🌟Join the LeanOn Lymphoedema Self-Management Study
About this opportunity Have you been diagnosed with breast cancer and are currently living with, or at risk of developing, breast cancer-related lymphoedema? Researchers from Flinders University are inviting people to participate in the LeanOn Lymphoedema Self-Management Study, which is evaluating a new online platform designed to support self-care and improve quality of life for people affected by lymphoedema. Your participation will help researchers understand how well the platform supports people in managing their symptoms and navigating their lymphoedema care. What you'll do: If you choose to take part, you will: Access the LeanOn online platform. Explore evidence-based information and self-care resources. Receive a personalised care plan. Use tools to monitor symptoms and track your progress. Complete short surveys at the beginning of the study, and again at 6 and 12 weeks. Optionally participate in a feedback interview. Who can take part? 👥 You may be eligible if you: Have a history of breast cancer. Are currently living with, or at risk of developing, breast cancer-related lymphoedema. Are aged 18 years or older. Can read and understand English. Why get involved? By participating, you'll have the opportunity to: Access a new self-management support platform. Build confidence in managing your lymphoedema. Help improve resources and support available to people affected by breast cancer-related lymphoedema. Contribute to important research that may benefit others in the future. Interested? 📝 To learn more, read the Participant Information Sheet and register your interest here: If you have any questions, please contact the research team: Navaz Naghavi – [email protected] | 0433 805 014 Katia Ferrar – [email protected] | 0411 234 88542ViewsSign in to react to this post0Comments
How AMAZING if HPV vaccine reduces future BC diagnoses!
Professor James Lawson from University of NSW (who has been researching causes of Breast Cancer for 30 years) believes that some BCs may even be caused by the HPV virus - and hopes to identify whether women who contract HPV are then at a higher risk of developing breast cancer later on in life! For over 30 years Professor James Lawson and his local and international colleagues have searched for the causes of breast cancer. By 2021 they had found some of the answers - you can read about his research here: https://onlinenetwork.bcna.org.au/discussion/25105/review-new-book-called-catching-breast-cancer-by-james-lawson-eminent-breast-cancer-researcher#latest (HPV has already been proven to cause Cervical Cancer - with a free vaccination [Gardasil ® 9] now available to young teenage girls and others up to age 26!) https://www.health.gov.au/topics/immunisation/vaccines/hpv-human-papillomavirus-vaccine With an 80% vaccination rate currently amongst women in Australia - data on BC occurrence in the next 20-50 years 'should fall' if this is the case! Only time will tell. https://oncologynews.com.au/latest-news/hpv-may-lead-to-breast-cancer/ Remember - It is not 'that' long since Stomach Ulcers (caused by Heliobactor Pylori bacteria, not stress or poor diet as once thought), are now totally curable when diagnosed, being treated with a series of specific antibiotics. Following on from 'THAT' theory - there is a similar theory re the cause of dementia too. Interesting - one researcher thinks Dementia may be caused by an autoimmune disease! There has long been the theory that many diseases may be caused by autoimmune/bacterial infections .... rather than just by bad luck. (The association between immune response against mycobacterial infections and autoimmune disease has long been suspected, including systemic lupus erythematosus (SLE), Type 1 diabetes mellitus, multiple sclerosis (MS), inflammatory bowel disease (IBD), microscopic polyangiitis, and sarcoidosis (SA). Relatively recently Stiff-Person Syndrome, felt to be autoimmune, and which causes rigidity and spasms in the trunk and limbs, has been added to this list as an autoimmune and neurological disorder.) https://www.j-alz.com/editors-blog/posts/does-alzheimers-even-come-close-being-autoimmune-disease (This pretty well mimics research from an Australian Doctor, Professor James Lawson (main article) who believes that some forms of Breast Cancer may be 'caught' from a bacterial infection .... ) How AMAZING if a vaccine could be developed to prevent these diseases from even starting (just as Gardisil9 now prevents Cervical Cancer!) How many other cancers are there, out there, that 'may' be prevented by a vaccine?ViewsSign in to react to this postCommentsUK approves new BC drug after Serena-6 Phase 111 Trial
Australia often follows other countries with BC trials & drug approvals .... let's hope this trial happens in Aussie, too. The Institute of Cancer Research, London, strongly welcomes the news that camizestrant, a powerful new drug for advanced breast cancer that can be used to treat emerging tumours, has been approved by the medicines regulator, the MHRA. The drug has been approved to be used in combination with a CDK4/6 inhibitor (palbociclib, ribociclib or abemaciclib) for the treatment of ER-positive, HER2-negative, locally advanced or metastatic breast cancer. The approval is based on results from the SERENA-6 Phase III trial - funded by AstraZeneca and co-led by researchers at The Institute of Cancer Research, London, The Royal Marsden NHS Foundation Trust and Institut Curie, Paris – which were published in the New England Journal of Medicine. You can read more about it here: https://www.icr.ac.uk/about-us/icr-news/detail/icr-welcomes-mhra-approval-of-breast-cancer-drug-that-targets-tumours-before-they-have-a-chance-to-grow Details on current (and past) Breast Cancer Trials in Australia can be checked here: http://www.breastcancertrials.org.auViewsSign in to react to this postCommentsGroundbreaking genomic test could spare millions of breast cancer patients chemotherapy
I wonder if there were any members ON the Optima Trial? The Optima trial, led by University College London, followed more than 4,000 patients with newly diagnosed breast cancer in the UK, Norway, Sweden, Australia, New Zealand and Thailand. It found that those with a low score on the ge https://www.theguardian.com/society/2026/may/29/groundbreaking-genomic-test-spare-breast-cancer-patients-chemotherapy-hormone-therapy Karen Bonham was part of successful trial for genomic test that determines which women with breast cancer can safely avoid chemotherapy https://www.theguardian.com/society/2026/may/29/breast-cancer-chemotherapy-genomic-test-case-studyViewsSign in to react to this postComments
Share your views: Artistic tattooing of breast-cancer mastectomy scars
Hi everyone! Following up on my previous post, I’d like to invite you to participate in a PhD research study being conducted by Tina-Maree Newlan of Charles Sturt University on artistic tattooing of breast-cancer mastectomy scars. The study aims to investigate the experiences of women who have had breast cancer mastectomy surgery and their experiences with making choices and decisions to decoratively tattoo mastectomy scars and what do those experiences mean for them. This request has been reviewed and approved by BCNA, and the project has been approved by Charles Sturt University Human Research Ethics Committee (Protocol number H24311). You are eligible to participate in this research study if you: are a women aged 18 or over have had an early breast cancer diagnosis, breast cancer mastectomy surgery and completed, or are in the process of completing, professional decorative artistic tattooing of mastectomy scarring Would like to participate in an interview and are English speaking sufficient to participate in an interview What does the study involve? Eligible participants would take part in an initial 60-minute interview (via Zoom or face to face, depending on geographical location relative to the Gold Coast) and then a subsequent second 30-minute interview around two months later. How do I take part? If you are interested in participating in this study or have any questions, please contact the researcher, Tina-Maree Newlan at [email protected]ViewsSign in to react to this postCommentsShare your views: Information and support needs of people following treatment of breast cancer
Hi everyone, Erana from BCNA here! I’d like to invite you to participate in a research study opportunity led by James Cook University. Please see details below. If you can't access the QR code you can also follow this link Qualtrics Survey | Qualtrics Experience Management. If you have any questions or concerns regarding this research, please contact the research lead Tracey Ahern at [email protected] This study has been approved by the James Cook University Australia Human Research Ethics Committee (#H9326).ViewsSign in to react to this postComments
ER+ HER- | Optima Study
Hi everyone I've just had a very interesting meeting with my oncologist - first appointment post surgery. Fortunately, I'm not a candidate for chemo (utter relief) so we didn't discuss this in any detail, but as we were talking about whether I should get a genomic test done or not, he mentioned that there was a new study about to take place - the Optima Study. From what I gathered from him, it'll offer a Prosigna (I think) test as part of the trial, which would obviously be funded (perhaps 100% - not sure) by the study. I think it'll be for people who are about to have surgery or who have recently had surgery - not sure though. I don't know anything further than that, and I couldn't find anything on any Australian sites about it, but there is some info on UK sites as it looks like the trial is being done there as well. Hope this helps someone - and saves someone a few dollars! Also hope this is appropriate to post!ViewsSign in to react to this postComments
Acupuncture study at Chris O’Brien Lifehouse
For ex-patients who have been treated for breast cancer at Chris O’Brien Lifehouse in Sydney; they are recruiting people who completed the cancer treatment but still experience pain, fatigue , sleep disturbance and/or numbness / tingling to participate in an acupuncture study that will run for 6 weeks from mid August to September. Free of charge. At the Living Room (for info [email protected])ViewsSign in to react to this postComments
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