Radiation post DIEP
Hello all, I am exactly 4 weeks post double mastectomy and DIEP (including complete node clearance) which I had after 6 months of neo-adjuvant chemotherapy. I had TNBC in my right breast with 3 nodes involved on the same side. My pathology report said I had clear margins and a complete pathological response 🙏 I have now been given the option of skipping radiation if I want to. A new study (B-51 study) published last year found that patients with complete pathological response to chemotherapy and a double mastectomy don’t benefit from radiation therapy. My question is has anyone skipped radiation or was given the opportunity to skip it and chose not to? Also, has anyone with a double mastectomy and DIEP done radiation and what were the side effects on the breast? Lastly, has anyone received radiation in the neck region and what were the side effects like? Difficulty swallowing? My radiation specialist suggested if I choose to go ahead with radiation she would recommend the sub-clavicle nodes in the neck (along with breast and armpit) as they’re the only nodes I have not checked surgically. Would be keen to hear anyone’s opinion or lived experience. Thanks 😊
Extent of numbness following double mastectomy
Hi! I’ve recently been diagnosed with early stage breast cancer and require a double mastectomy. I’ve been trying to come to terms with the need for this treatment. I’m wondering if some of the lovely survivors out there would be able to tell me how it feels post mastectomy? How much of your chest is numb permanently? Does PMPS become mild long term?
Managing hot flushes & mastectomy?
Hi there! I’m 43 and just had my last round of chemo for her2+ breast cancer. I’ll be having surgery in 2.5 weeks, likely a double mastectomy. I’m Australian but I live in Paris, so it’s winter here currently. Whether it’s the chemo side effects or the chemo pushing me into peri-menopause, I’m having a lot of hot flushes at the moment and taking layers on and off. I’m a bit worried about dressing right and juggling this in the immediate aftermath of surgery. Anyone had similar? Any tips? Thanks so much!
Electing to have double mastectomy?
I apologise in advance for not necessarily knowing all the correct terms when I am asking this question! I was diagnosed three weeks ago with invasive lobular cancer in my right breast. I also had one lymph node that the biopsy showed as being inconclusive. I was told the tumour was very slow growing and was hormone receptor positive. All PET/CT/MRI scans etc showed everything else as clear. I had a right sided mastectomy last week with a breast expander put in and 6 lymph nodes removed, two came from under the arm. The pathology post surgery said the tumour was removed with clear margins and also that the lymph nodes were all completely clear with no cancer in them either. I have been told that I don’t need chemo or radiation but will need to start the hormone blocking tablets soon as well. We are now looking at the reconstruction options and I do want to do a reconstruction. My surgeon and plastic surgeon have said I am an excellent candidate for a DIEP and it has been suggested I could do the left breast at the same time if I wanted to. I am quite keen to never go through this again and am thinking of doing the other breast. My husband has said it’s up to me and is supportive of whatever I choose. Has anyone else had the second breast removed despite there being no indication that it’s necessary? If I do have the double mastectomy do I still need to take the hormone blocking tablets? thanks in advance (and I have requested to join the reconstruction group).
Anxious wait
Hi all, I’ve been waiting since end of June for a surgery date (they originally only found DCIS in my right breast). Last week the surgeon told me they’ve also found mixed DCIS/LCIS invasive triple positive 8mm lesion as well on my last biopsy. I’ve finally been booked in for surgery 15 October which is still 4 weeks away. I’m an anxious wreck and so scared it is going to spread in that time. Each day I feel weaker and more depressed. I’m wondering if others have been in same situation and what they did. I’m already accessing counselling, meds and exercise. My fear feels so real and overwhelming. thanks for your support 🙏🏽
Struggling to make surgery/reconstruction decision
Hi everyone I have been diagnosed with high grade DCIS with an MRI showing a potential small spot of invasive cancer in my right breast. I have to have a mastectomy and I am booked in for surgery next Monday (8/9) but I am struggling to decide whether to have a bilateral mastectomy and what type of reconstruction to have. I have phone consultations with the plastic surgeon and the breast surgeon tomorrow and have to make the decision during these consultations. I am conflicted with what to do as I am waiting on the results of genetic testing (I had a tumour that was borderline cancer removed in December last year, which included removing an ovary and a fallopian tube) so am extremely fearful of having to go through this again. My initial reaction has been to get rid of both to be on the safe side which my surgeon was supporting but during a phone call with her yesterday she thinks my best option is to do only the affected breast and leave the other one. The reason she is recommending this is the left nipple can not be spared due to this breast being more saggy and the blood flow (don’t really understand it completely so that may not make too much sense) so at then end of the day if I choose to have the bilateral mastectomy I will have no nipples which she is worried I will regret. if I only do the one breast I may have enough fat on my stomach to do the flap surgery and they should be able to spare the nipple. I do not have enough fat on my stomach to do two breasts so would need to also take fat from my thighs. I have decided against this due to the scars that would be left in my thighs so if I have the bilateral mastectomy I would opt for implants. I would appreciate any input from anyone who has had a similar experience as I am at a loss what to do and only have tomorrow to decide. Specifically, if anyone has had to choose between a single or double mastectomy and has experience with nipple-sparing versus non-nipple-sparing procedures, or if anyone has had regrets about their choice, I would really value hearing your perspective. Any advice or experience would be a huge help right now. Thanks.Looking for suggestions after double Mastectomy
Hi everyone. How good is this website? I have learnt so much. I have been recently diagnosed with Breast Cancer 😒 and will be having a double mastectomy in the coming weeks. I am looking for suggestions/ideas for post surgery. For example clothes to wear, pillows, chairs, sleeping positions and the like. Looking forward to your ideas. Thank You
BMX with ALN removal and SN biopsy.
Hello to all you lovely folks on here. I've had 6 cycles of THCP and I'm having BMX this Wednesday, with axillary clearance on the left and sentinal node biopsy on the right. Has anyone had the same? And any advice for recovery? Were you able to go out for a walk or is it mostly housebound at first? I'm also dealing with heamorroids so a little worried about that. Thank you and best wishes to everyone going through this.
Suggestions/Experience
Hi everyone, I’m looking for some advice or experiences from others who might have faced a similar situation. I was recently diagnosed with invasive carcinoma grade 1 and have undergone a lumpectomy with sentinel node biopsy. The surgery also removed areas of DCIS, and thankfully, the pathology report shows that all margins are clear. However, the report also found extensive LCIS (lobular carcinoma in situ), and now my doctor has presented me with two options moving forward: Undergo a double mastectomy to reduce future risk Or opt for regular screenings every 6 months for the rest of my life (mammograms, MRIs, etc.) I need to make this decision before starting radiation, and I’m feeling really torn. A mastectomy is obviously a big step, but ongoing screenings come with their own stress and uncertainty too. If anyone has had to choose between these options, or has any advice, experiences, or perspectives to share, I’d be really grateful to hear from you. Thank you
