CEO Update - Kirsten Pilatti - May26
Hi everyone, I wanted to take a moment to check in with you all, the heart of this community. At BCNA, our purpose is grounded in being alongside people through every stage of breast cancer. Information, advocacy, and support are not separate strands of our work. They are woven together, and they are shaped by your voices, your questions, and your experiences. What you share here helps guide where we focus our energy and how we show up for the broader breast cancer community. Right now, we are seeing how powerful good information can be. Clear, trustworthy resources help people move through uncertainty with a little more confidence and a little less fear. That is why we continue to invest so heavily in evidence-based guidance, practical explanations, and support that meets people where they are, emotionally as well as medically. Over the past year, BCNA has been working across many fronts. We have continued to advocate for system wide change, while also strengthening day to day support for individuals and families. One of the most significant advocacy milestones recently was the Australian Senate passing legislation that bans life insurers from using genetic test results to discriminate against new policyholders 🎉. This is a major step forward. It means people can consider genetic testing and preventative care without the fear that this knowledge will be used against them when seeking life insurance. This outcome reflects years of advocacy and the courage of people who shared their stories to help drive change. We are also closely engaged in national conversations about breast screening reform. After attending the BreastScreen Australia Conference in Brisbane, and following recent commitments from the Commonwealth, we are encouraged to see momentum building. At the same time, we know that real reform must deliver equitable, accessible screening for everyone, regardless of where they live or their personal circumstances. We will continue to speak up clearly about what matters to our community and what needs to happen next 📣. Alongside this policy and advocacy work, we remain focused on what day to day life can look like when you are diagnosed with breast cancer. Many of you come to the Online Network with very practical questions. What should I do first after diagnosis? How can my GP support me alongside my specialist team? Why does food taste different during treatment? How do I look after my body when everything feels unfamiliar? These questions are deeply human, and they deserve thoughtful, compassionate answers. Caring for your physical wellbeing during treatment is one part of the bigger picture. Gentle movement that feels right for you, nourishing food when you can manage it, and asking for help when you need it are all acts of strength, not weakness 💞. Everyone’s experience is different, and comparison is rarely helpful. What matters is finding support that respects your body and your pace. I also want to acknowledge the role generosity plays in everything we do. Our 2025 Impact Report shows what is possible because of your support. Every program, event, resource, and advocacy win exists because people in this community believe in making things better for others 📘. That shared commitment continues to drive us forward. Most importantly, I want you to remember that BCNA is always here for you. Our Helpline is available whenever questions arise, whether they feel small, complicated, unclear, or overwhelming 📞. Our team is there to listen first, and then help guide you to information, services, or support that fits your needs. Reaching out can feel hard, but you never have to have the right words. Thank you for being part of the BCNA Online Network. Thank you for your openness, your care for one another, and your trust in us. This community matters, and so do you 🌸
