Important update (please read)
Just a reminder to our valued Online Network community, from 5pm Wednesday 19 March to Thursday 27 March there will be a pause to your Online Network access while we transition you over to the improved platform. This means, you can continue to view everything but you will not be able to start a discussion or comment on a post. After 27 March, we look forward to welcoming you back to experience our refreshed My Journey, which will include the new Online Network. Again, we apologise for the inconvenience of this disruption and appreciate your understanding. If you need information or support during this pause, please reach out to BCNA's free and confidential Helpline on 1800 500 258. If you are interested in registering as a new member during this period please email [email protected] and we will contact you when the new platform is live175ViewsSign in to react to this post2CommentsNew Online Network - Important Information (Please read)
We’re thrilled to let you know that we are launching a new-look Online Network platform that will be easier-to-navigate and enhance your experience with us, while still allowing you to connect with others going through a similar breast cancer experience. So that our team are able to migrate your information over to the improved platform, there will be an Online Network pause from 19-27 March, 2025. During this time you will still be able to access the Online Network however in READ ONLY format, which means you can continue to view everything but you will not be able to start a discussion or comment on a post. After 27 March, we’re excited to welcome you to experience the refreshed Online Network. We’ll be in touch with further guidance on how to login soon! We’re very aware how important our Online Network community is, and we apologise for the inconvenience of this disruption. If you need information or support during this pause, please reach out to BCNA's free and confidential Helpline on1800 500 258.321ViewsSign in to react to this post3CommentsEMOJI ('Reactions')
Hello members, In a recent unrelated discussion thread there has been a clear dissatisfaction expressed with the current emojis (aka reactions) available or not available to you when communicating in the online network. In relation to the 'hug' emoji, this was an organisational decision to include the hug reaction as it is a popular emoji with the members and BCNA has confirmed it is staying. Unfortunately we are limited within this platform and cannot create 'new' emojis but can replace existing ones (The 'flag' and 'quote' are not reactions that can be used). We have found an interim solution to enable the smiley face reaction to be 'awesome' and hope this will satisfy those that wish to have this option back as well. If you do not like a particular emoji than you do not have to use it and if you have other feature suggestions send the moderators a private message. Final thoughts and gentle reminder: To keep this space welcoming and supportive to members, it is important that we are all respectful. When we are online, we have to work harder because there is no body language, facial expressions and tone of voice to help us interpret what people are saying to us. We remind you to please be respectful of other members and also the staff at BCNA. Many thanks.247ViewsSign in to react to this post1CommentFriday update 5 November 2021
Friday update 5 November 2021 Hello members, Well, can you believe we are in November already? Spring weather has been in full swing in Victoria with such variety of days; how is your part of the world? Thankyou again to all members who shared their stories, resources and support during October breast cancer awareness month. Also, a reminder to our newer members as to some of the resources and services BCNA provides: · My Journey an online resource (and downloadable app) that provides high quality, evidence-based information and insights from others diagnosed with breast cancer as well as a symptom tracker. · My Care Kit is for women who have recently had breast surgery. It contains a specially designed Berlei bra and soft form/s, provided through a partnership between BCNA and Berlei. · BCNA's Helpline is a free and confidential telephone service for those affected by breast cancer and their friends and family. Available -Monday - Friday 9am-5pm AEST 1800 500 258 Community highlights October Online Network activity * 51 New users * 101 Contributors * 100 Discussions * 798 Comments The Online Network 'Page views' peaked to nearly 3,000 on the 14th of Oct, which coincides with the Thriving Together, Living Longer, Living Stronger web conference (If you haven't watched it yet CLICK HERE ) Popular forum discussions Members new and old may have missed some of the forum discussions that have received the most comments: 1. oestrogen and DCIS 2. Night Howlers - Jump on to chat if you are awake 3. Letting go of being superwoman! 4. COVID booster shots Creative Corner Have you checked out the latest creations in this member discussion? Hope you don’t mind me sharing your wonderful work @StrongCoffee :) - head to the discussion link https://onlinenetwork.bcna.org.au/discussion/14979/creative-corner#latest Community News Summer is a great time to PLAY4BCNA! Summer sports season is nearly here and whether you like golf, lawn bowls, softball or sailing, we invite you and your club can get involved and host a PLAY4BCNA Pink Sports Day. In spite of some interruptions to community sport due to COVID-19, BCNA is thrilled to announce that 2021 summer registrations to host a Pink Sports Day are now open. CLICK HERE to Find out how you can get involved. BCNA NEWS 26 Oct 2021 - Subsidy for Verzenio (abemaciclib) expanded on the Pharmaceutical Benefits Scheme (PBS) Breast Cancer Network Australia (BCNA) welcomes the expansion of the Pharmaceutical Benefits Scheme (PBS) listing of Verzenio (abemaciclib) to include its use in combination with Faslodex (fulvestrant). CLICK HERE to read full details Facing breast cancer with a disability Coping with breast cancer can be dif…148ViewsSign in to react to this post0CommentsOctober Breast Cancer Awareness Month
Hello members, As many of you are aware, it is Breast Cancer Awareness Month in October. Breast Cancer Network Australia (BCNA) is Australia’s leading consumer network. We connect, support and empower Australians affected by breast cancer. We enable connections within our broad network to ensure no one feels alone. We provide support to help those affected by breast cancer make informed decisions. And we empower people to live well with and beyond a breast cancer diagnosis and make a difference by using their voice for change. Keep a look out in October as BCNA launches a powerful new podcast series, will host informative virtual conferences, raise awareness about issues that impact those diagnosed: • The Beacon (1st Oct) • Podcast Mini Series: with Dr Charlotte Tottman (6th Oct) • Virtual Conferences – Breast Reconstruction – Options and Expectations (12th Oct) Thriving Together – Living Longer, Living Stronger (14th Oct) • Podcast: Financial Impact (28th Oct) Our commitment is to continue to Connect, Support and Empower this October and beyond!177ViewsSign in to react to this post0CommentsFriday update 24 September 2021
Friday update 24 September 2021 Hello members, Well, we have had an interesting week here in Victoria with an earthquake that was felt across the State and by some of our neighbours in New South Wales, Canberra, Adelaide and Launceston – Did you feel it? It is also a public holiday here today in Victoria therefore the BCNA office is closed, however there is still time for a Friday update. For those of you who follow the AFL and/or one of the grand final teams, I hope you enjoy the game on the weekend. Community highlights New groups PALB2 gene support– This is a private group for individuals and family members affected by the PALB2 gene to come together for support and help spread the word about this gene mutation. The very brave Kerr Family spoke up about this largely unknown gene that has greatly affected their family and the main reason behind the Online Network's new PALB2 group. CLICK HERE to access the article. Popular forum discussions Members new and old may have missed some of the forum discussions that have received the most comments: 1. More cancer 2. New fees for radiation therapy as of 1-7-21 3. How did you find out about BCNA 4. Friday Funnies These funny posts are welcome any day really – bringing something light hearted to the forum credit @arpie Community News BCNA NEWS 16 Sept 2021 - Removal of Herceptin from PBS From October 2021, there will be some changes to Herceptin, one of the drug therapies that is available for people with HER-2 positive breast cancer – Access the full article via link below: https://www.bcna.org.au/news/2021/09/removal-of-herceptin-from-pbs/ BCNA NEWS 23 Sept 2021 – Breast Reconstruction Report The Breast Reconstruction in Australia 2021 report details the findings from BCNA’s survey, which received 3,350 responses from women across every state and territory, from metropolitan, regional and rural areas, and from ages 18 to over 80 - Access the full report via link below: Breast Reconstruction in Australia 2021 report | Breast Cancer Network Australia (bcna.org.au) The Pink Bra Project (Launching 26th September) The Pink Bra Project is an initiative created by Berlei and Breast Cancer Network Australia to support those close to our heart who have been affected by breast cancer. Berlei have created a special pink bra collection where $10 from the sale of each bra will be donated to BCNA in support of those affected by breast cancer. The collection includes a post-surgery bra, two t-shirt bras and a wirefree bra, and will be available to purchase online and instore from 26th September – Check full details of project via below link https://www.bcna.org.au/news-events/the-pink-bra-project/ Webcasts and conferences you have have missed Managing the cost of beast cancer: tips and resources There were 1,157 registrations and it was very interactive and informati…278ViewsSign in to react to this post2Comments
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