DCIS Diagnosis (Breast Cancer 8yrs ago)
Moderator moved @cancer_warrior62 post from 'Activity' section to dedicated post in 'Newly Diagnosed': cancer_warrior62 Don’t know if this is the right place for this but I’m struggling each day as it gets closer to my surgery date. I had breast cancer 8 years ago, stage 2 her2 positive had a lumpectomy, did chemo- radiation- Herceptin and 5 years on Tamoxifen, then end of May this year at my routine mammogram they found I had cancer again in the same breast this time it’s DCIS but next week I’m booked in for a Double Mastectomy. It’s hit me harder this time round and I’m crying at the slightest thing even though I’m trying to stay as positive as possible and also joking around with family to lighten the mood about it but anything could trigger me off. I’m always wondering what I’ll look like after as I’m not going to do a reconstruction. I may later down the track in a few years depending how I feel and it’s too much for me to go through. Any advice would be appreciated.
So its back, breast cancer 2.0 - thanks so much
so after a fabulous dry July Campine raising funds, I got my results from the double biopsy today (this morning) - from an earlier ultra sound after they the new medical team picked up some extra bumps they felt from a physical exam earlier on, post lumpectomy in Jan where I was told all gone, clear margins , nothing in the lymph nodes all clear there too. HAHAHA nope lets try a different result result, a false negative was given at that time back in Jan 2023, as my new medical team have now confirmed that there's still cancer sitting in the lymph nodes from the 1st time - so where to now, another pet ct scan, another MRI, back to theatre to removal these lymph nodes and coming home with a drain, This bit is new to me, as 1st time around I didn't have a drain. What can I expect with a drain? Can I drive? Can I wash my hair? I know that may sound silly, like clearly going back to swimming will be out for a bit and yoga class, Can the bag sit in the side strap of ones bra? Thankfully I'm keeping my breast ( as this point in time) last op was a lumpectomy so that was a plus, I know others don't get that choice. Just a bit mad, like here we go again, I was 6 months post breast cancer surgery and on the home stretch to my 1st year of being cancer free to my mammogram of 1 year post breast cancer, but nope, do not go pass go, do not collect $200, no get out of jail card for you!
Here I go again!
Hi there. Newbie to this online group. I had my first diagnosis in 2006 at 46. A grade 3 ductal cancer for which I had a lumpectomy, radiation and hormone blockers. I had Tamoxifen until developed uterine polyps (3yrs) and then switched to Arimidex (another 5 yrs). My maternal aunt had BC first in her mid 30’s and then late 50’s before she died of mets in her mid 60’s. I’d had annual mammograms since 40 because of my family history but have no genetic markers. All going well until my last mammogram which showed another BC in the same breast. This time a lobular cancer. Luckily very small and no spread but still devastating. I’ve had another lumpectomy- because I would not speak the M word! I’m now recovering from that and have started hormone blockers - again. I can’t have radiation again in the same side - which I’m thankful for - and I don’t need chemo - again very grateful. However I feel my surgeon would prefer me to have had a mastectomy ( that word I will not speak of!). I see home again in a few months and I’m thinking this is what he will recommend to keep me safe. At least I’ve had time to get my head around this and find out more about it - I just didn’t feel I could make that decision in the days between my biopsy results and surgery. Anyway I’ve been reading lots of posts here and finding out more each day. I have a bit more knowledge under my belt from my previous experience and in some ways that makes it worse! I worry about the impact of hormone blockers on my long term health and my ability to keep fit and keep the weight under control. And I’m concerned about a reconstruction and how long the recovery will be. One of the worst things about the past few weeks is that we had to cancel a much anticipated overseas trip. We haven’t travelled since 2019 so we are keen to get back travelling but not to be! I keep saying to our kids I’m not sure how many good travel years we have left and there’s so much still to see! ��🤣
Two different types of breast cancer
In 2019 I was diagnosed with Triple negative breast cancer in the left breast and had a masectomy and chemo. In 2022 I was diagnosed with hormonal breast cancer in the right breast and had the second masectomy. I have been on Tomoxifin for 5 months but stopped taking it after speaking with my Oncologist. I had so many side effects. I am post menopausal i would love to hear from others who have had the two types of cancer. Also from others who encountered Tomoxifin side effects such as nausea, dizziness and depression.
TNBC & INVASIVE PLEOMORPHIC LOBULAR CARCINOMA
Hi, Back again after 6 years clear. TNBC 2013/2014 right breast. Surgery, chemo & rads. Rediagnosed early Sept...surgery 11th sept-results say another cancer found. Surgery again 18th -Now TNBC & Invasive Pleomorphic Lobular Carcinoma & DCIS in the left breast. Have any of you ladies been diagnosed with 2 types of carcinomas at the same time?Living in fear
I was diagnosed earlier this year, i had surgery and just finished chemo now on radiation. Doctors said after treatment the chance of reccurrence is low but since day one im living in fear of the cancer coming back and i dont know how to cope sometimes i just sit and cry when no one is at home.
It’s back for the third time 💔
Hi ladies, Some of you might remember me. I had DCIs for the first time in 2013 at the age of 22 years old, had a lumpectomy only not further treatment which is something I questioned back then and now still although I was brca 2 positive. September 2017 I had recurrence DCIs again in the same breast my only option was mastectomy only no other treatment needed because my margins were clear. I felt a tiny bump straight after my reconstruction, hoped it will show in my MRI it didn’t. Pointed it out to my doctor had US and they assured me it was a scar tissue, had a follow up 3 months later and it turns out it was a recurrence. Now here I am again Sept 2019 less than 2 years from my mastectomy going through IDC recurrence. Is it just really bad luck or because of my high risk I should had a lot more than just surgeries?! This is exhausting. Had my CT and bone scan and thankfully everything came all good expect for my ovaries being larger than normal. Meant to have pelvic US but because am not sexually active and never had anything going up there the doctor didn’t feel comfortable doing it neither did I. The thought of doing it freak me out and the thought of not doing it also does, because am not sure if am putting myself at more risk by doing! Surgery is also next week and I will be flat on one side 😢 as implant will have to come out and more skin removed. I’m hoping won’t need chemo but doubting it. any advise will be much appreciated 💕
Plastic Surgeon today...was cool and calm...now petrified and teary...
Hi All!!! Well, I have to say I'm pretty upbeat considering :p generally....however being 11 months post chemo and constant appointments and feeling improved everyday. I have my Plastic Surgeon appointment this afternoon...and when I got up, I found myself fall into a puddle of tears, inconsolable. This is the end part of my journey to have a Mastectomy/reconstruction and found myself petrified, sad, just really hurt I guess that after the journey I have to face all this now eventhough its preventative and the last thing after 5yrs of having it twice. I know I have to do it, but I feel so upset about losing my breast, obviously there are so many reasons. The worst thing I find about today is...really wanting my Mum!! Stupid right??? Im 48yo but I lost her suddently 7yrs ago and its been a massive hole, and my Breast Cancer twice and she hasnt been here has been quietly upsetting for me. Im a get on with it type of girl...and I did...but the quiet moments right now just feel such a want and need for her...Uuugh! Im sure I'll feel better after the appointment. The past 5yrs Ive done all appointments alone...except for a couple. Yes, put on the big girl pants??? hmmm and get on with it!! Uuuugh OK!!!! sorry thats my vent on my vulnerability of the day!!! Hugs everyone! Melinda xo
