Radiotherapy (5 weeks)
If you haven't been through it yet and are worried, please don't. It sounds much worse than it is. The receptionists, nurses and radiographers are really lovely. It doesn't hurt. It doesn't take long. I was in and out within an hour or less. My boob was a bit itchy throughout the treatment and became redder as the treatment progressed. But it wasn't sore. I felt tired for about 30 minutes after the treatment. The first week after finishing radiotherapy, you could clearly see the area and a clear line where the radio was targeted, it was a bit bumpy but not blisters. From the beginning I put sorbelene on twice a day until my friend told me about Tallow cream, I alternated them at first but after a while just used tallow because I found the sorbelene made me more itchy. Second week after finishing; there where a few changes to my skin. It was the same as the after ejects of sun burn without feeling the burn. My skin turned a darker brown, then peeled back to a nice tan colour. I've had quite a few headaches since finishing radiotherapy but I get migraines anyway so it could just be normal for me. I wish you all the best throughout your journey with breast cancer. I hope I have helped to take some worry out of the whole experience. Think happy thoughts, love Becky
Are you experiencing pain following treatment?
Register for the Persistent pain, addressing quality of life webcast on Wednesday 7 February, 7pm - 8.15pm AEDT. Register now (and if you miss it, we will email you the recording) This webcast will address types of persistent pain associated with early breast cancer treatments, strategies to manage pain and further resources and support that may be available to you. We will be joined by three experts on the night, Professor Paul Glare, Pain Medicine Specialist, Dr Charlotte Tottman, Clinical Psychologist and Naveena Nekkalapudi, BCNA Consumer Representative. Naveena will be sharing her experiences of persistent body pain and why quality of life is paramount to her. You will have the opportunity to put forward your questions when you register or during the event. For more information about the webcast and speakers, and to register, please visit https://www.bcna.org.au/event-directory/webcasts/persistent-pain-after-breast-cancer/ Please feel free to pop any questions below in the comments or get in touch with the events team via events@bcna.org.au. We look forward to seeing you there!Menopause - It's more than a hot flush! Recording available now
The recording of Menopause - It's more than a hot flush! webcast is now available here. We hope you find it both informative and enjoyable. Please feel free to share feedback, questions or thoughts below in the discussion. ---------------------------------------------------------------------------------------------------------------------------------------------------------- Ask the Expert: Menopause – It’s more than a hot flush! on Wednesday 6 December 2023. Many people experience changes to their sexual wellbeing associated with breast cancer treatment that can be caused by menopause or menopause-like symptoms. These can include vaginal dryness or discomfort, loss of libido (sex drive), changes to self-esteem and fatigue. Topics like these can often be difficult to discuss with your partner or health professional and it can be reassuring to know you are not alone. During this webcast, you will hear from Dr Tonia Mezzini, Sexual Health Physician based in Adelaide. Dr Mezzini is a leader in this area, with her level of expertise, she provides best practice and compassionate medical care. She presents in an open, informative and engaging way about sexual health and wellbeing. The webcast will be facilitated by BCNA Consumer Representative, Naveena Nekkalapudi. Following her diagnosis of triple negative breast cancer and the subsequent treatment, Naveena decided to re-evaluate her life and focus on matters that are important to her. She describes it as changing from being career ambitious to being life ambitious. Naveena is a consumer representative of BCNA, Cancer Council Victoria, Breast Cancer Trials, VCCC, and Walter and Eliza Hall Institute of Medical Research to name a few. This webcast will help to provide you with strategies to manage menopausal symptoms and discuss the support available to assist you with your sexual and emotional wellbeing.
Feeling a failure
Does anyone know if there is a phone consult available for breast cancer mental health? I had two lumpectomies and axillary clearance due to cancer in one node in early 2019. Then rads. Then hormone blockers. Started on Anastrozole, then Tamoxifen, then Exemestane, the Letrozole. All had such bad side effects I was taken off them. My liver went mad. I had such bad neuropathy I couldn’t walk or even hold a cup of tea. I had brain MRI to rule out MS. After being off them for a few days most of the neuropathy has gone except one spot on my leg. I have many other chronic conditions so pain is usual. However now I’m feeling better, I’m starting to regret not keeping on them. I know I can’t have them, but it’s making me feel like I should have persisted even if I needed help going to the loo and eating. Off them I can go walking, shopping, visiting, cooking, etc. I certainly am more healthy physically without them and I tell myself being active should help stop recurrence more than just sitting on the lounge or lying in bed. But my mind is telling me I failed. I should have tried harder. Has anyone else gone through this? I know I can get a mental health care plan but I really want to talk to someone who understands breast cancer, or any cancer actually. Any ideas?
Dealing with emotions
Hello ... I'm generally not a joiner in community forums of this type, but here I am ... I was diagnosed on December 23 last year (2018) and had surgery (lumpectomy and sentinel node biopsy) on January 15. I start radiotherapy on Feb 18. I've recovered physically really well: my surgeon is great, she's done a fabulous job and I don't think I'll have a scar - so probably no permanent physical reminder. I'm back at the gym and am walking regularly and I hope to start running again soon. So the physical side of things is okay. I have a wonderfully supportive husband and even though my grown up kids live in other states (as does my sister, my mother, my brother and every other family member plus my best friend) they're all really caring and fabulous. But my emotions are a bit all over the place at the moment. I don't want to think of this as a big deal, but for some reason it kinda feels like a big deal. Is it? Or am I just making something big out of something that's ordinary and routine and not really a big deal at all? Does anyone have any tips on how to deal with anxiety about returning to work? I've been working from home this week, but today decided to go in to work. I drove (for the first time since my surgery) and when I parked the car I felt really anxious. It took a while to get up the courage to go into the office and now I'm not super keen to go back tomorrow. Any advice is greatly appreciated.
Reaching out to anyone who has PMDD (Premenstrual Dysphoric Disorder) How has BC affected your PMDD?
Hi all. I am reaching out to anyone who has PMDD (Premenstrual Dysphoric Disorder) and who has BC. I suffer from this horrible disorder and was hoping to find a fellow PMDD sufferer with BC. How have treatments, chemo and hormone suppression affected your PMDD? Thanks <3
