Paulamarie
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Re: Triple Negative
Hi @Kellee I had triple negative cancer early stages. I did 3 months heavy taxol chemo this was done every 3 weeks then weekly for another 3 months. Then surgery and radiation. My cancer responded really well to the chemo and was basically gone by the time I did surgery lymph nodes where all clear as well. I did work while doing chemo and had the odd day off when I wasn't feeling well. I found work a good distraction. I did get sick but the doctors do give you medication to help with this.7Views2likes0CommentsRe: Breast Cancer Network Australia top 5 advocacy priorities
Good to see great work. The financial burden is a good cause. I know with my journey I have had to try and keep working, as I am a sole parent with only the one income. Keeping a roof over our heads has been my focus through this. I have done 6 months chemo, just completed surgery. Now awaiting a radiation date. I took 2 weeks of for surgery and is been so good not to worry about getting up to work. Back to normal next week. I know there would be so many women out there who would be doing the same?7Views2likes0CommentsRe: Triple negative breast cancer
@volunty thank you for sharing your journey as well. I didn't realise ther her grades. I got told what might happen yesterday and walked out of the hospital a mess. I didn't realise how much I was relying on taxol or the process. In my mind I have five weeks left. I will see what happens on Tuesday. You mentioned that you have finished your 12 week taxol. Are you having surgery or did you have it before?? Hope your don't have to wait to long for the feeling to come back in your hands.1View0likes0CommentsRe: Triple negative breast cancer
SoldierCrab said: I had to stop Paxitaxel after 6 treatments as I had grade 4 I am alive and cancer free 5 years later ..... when your oncologist makes the choice about continuing or ending taxol treatment they often give another treatment. @Paulamarie one of the things we learn on this Roller Coaster Ride is that there are stops on it we dont plan for ..... Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet. It can be a a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time. The what and how thread. http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 Breast Care Nurses https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx My Journey Kits and other resources. https://www.bcna.org.au/resources/ BCNA Helpline 1800 500 258 If you have any questions, concerns or require any further information or support please call 1800 500 258. The Helpline is open Monday, Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am till 9 pm EST. @SoldierCrab thank you for the information very helpful didn't realise ther where different grades. I will see what the oncologist says on Tuesday. It is a roller coaster. Glad you are cancer free after 5 years. Tank you again0Views0likes0CommentsTriple negative breast cancer
hi everyone just wondering if anyone has had to stop taxol treatment due to side effects. Inwas diagnosed with TNBC in Oct 2017. I have 3 months AC, then started taxol 7 weeks ago. I had a reaction first 2 weeks. Then it settled down. I went in today for week 7 and they decided not to give taxol to mr today as my feet are numb on the bottom of my foot. My finger nails feel like they have been slammed in a door. I see my oncologist on Tuesday to see what they will do. The nurse said I may have to stop. They may bring my surgery forward. Etc etc . Obviously me and taxol don't get along. But apparently TNBC responds really well to taxol. I had talked my self into 12 weeks taxol. Surgery radiation. That's was the plan. A bit confused at the moment. Has as anyone else had this happen to them??? Also how do I talk to a breast care nurse or do I just ring the hotline? Thanks regards paula131Views0likes7Comments
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