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Marieda
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Joined 15 years ago
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Re: Newly diagnosed with mets
Hi Glynnis, how it it going with you? YOu had your next stent change okay? Yes, I wasn't totally confident going into hospital in May for the stent change, but it was okay. Not a good time for hospital. I am on the clinical trial for a new drug so have to go up to the cancer clinic in Sydney each month and every 2 months to the hospital up there for scans. I am pleased to be on the trial though as it is having a good effect on bringing the tumour markers down and no real side effects.Re: Newly diagnosed with mets
@Glynnis that sounds awful! Pus in your kidney. Did they say what caused the pus? The stents getting infected? I had mine last done in November and due again in May/June. No problem with the last change as I started antibiotics a few days before and they gave me some via iv while doing the changeover. Such a relief after the terrible infections and illness from the first few changes. Oncologist decided yesterday that the Palbo is just not working and my tumour markers are rising markedly. The Kisqali worked well, but caused problems with the heart, thus the change to Palbociclib. The alternative now is to go onto a trial of a new drug they are trialling. All to be sorted in the next couple of weeks. Hope you get over this hiccup quickly and recover fully and keep going strong! :)Re: Newly diagnosed with mets
Hi @Glynnis I am in the Southern Highlands of NSW, sort of halfway between Sydney and Canberra on a property. The nuclear scan was to check there was not a kidney blockage and that seems okay. Otherwise I am going okay now. It seems everytime I have the stents changed I get an infection which knocks me for a few weeks. Should be plain sailing now till November. Let's hope Christmas is a good time for us with no health hiccups!Re: Newly diagnosed with mets
Hi @Glynnis congratulations on getting it over and done with for another 6 months. How are you? After a bit of a worry time and some tests I am able to go till November to have the next stent change, a 6 month break also. Having a CT scan with the dye, on referral of my oncologist, caused a bit of havoc with my kidneys. So that is something I have to be wary of in future. So urologist sent me for a nuclear scan as the dye does not affect the kidney. Too many doctors :/Re: Newly diagnosed with mets
Hi @Glynnis that all sounds good news for you. Good to hear. I was taken off Kisqali because it was having an affect on my heart, according to the ECG so have been put on palbociclip, which I am hoping is as good as Kisqali. I was told I could also go for 6 months before the next stent change, but left stent not doing the job as well as the right, so may have to change earlier. Bone mets don't seem to have changed so far. As if we don't have enough problems - wouldn't it be great to be able to do away with the stents! Best wishes for continuing improvements..
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
