Election called
Hi everyone - it has been a while since I have posted myself but as always I love the many messages you share with each other that I have a chance to read. Last week Vicki (our Director of Policy, Advocacy and Support Services) and I were in Canberra meeting with both the Minister for Health and Shadow Minister to take them through our policy priorities. I hope you have had a chance to read them: https://www.bcna.org.au/latest-news/bcna-news/bcna-policy-priorities-2025/ These are driven by your experiences and where our Network wants the Australian Government to invest. Keep any eye out on our social media and through the Online Network on updates on commitments the parties may make. Love your work KP
Public patient Private radiation (Toowoomba)
Hi everyone, Just wanted to share a useful bit of info for anyone going through something similar. My nearest radiation facility is 4hrs drive away in Toowoomba, but it’s private & I am a public patient. I went for my planning appointment this week & at the end I was taken aside into a small office & given my ‘Estimated Fees’. The admin officer asked if I had means to pay $6000 on day 1 upfront, and that would then be rebated through Medicare. The grand total of 3 weeks treatment was $15000. I said that I could maybe borrow money from a relative. I felt very patronised & have been stressing for the past few days about how to get that money upfront. To top it off my (old) car broke down on the trip home, so now I need to buy a new one - ugh! I went to see my wonderful GP today to ask him to sign a Compassionate release of Superannuation form. He said ‘You shouldn’t have to touch your super, you’re a public patient!’ He rang the private hospital and clarified that it would be difficult to access money (particularly after being off work for surgery & chemo since May 2024). A lovely admin phoned me afterwards & explained that Medicare can fund the upfront payments. I just have to sign a form that they email me & each week of treatment I will have the funds from Medicare land in my account & it will then transfer across to the private hospital. I will only have to pay a total of $1000 over the course of my treatment. Phew! I was so stressed about this. Apparently this is not an option for all patients, but I think it’s important info if anyone else is in the same boat. The last thing we need is extra stress!
Oncotype Testing
I was diagnosed with Early Cancer - Oestrogen Positive - 3 February 2022. Since then I have had surgery to remove the lump. I saw my oncologist this week for a treatment plan. Due to my history, Hodgkins lymphoma 1998 and non Hodgkins lymphoma 2008 , sister and other family members with Breast Cancer, and the markers found in my lump she wasn't sure if Chemo would be a beneficial option. She has suggested Oncotype Testing to give a 100% guarantee that Chemo is needed or not. I have no worries with this as I'd rather not have chemo if it is not needed. What go me mad was the cost of this test $5000!!!! There is no Medicare rebate and not covered by my Health Fund, I was fortunate that we were able to juggle a few things around to pay for this - but what about those who can't afford this. When the information provided isn't that clear and it's a matter of a coin toss whether to have or not have chemo what would you do? I know it makes it sound like my oncologist isn't giving me clear advice but she is very and good and has provided me with lots of information, hence taking the option to do this testing. Cancer is hard enough as it is without the added financial strain of such an expensive test. There are so many other subsidised tests and programs why isn't this one. Apparently we are the only Western Nation where the government doesn't provide a rebate. I have wrote to the Minister for Health a strongly worded letter and suggest that everyone do the same.
Managing the cost of breast cancer webcast: tips and resources
Hi everyone, BCNA are holding a webcast on Thursday 16 September, 7:00 pm – 8:00 pm AEST on managing the cost of breast cancer: tips and resources. For many people with breast cancer, the financial costs associated with treatment and care can be substantial. General day-to-day expenses continue, while you may also have to pay for specialist appointments, tests and scans, medicines and other treatments, counselling, travel and so on. If you're unable to continue in paid work, the loss of income can also contribute to financial pressure on you and your family. Even when treatment is finished, you may still struggle financially, or you may face the longer-term impacts of ongoing care. For some people, getting by financially is no easy task, even at the best of times. Money worries can have a big impact on how you and your family cope. Informed financial consent requires people to have information about costs and support to make informed decisions about their care. We will hear from Financial Counsellor at Cancer Council Victoria, Antony Mitchell who has a community focus and experience with working with a number of not for profits, and BCNA Consumer Representative Jodie Lydeker who was diagnosed with invasive breast cancer 3 years ago, and detected again in 2021. Jodie will share insight into her lived experience of the financial stress associated with the disease. In this webcast we will explore managing the costs of breast cancer including informed financial consent, public vs private healthcare, hidden and common out-of-pocket costs, questions to ask your healthcare provider, financial wellbeing, career impacts, issues for those who live in rural and remote areas and the resources and support available to you. To register, please follow this link, https://www.bcna.org.au/webcasts-new/managing-the-cost-of-breast-cancer-webcast-tips-and-resources/ Event Details When: Thursday, 16 September 2021 What Time: 07:00 PM AEST - 08:00 PM AEST Local Times: - WA: 5:00 PM - NT, SA: 6:30 PM - QLD, ACT, NSW, TAS, VIC: 7:00 PM
Let's talk about the financial impact a breast cancer diagnosis can bring into our lives
I saw a psychologist last year as I was struggling without being able to work in my job as it had physical components that breast cancer diagnosis and 18 months of active treatment wasn't conducive to holding down my job with the reliability that would have been required, and then ending up with worsened osteoarthritis and a subsequent diagnosis of hypothyroidism really messed with my ability to hold down a job. Broken sleep, digestive issues plus joint pain and now needing a knee replacement, but on at least a 2 year waiting list through the public system, plus more, it has really taken its toll and I was diagnosed end of 2016 and haven't worked since, and will not get a pension until late next year. Truthfullly I didn't find the help through the psycholoigist can address the poverty I now live in, as they would not be able to live on the amount I am expected to live on! The financial struggle at times just gets too much for me to bear on my own. I am probably not alone in that thought, but I do wonder how a psychologist can help me in that regard to be honest! I try as best I can to be positive, but I do wonder in my darkest moments why I did all the treatment I did and now left to struggle so much. The physical limitations I can accept, but extremely hard to accept living in poverty in Australia and now still waiting for a fully knee replacement. I will not compare our country to others, but I do think we can do better for people such as myself and others in a similar situation. Any thoughts ? Take care out there, and best wishes to all.