-therapy Karen Bonham was part of successful trial for genomic test that determines which women with breast cancer can safely avoid chemotherapy https://www.theguardian.com/society/2026/may/29/breast-cancer-chemotherapy-genomic-test-case-studyViewsSign in to react to this postCommentsResearch Study - Western Sydney University (Free yoga)
Hello members, Our BCNA Policy and Advocacy team have provided the current study information that may be of interest to some of our members: Researchers at Western Sydney University are undertaking a 6-week clinical trial exploring the impact of either group yoga classes or individual yoga sessions for improving mental health in people diagnosed with cancer. Who can participate? You may be eligible to participate if you - Have been diagnosed with either breast cancer or gynaecological cancer (ovarian, uterine, cervical, etc) in the last 5 years - Are not currently receiving chemotherapy or radiotherapy; however, you may be receiving stable hormone-blocking therapy, targeted therapy or immunotherapy - Have increased symptoms of depression and/or anxiety - Have adequate general health to be involved in a yoga program - Have reliable access to the internet and a device with a web camera - Are aged 18 or older What’s involved? To register your interest to participate in this clinical trial, you will complete and submit an anonymous online survey. The purpose of the survey is to assess your eligibility to participate in this clinical trial. Participants who meet the preliminary criteria to participate will be asked to submit their contact information, which will be used by a clinical trial officer to arrange a teleconferencing screening call. If you are eligible, you will be randomly allocated to either group yoga classes or individual yoga sessions. Group yoga classes if you are allocated to group yoga sessions you will be required to attend six (6) yoga classes with a qualified yoga teacher online via the Zoom platform over a 6-week period. You will also be asked to do additional yoga practice between classes, and record your practice weekly. Individual yoga sessions If you are allocated to this group you will be required to attend six (6) one-on-one yoga sessions with a qualified yoga teacher online over the Zoom platform over a 6-week period. You will also be asked to do additional yoga practice between sessions, and record your practice weekly. During the program, all participants will complete a short (10 min) weekly survey and 3 sets of questionnaire and assessment measures (approximately 30 min each) as well as having occasional 5–10 min phone calls with a research team member. Interested in participating in this study? To indicate your interest in participating in the study, please visit NICM HRI | Online yoga and mental health in cancer study or contact Maria Gonzalez NICM Health Research Institute, Study Chief Investigator - PhD Candidate, by emailing [email protected] Complementary therapies can improve your physical and emotional wellbeing. They can also help you to manage some of the side effects of breast cancer treatments, such as anxiety, pain and fatigue. Yoga is a form of complimentary therapy. While many complementary therapies can be very helpful, it is a good idea to talk to a member of your medical team before starting anything new. This will help you to prevent any possible effects that the therapy may have on your breast cancer treatments or general health. You can check out BCNA's website for more information regarding complimentary therapies https://www.bcna.org.au/health-wellbeing/complementary-and-alternative-medicines-and-therapies/complementary-therapies/ViewsSign in to react to this postComments
New study aimed at relieving hot flushes
New study aimed at relieving hot flushes and night sweats experienced by women after breast cancer Researchers in the Monash Women’s Health Research Program are conducting a study to evaluate a potential new treatment aimed at relieving hot flushes and night sweats in women diagnosed with breast cancer who are taking hormone blocking therapy (either tamoxifen or an aromatase inhibitor). While clinical trials have found hormone blocking therapy can significantly reduce the risk of breast cancer coming back (recurring), many women experience menopausal-like symptoms when taking hormone-blocking therapy. While these side effects are mild for many women or lessen over time, some women experience significant symptoms which can be difficult to cope with. The study will determine whether QUE 122 (a small molecule which was found to lessen hot flushes and night sweats in an earlier study) is effective in reducing night sweats and hot flushes in women affected by breast cancer being treated with hormone blocking therapy. You may be eligible to participate if you are: · Aged 18 to 70 years Have been taking tamoxifen or an aromatase inhibitor (i.e. anastrozole (Arimidex), letrozole (Femara) or exemestane (Aromasin) for at least 1 month · Are experiencing 7 or more hot flushes/night sweats each day. This study is taking place at sites in Melbourne, Sydney, Adelaide and Perth. If you are interested in participating or would like further information, please email [email protected] call Corallee on +61 3 9903 0836. More information about the study is also available on the Women’s Health Research Program’s website. For information about hormone blocking therapy, including how the drugs work, why they are beneficial and tips / strategies to help manage side effects, download BCNA’s Hormone therapy and breast cancer booklet on www.bcna.org.auViewsSign in to react to this postCommentsTargeted clinical trial for patients with lymphoedema related to breast cancer surgery
Hi members, The below clinical trial conducted by LeapCure may be of interest to some of you. If you have breast cancer surgery related lymphoedema following a dissection or biopsy procedure, you could be eligible to join a clinical trial that is enrolling nearby. Initial eligibility includes lymphoedema patients who have had surgery for their breast cancer at least 6 months ago and diagnosed with lymphoedema within the past 4 years. The following pre-screener will help you determine your suitability, match you to a nearby trial site, and enter you on to a list for the LeapCure team to give you a call back. To help you determine if you are eligible for the study, LeapCure, who are administering the recruitment of this study in Australia, have developed a survey found at the link below. By taking this survey, you are providing your consent (agreement) for LeapCure to collect and store your survey answers on an overseas server (large computer) that is compliant with the Health Insurance Portability and Accountability Act (USA). Here is the pre-screening link: https://research.leapcure.com/studies/bclymph?locale=en-AU&utm_source=BCNA&utm_medium=mixed&utm_campaign=060921Pv22&utm_cat=PAGNWAU&utm_study=bclymphViewsSign in to react to this postCommentsSHINE (The Sleep Health in Breast Cancer Study)
Hi Members, BCNA's Policy & Advocacy Team recently shared the below study which may be of some interest to you: SHINE (The Sleep Health in Breast Cancer Study-Evaluating the impact on psychological wellbeing and medication adherence) Researchers at the University of Strathclyde Sleep Research Unit in Glasgow (UK) are running a study to better understand physical and emotional wellbeing amongst people diagnosed with breast cancer. More specifically, the study aims to: · learn about wellbeing of people diagnosed with breast cancer · identify potential side effects of cancer treatment · support the development of future interventions, for people diagnosed with breast cancer who need to take hormone therapy. This project has been approved by the Strathclyde University ethics board. Who can participate? You can participate in this study if you: · are aged 16 years or older · have ever been diagnosed with breast cancer · have internet access. What does the study involve? The study involves taking part in an anonymous online survey which takes between 10 to 15 minutes to complete. The survey includes: · demographic questions · questions about breast cancer diagnosis · type of treatment · aspects of physical and mental health, and · hormone therapy adherence (where appropriate) How do I take part? If you are interested in participating in this survey, please visit here. If you would like further information, please contact [email protected]. This survey closes on April 31, 2022. By completing this survey you are providing your consent (agreement) for the University of Strathclyde (UK) to collect and store your survey answers on Qualtrics overseas server (large computer).ViewsSign in to react to this postComments
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