BCNA calling out the government - failing to protect Australians from genetic discrimination
Breast Cancer Network Australia (BCNA) is calling out the government for failing to protect Australians from genetic discrimination while showcasing its new genomics framework. Cancer Australia launched the National Framework for Genomics in Cancer Control this morning, which aims to integrate genomics into routine cancer care, improving outcomes through personalised medicine. BCNA welcomes the framework but condemns the Australian Government’s failure to follow through on its commitment to legislate a full ban on genetic discrimination in life insurance, a critical reform to ensure all Australians can access genetic testing without fear of financial repercussions. “The Government cannot claim progress in genomics while failing to uphold the fundamental rights of those affected by breast cancer and other genetic conditions,” BCNA Director of Policy, Advocacy & Support Services Vicki Durston says. “If genomic medicine is the future, then protections against genetic discrimination must be part of that future. “No more excuses. There must be action before an election is called or Australians are at unacceptable risk.” BCNA calls on the Government to immediately prioritise its promise to introduce a full ban on genetic discrimination in life insurance, ensuring all Australians can access genomic testing without fear. Read full media release via link BCNA calls out government for failing to protect Australians from genetic discrimination while showcasing its new genomics framework (Media Release) Take action now! ✔️ Share this post to spread the word ✔️ Contact your local MP using the form link Email your MP about delays in banning genetic discrimination | DELAYS TO BANNING GENETIC DISCRIMINATION IN AUSTRALIA
Genetic Testing
Hi everyone not sure if there was already a group about gentic Testing so sorry if there is one. I am looking to get the genetic test done to see if I carry the gene. Just waiting for the paperwork to come. If anyone has had it done could you please tell me a little bit about it..Do they test for all sorts of cancers or just one...Hope its ok to start a new group. Sending hugs to you all.
Heredity Question
Hi Warriors, I am new here and do not have Breast Cancer. I have a lump, have had it mammogrammed for a few years now yearly. Each year at these mammograms, it does not show up on the mammogram but it does show up in the ultrasound.. each year they ask if I have a family history, I say no and they say "see you again in a year". (Once I did have it fine needle biopsied and had some anomalies but the testing never went further). This winter, on holidays to Canada, I spoke with an Aunt that said "did you get the information of our family breast cancer history?" I said "what, NO? I haven't heard there is history" well a long story short, my Dad's Mother did not have it.. but my Dad's Mother's SISTERs had breast cancer and so did their daughters (pre-40). So my question is 1) is this history relevant? 2) If it is, should I go back to the mammogram with the new information or just wait til my yearly appointment (only a few months away anyways). My Dad said he didn't mention it because it was not a direct line of illness. Hope that makes sense. Thanks for your opinions.
Genetic testing
hi got my genetic testing back today and a bit confused. Was told that I was negative for BRCA 1 and 2 which I'm happy about but they say that my PTEN gene is slightly faulty and of doubtful significance. I realise it is great for my familial stuff and they recommend routine testing annually for my girls which we do with mammograms anyway but I was wondering after having a tnbc what other types of routine testing I should have. Is a routine mam all that the s required for me? cheers Kath
post chemo and genetic test
Hi all its been months since Ive been on this forum, never been one for social media but have decided to up date my progress for anyone else out there who might be interested. diagnosed in may with triple neg had a L mastectomy by choice instead of lumpectomy and radiation then chemo) no lymph node involvement and scans all clear. I have finished my 8 fortnightly rounds of chemo ( 4 AC 4 taxsol) 5 weeks ago got through it fairly well, better than I thought I would the biggest thing was the fatigue for me for the first week then improved from there also had some issues with reflux which I've never had before. and some back muscle soreness post Add to dictionary injections for a day but relieved with baths and body shop bath milk... that stuff is the best!!. some mild tingling in my fingers and toes and my finger nails got a beating but improved since I put the hard core polish on them and of course the hair loss, mind you I shaved my head after my first round of chemo and was left with stubble which I still have but still no regrowth in sight yet. Ive heard it can take months. I still managed to function though with daily stuff like housework, dinner etc just got it all out the way in the mornings when I was feeling half human. I started back at work a couple weeks ago just 4 hours per week which is keeping me busy, will go back properly in the new year as per specialists I have booked to have my other boob off end of nov as a preventative although surgeon and oncologist said it wasn't necessary I was adamant I wanted if off as Ive heard of women getting it in the other side but now I'm umming and aaahhing over it, not sure why has anyone else had the other side done when its not been recommended?? I qualified for the genetic test, as i have no family history and I'm 44 so not sure if I should just wait for that or not?? If I am + I will have to have my ovaries out anyway. Will stay up to date now that I am feeling good. Hope everyone else is travelling ok. Margie :)
