DMX or Lumpectomy
I was diagnosed in September 2023 as Hormone negative HER2 +. My first thoughts were DMX & get rid of it, surgeon said "no I needed chemo first" which caused my first & only meltdown pretty much all day if I was on my own as I wasn't in control. I finished my chemo on Thursday just gone & have surgery booked for 22nd Feb. I went back & saw surgeon on Tuesday just gone to discuss options, she has now said "it's my choice what I want" as my daughter made a point of bringing up I had my head set on a DMX. I'm now conflicted as to what to do, I'm swinging every few hours between the two. I don't have access to a McGrath Nurse & have relied on the support from family & work colleagues so far. My chemo nurses have been great but now can't help as it's my decision & not their speciality. Oncologist has said only 1% chance of recurrance if clear margins from the lumpectomy but then more chemo if not clear, I don't want to do that again even though it wasn't as bad as I was expecting. I will be continuing with Herceptin until September this year. Sorry for the essay.
No reconstruction after double mast
im looking to hear from women who have had a double and chose No reconstruction. iv had a double, temporary implant ( which are s pest) I was considering DIEP hence the implants...... but not sure if the surgery/ reconstruction is worth the $16,000 and Another BIG surgery and recovery. ( yes the tummy tuck and nice breast would be great..... no doubt there at all and I’m sure it’s worth it but anyone not reconstruct and still feel content and happy. my husband I’d supportive of what ever I choose. I’m quite active, I like to run and exercise and I want to be able to do handstands and cart wheels with my daughter before she gets over it. I just hate these implants, I could get them out quickly. But have to wait for DIEP as I had radiation in dec. 🤷♀️ Just interested to hear others experience with no reconstruction. Or anyone like me and want or removed these stupid uncomfortable implants?
another delay, sad and mad and very disappointed
Hi, I've had a disappointing week and I thought I would drop in with all you wonderful people and unload (sorry it feels like going down not up lately) I'm about 4 weeks into my 2nd time round, I had the lumpectomy in 2020 and now I'm ready for double mastectomy and not considering reconstruction. Had surgery booked for Friday 1st and I had a recent UTI but Thursday afternoon had the details and what was required then an hour later it was cancelled , I was so broken about that for a couple of days and just started to settle and now I am covid positive. When the test showed positive I just shut down don't really feel anything. I'm lost at the moment wondering what's next.. thank you all for being here, for your time and thoughts!!
Elective preventative mastectomy advice?
Every single day since my wide-excision I have resented my oncologists choices to deny me a double mastectomy, and for my five year survivorship I plan to treat myself to correcting it. The surgery I had left me with permanent pain, and after becoming pregnant, which I wasn’t sure was possible, my other breast grew over a full cup size. There are no bra solutions. And I lost the baby just at the end of the first trimester. I’m left more uncomfortable on a daily basis than I’ve ever been in my life. I don’t have a love-hate relationship with my breasts, they are uncomfortable both to see and touch. This exposition is more for the purposes of illustrating that I don’t take this decision lightly and is not purely out of that life long survivor’s anxiety of recurrence, and I know that it won’t be covered by Medicare. My question is, where do I go? I don’t want to come out of the surgery as a purely medical exercise, I’d like a somewhat smooth chest. Does anyone know a surgeon in Sydney who offers mastectomy and - I suppose ‘sculpting’? I don’t need or want new fake breasts or nipples, I just do not want to come out of the surgery only to recover with new alien lumps and folds to get used to. Thank you in advance for any input and guidance!
Mastectomy this Thursday..
I am booked in for a single mastectomy (followed by chemo and radio) this Thursday. I tried to discuss with my surgeon the possibility of removing both breasts at the same time, one being preventative (as this is what I would really want) but she dismissed it. I have asked again yesterday and she said she wouldn’t do it as it may delay treatment and because of covid, there is a need for beds in hospital.. plus there is double the risk for complications. While I originally accepted her reasoning, I am now working myself up as I am upset that this option was not fully considered and the reasoning do not make all that sense to me. There are pros and cons of course.. Anyone been in a similar situation and/or had a second mastectomy later? How long after you finished treatment were you able to have another surgery? I do not want to delay surgery this week, but I also want to do the right thing for myself..
Shoulder and arm pain after double mastectomy
Hi there, This is my first time to post here. I don't know which category would suite my post. If you are having same pain or had similar experience in the past and give me any advice, it would be highly appreciated. After I had double mastectomy (no construction) in May 2020, I have been suffering from nasty shoulder and arm pain especially last a few weeks. My breast surgeon told me about possible shoulder and arm pain as after effect when I decided to do double mastectomy, so I was not surprised. But I am wondering how long it would take to get better. I cannot raise up my hands and cannot stretch my arms either at the moment. Nocturnal pain disturbs my sleep terribly. I consulted this issue with my GP over the phone but she did not help me so much. My next appointment to see the breast surgeon for following up is early December. Do you think it is better to reschedule the appointment earlier?
Bilateral Mastectomy and no further treatment
Just wondering if there is anyone out there who has had either a mastectomy or bilateral mastectomy who then didn't need any further treatment at all? I had this earlier this year but everywhere I look everyone talks about treatment following surgery.Mine required none which is fabulous but I have this feeling I don't quite fit anywhere. It seems there was this sudden rush of activity after diagnosis, a quick surgery and then a sudden stop it all. I was never sick, another thing to celebrate.
