The never ending circle
I literally go from ultrasound to mammogram to mri to ultrasound and then biopsies. This is about my 6th time in 2 years which they say is because of dense breasts. This is getting frustrating and the costs are so high. Has anyone else had this experience. At this stage negative but last two years this keeps happening. Back again for another ultrasound this week after mri.413ViewsSign in to react to this post9Comments
Struggling
Hi ladies, away with my family spending some quality time but last 24 hours been so emotional and stressed, was diagnosed with TNBC early Dec, having 4 rounds of chemo, 16 rounds of taxol and then surgery - unsure at this stage what surgery as having genetic testing in a couple of weeks to see if I am a carrier for bracca 1/2. I had my first chemo 31st Dec, all went ok and other than first day where I had severe nausea that night the next 5 days I was just really exhausted - going into my 2nd post treatment i seem to be going ok. The thing is, the last 24 hours there is a burning pain in my tight breast and it’s sore and right arm aches - I had a needle biopsy the day before my chemo as ct showed a lesion in breast node so it is just over a week ago now and the side of my breast got really bruised and where they stuck the anaesthetic to numb the area still feels tingly and swollen, my husband says when he was looking at the ultrasound and needle was going in she was really pushing hard to grab the samples and they stuck 3 needles in to get enough, results came back fine and was benign so was a relief but I am stressing as it’s really sore still- has anyone had similar experiences with biopsies as all I can think is that this terrible diesels has spread even though my Scans mid Dec were clear. also I wonder if chemo is working and I know I am being stupid as I have only had 1 session and everyone is different but reading the side affects like hair falling out before 2nd cycle ( I am having a few strands come out only, more like malting but not much) nails going black, mine are fine at the moment, it’s not like I want these things but physiologically I feel if these things start to happen chemo is working - it’s such a mind f**k. sorry for the long winded post but just needed to release xxViewsSign in to react to this postComments
Not Again....
Hello fellow pink warriors...It has been awhile. My world turned upside down again last week when I had an MRI. They have found a lump in my LH Breast now, 4 years and 6 months since my previous diagnosis. I am freaking out. I have a core biopsy booked for tomorrow am and will hopefully have the results from this by Friday. This lump has not shown up in a mammogram or ultrasound that I had late November last year and is behind the nipple apparently. . They have mentioned it could just be a 'fibroid'??? (may have that term wrong) and to not 'stress' just yet. Easier said than done. Any one else has a similar experience?ViewsSign in to react to this postComments
Newbie
breastscreen saw something so I had biopsies last Wednesday, my gp was supposed to get the results by Monday, got a ph call from breastscreen to say the pathologist wanted to do more staining and my gp would get the results on Tuesday so I should see him Wednesday. and Im so depressed and scared and such about the whole thing. wouldn't be so bad but theres just me and my autistic daughter left now , friends I thought I had I dont and not a friendly neighbourhood I tried when we came here but was ignored. I have never felt so alone in my lifeViewsSign in to react to this postComments
Pre-cancerous changes
On Thursday I had an appointment with a gynaecologist which should have been nothing to worry about. As she commenced her examination though she immediately began questioning me about an area she could see that had some skin changes. While she was quick to reassure me that it was not cancer she did say that it could be pre-cancerous changes. The end result is that I am booked in for a biopsy of the area in a couple of weeks. I went home telling myself that this was just precautionary and that it was probably nothing bad. Also reasoning that if it is pre-cancerous then it would be easily taken care of at this early stage. I kept myself busy and tried to put it out of my head. I know that it is completely unrelated to my breast cancer so no need to panic in this regard. I thought I was doing really well with not getting too far ahead of myself until I came home this morning after a lovely walk and yummy breakfast out, to find an invasion of ants in the kitchen. Just felt completely overwhelmed and tears flowed. Pretty sure that this overreaction is because I have this biopsy thing to get through. Also I have not spoken to anyone except my husband about the biopsy procedure as I do not want everyone getting alarmed at the mention of "cancer" again. No need for everyone to get worried about something that is probably nothing to worry about. But not talking about it and using logic is ignoring the fact that of course I am worried about it. Just need to talk about it with others who will understand my reactions. Would dearly love to return to the time pre bc when a doctors visit was nothing complicated! :/ViewsSign in to react to this postComments
What to do
hi again everyone ..... Could have knocked me down with a feather today ... After weeks and weeks of telling nurses and surgeon and oncologist that I have lumps and I want something done and they have were just frobing me off with its nothing and I finally got my surgeon to send me for an ultrasound 2 weeks after radiation finished ...and he told me that there is no need to come back that he will ring me with the results I said ok and I went home. Well had the ultrasound they could feel the lumps but nothing showed up anyway I never heard back from the surgeon with the results so just took that as it was clear (even thou still had the lumps) ....so since then have just been getting on with life...But today I went to my go on another matter and I got the surprise of my life as he shut the door behind me he asked me how I have been and I said good thanks which I have been...then he said I have been waiting for the results of your biopsy and I said huh? What biopsy he said have u heard from your surgeon I said no he said well I have and then he said have a seat so I sat down and then he told me about that last ultrasound I had cpl of months ago said that they found a tumour and I just sat there not saying a word and he says did u hear me and I was just staring...and then he went on about what the usual course of action with this so aft I left being dumb founded that surgeon didn't even have enough thought or manners or what ever just plain rude and uncaring to even tell me about my own body which I have all rights to know good or bad but the dickhead just didn't care enough to tell me I'm so friggin angry the jerk! I got this tumour inside my boob doing god knows what to me .... but I I'm not being a fool and going back to him even thou would love to march into his office and give it to him I'll rung the breast unit in east Melbourne and had a talk to them and they said we better get u into here asap so got a appointment for this Thursday but what a arrogant so n so ok rant over thanks for listening ?? kateViewsSign in to react to this postComments
Breastfeeding with cancer
My maternal grandmother had breast cancer at 46, paternal grandmother at 72 and mother at 56 so with a huge family history I had the gene testing when I turned 30. It came back normal for BRCA1 and BRCA2 and I was told I had just as must chance at getting breast cancer as the general population and was in no increased risked. So I went about living my life not giving it another thought. Had a baby Breast feed for 8 months And a few weeks after stopping breast feeding I discovered a large lump. I phoned breast screen Australia who told me they couldn't see me because I was under 40 and to see my GP, who reffered me to private mamograme, ultrasound and biopsies. Last Monday I received the devastating news that the biopsies came back grade 2, invasive ductal adnocarcinoma with metastic adnocarcinoma in my lympnodes. My first thoughts were, omg I breast feed and had breast cancer.... what danger have I put my daughter in?? Then anger that no one warned me this could happen. No one told me I could get BC so young. Im 36... 36?! Was I pregnant when it first started? Was how long had I breastfeed whilst having cancer??? My surgeon told me there is no danger to my daughter but of coarse I am still worried. I would love to hear more under 40 stories or anyone else who found out they had cancer shortly after breast feeding or young mum worring about their young family?ViewsSign in to react to this postComments
6 months pregnant and newly diagnosed
Hi All Newly diagnosed and 6 months pregnant with my 3rd son. Wow what a hectic 2 weeks iots been. Suspicous nipple sore, specialist, biopsy (YEEEOW), more biopsies, scans, diagonsis (stage 2, grade 3 ductile), masectomy - all between 17th dec and xmas! My head is still spinning. I think I'm comfortable the oncologist and surgeon, who have been wonderful, know what they are doing (all happened so quick haven't had time to think about it) But I now have to change Obs, birthing hospitals, change from private to public, breastfeeding is not an option (I breastfed my other 2 sons) - and it all seems so scary and overwhelming. I know we all are going through a shitty time, and I'm lucky to be having my third. But I am just so scared. I am also the type of person who has to know EVERY detail and plan, well ahead of time, and all the possible outcomes. I lost my mum last year at 57 to leukemia, and my inlaws live interstate. Although I have great friends and an awesome community, fantastic hubby etc for support I still feel very alone. Thanks for the vent, seems writing this down helps ;) Emma xxViewsSign in to react to this postComments
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