ILC - info on screening & latest treatments ...
On September 12, 2023, the Lobular Breast Cancer Alliance (LBCA) hosted the live webinar “What’s New in Screening and Treatment for Lobular Breast Cancer.” The program, moderated by LBCA Executive Director Laurie Hutcheson, provided attendees with an opportunity to hear from three panelists who discussed the screening and treatment of invasive lobular carcinoma (ILC) from their specific clinical perspectives. https://lobularbreastcancer.org/webinar-whats-new-in-screening-and-treatment-for-lobular-breast-cancer/ It is well worth Bookmarking Lobular Breast Cancer Alliance (LBCA) website and signing up for their emails, as they have a lot of info being updated all the time.More info discovered about ILC & how it works & how to maybe stop it ....
For those with ILC ..... I haven't read it all & am unlikely to understand half of it - but if they are spending more time & money on one of the more nasty Breast Cancers, that is a good thing! https://actu.epfl.ch/news/scientists-model-a-peculiar-type-of-breast-cance-2/?fbclid=IwAR0vmmukbd7fni6Kd7D0KDNHdGVNrjG1si-CiEHtkk9m3bNGvVgMxa14ug8 if you are on Facebook you can follow comments here .... but you’ll need to join the ILC Sisters lobular cancer support evidence based group (as it is a private group.) https://m.facebook.com/story/graphql_permalink/?graphql_id=UzpfSTE2MzM4MjUwNzk6Vks6Mjg3MjgyOTgwNjMyMDc0Ng%3D%3D One comment from the FB page: Wow: "...when the researchers blocked all LOX enzymes, they saw a decrease in primary tumor growth, metastasis, and estrogen receptor signaling. “LOXL1 proved essential for in vivo tumor progression..." there are more links to chase on the post too.
Tamoxifen and headaches
Hi there. Im new here, so sorry of this has been covdred many times before.... I had a lumpectomy of a stage 2 Lobula tumor back on February 2I020. All went well. I the n had 19 radiation treatments. Tiring but OK. I started tamoxifen late April. The first month was a breeze. I was tarting to recover from the other treatments but feeling very positive. The second month has been one long headache. Some neck pain, but also pain behind my eyes and photo phobia. According to all practitioners photo phobia is not a recognized side effect of tamoxifen. I have been visiting a phyisio who has really helped with the headaches associated with neck pain. but the pain behind my eyes is pretty much constant, and the photo phobia is meaning I cant work.... I have had an MRI and ocular exam that have not identified any reason for headaches. A friend just suggested that my symptoms could be from migraine. Has any else been through this and had headaches/migraines from tamoxifen? I have finally manage to talk to my oncologist again today who suggested stopping taking tamoxifen for two weeks to see if my symptoms improve. Sorry for the long rant. Feeling very overwhelmed and lost...
Here we go again😢.
Haven't posted for a while as I have been recovering from a mastectomy and node clearance. They checked my other breast the day of the surgery and decided the lump they found in it was all ok, so not to worry. Well......weeks down the track and I have to go in for another mamo and then an ultrasound again. Couldnt find it on the ultrasound so had to do the biopsy using what I think was a 3D mamogram(very dignified lying on your stomach with you boob in a hole and they work from down there!). The sample came back positive.....could not believe this was happening again. It was another primary of lobular cancer😭. So chemo was postponed and I now have decided to have it off to match the other one on the 11th of january. I could have had a lumpectomy but am so scared it will come back again. It was also a small primary. The other side tumor was 10 cm! So much for mamograms, neither showed up. One good thing is the surgeon is pretty sure it wont be in the lymph nodes, good because I found that the worst bit to get over. They will be doing a sentinial biopsy before the op so lots of praying and fingers crossed its not in them. My positive side of all this is I will be able to choose the size of my breasts later, definately smaller than they were! I wont be lopsided anymore.....one big boob is really annoying! Flat chested for now is looking good!😉 I wish you all a very happy Christmas and a very healthy new year to us all! ⛄❄⛄❄⛄
Invasive Lobular Cancer
Thanks Sisters I self discovered my second tumour that was invasive lobular 25mm hiding in dense breast tissue. My monitoring facility didnt discover it, even though there was strong knowledge that dense tissue hides these tumours. If you can get a copy of your mammogram reports it should show a Bi Rads measurement of your breast density and when Ultrasound or MRI should be added. 3D Mammogram gives better definition. We should be told our Breast Density. I wasn't. My first tumour was Invasive ductal with lymph node metastases. The tumours are different.. Stay strong and Proactive..