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ninica
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Joined 6 years ago
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Tamoxifen and Blood Thinners
Hi there, Wondering is anyone else had situation like mine. I had lumpectomy, chemo and radiation 6 years ago for BC in left breast and since then I have been on Tamoxifen (full 6 years now out of recommended 10 years). Few months ago I had blood cloth (DVT) in my left leg (this all came after I took my teenager daughter to a concert and had to stand for over 5h), although I had problem with varicose veins after my pregnancies before the BC diagnosis and still have some aching veins on my legs. I was put on blood thinners and have been taking them for 4 months now (1 Eliquis tablet 5mg twice a day). I had a review with vascular specialist the other day and he advised I can stop blood thinners since I have been on them for 4 months and my cloth cleared a while ago anyway. After seeing vascular specialist I saw my oncologist few days later and they advised that if I continue being on Tamoxifen I need to take blood thinners as I have higher chance of blood clothing while on Tamoxifen and since I already had instance with blood clot I should take blood thinners for the next few years until I finish with Tamoxifen. I also had my usual monthly appointment with my chiropractor who advised that I shouldn't be on Eliquis blood thinner for longer than 6 months as I will have higher chance of aneurysm. I am getting really anxious about taking all this medication especially blood thinner (which by the way comes with lot of side effects like higher risk of bleeding, internal bleeding, liver problems if taken for prolonged periods of time., etc). Wondering did anyone else has been in similar situation and how did they go? Especially if you had to be on strong blood thinner like Eliquis (as it is not aspirin type of blood thinner). I feel like taking Eliquis would give me another issues but at the same I am scared of not taking it given I had a blood clot (pretty long one in one of the varicose veins in my lover leg which was connected to deep vein). Thanks Ninica39ViewsSign in to react to this post0CommentsRe: 37 year old - just diagnosed
Hi everyone, Just thought I would let you know I got my Prosigna test results back yesterday which suggest I fall in medium range (almost high range), my score is 38 and anything over 40 is high risk of re- occurrence. So my oncologist suggests ACT chemotherapy. I am booked in for my first treatment next Wednesday. Still nervous as hell about it. There was also mention of TC chemotherapy to me by another oncologist and I am kind of doing some research at the moment to see what the real difference between ACT and TC is but struggling to find relevant info in terms of long term survival and side effects. Anyone here has an advice or done an extensive research for ACT versus TC chemotherapy?18ViewsSign in to react to this post0CommentsRe: 37 year old - just diagnosed
Thank you everyone for your answers and for being so encouraging. I am still waiting for the results of my Prosigna test, it should be ready in about week time. Still nervous as hell about it. Most of you ladies say chemo is doable so I guess I will be able to manage if I have to go through it. @youngdogmum I am even slimmer than you, I am 58kg and have been like that forever plus pretty tall as well, whatever I do I can not put weight hence I am even more worried how to go through chemo if needed. I have also lost 1kg since I found my diagnosis, from stress I suppose as every time I am stressed it affects my appetite.17ViewsSign in to react to this post0Comments37 year old - just diagnosed
Hi ladies, I have been diagnosed with early stage, grade 2, DCIS in early January (ER+, PR+ and HER2 negative). Since then I had lumpectomy with clear margins and sentinel node biopsy. Sentinel node biopsy found a tiny speck of cancer cell (less that 0.5 mm) and oncologist is pretty sure it did not spread anywhere else and they call it micro metastasis. I have done CT scan and bone scan just in case which are all clear. I was expecting radiotherapy and hormone replacement therapy as a treatment as mentioned by my surgeon. I was totally shocked to find out that oncologist is recommending invasive chemotherapy as a treatment (i believe it is called AC chemo). I am totally scared and petrified and can not come to terms with chemo. Just thinking about it makes me go into panic mode. I have seen another oncologist for a second opinion and he also suggests chemo as a treatment for me purely based on my age and the other indicators which are kind of on border line. I have just ordered Prosigna test as recommended by oncologist. Just waiting for results it's making me so nervous. I have two kids aged 8 and 4 and don't know how am I going to go through chemo if I have to (i know it is totally up to me). Wondering is there any ladies with similar age and in similar position and what is your opinion on chemo? Like I mentioned I am totally petrified of chemo and how would my body handle it. I am very skinny person and don't believe I would handle chemo good. Even breast care nurse told me I am too skinny for chemo and to try to eat up in case I decide to do it. Any experiences shared would be greatly appreciated.937ViewsSign in to react to this post19Comments
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Young women & breast cancer
This group is for young women affected by breast cancer. In the context of breast cancer treatment, ‘young’ usually refers to women who are pre-menopausal. Here, you can connect with others who understand the unique challenges that come with a diagnosis at a younger age. We talk about things like fertility, pregnancy, early menopause, ovarian suppression, relationships, and the emotional impact of treatment and recovery. Whether you're newly diagnosed or further along in your journey, this is a safe space to ask questions, share experiences, and support one another. You are not alone during this uncertain and overwhelming time.
