Jenmcd
Member
User Profile
User Widgets
Contributions
Re: “This sucks”
Thanks everyone for your comments and words of wisdom. Appreciate you taking the time to reply. My appointment went okay I guess. There will be a multidisciplinary team meeting on Thursday where they will discuss me and treatment going forward so I guess I wait again until I hear back after that. It’s all this waiting that does my head in! I don’t have a breast care nurse assigned as yet but the surgeon said someone would be in touch. So in the meantime I will just allow myself to heal, try and keep this pain under control and not let it creep up on me, and start to get back to some sort of new normal and enjoy all the extra snuggles with my dog who is constantly by my side.14Views0likes0CommentsRe: An unwanted "gift" for my 40th birthday
Hi CozyCat Sorry to read your unwanted “gift”. It sucks doesn’t it? I am new to this as well having been diagnosed with DCIS in my right breast mid Feb after a routine screen. So hard to process as I didn’t feel any different but they were telling me I needed a partial mastectomy, removal of the nipple and the sentinel lymph node. I am now 10 days post surgery and trying to process all that has happened seemingly so quickly. So in terms of advice on how to prepare, I don’t have a lot other than trying to take it all one step at a time as this helps me feel more in control. I’m learning to control the controllable and let everything else go. I’m learning to manage the pain better and stay on top of the medication so it doesn’t get too bad. Ice packs have helped as I’ve had so much swelling and bruising. Think the phantom nipple pain is the thing I’m struggling with most and got told to massage the area but that hurts more! It’s been difficult to look in the mirror and accept the changes but I’m guessing time will help with this. Go Gently as this is such a shitty ride to be on and I’m learning the grief and loss is an emotional roller coaster. Take care and hope you find some joy in turning 40.10Views0likes0Comments“This sucks”
Hi. This is a place I never thought I’d be posting in but thank you for allowing a safe space for me to just pour it out. I am 54 yrs and am now one week post op (partial mastectomy and nipple removal RHS, sentinel lymph node removal and bilateral breast reduction/reconstruction) having been diagnosed with high grade DCIS with Comedo necrosis on 12/2 and then following MRI, invasion into right nipple. What a mind blow out the past 2 months since my routine screen on 5/1 has been. Not telling you anything new as you all have been through this is some form of another. But no symptoms to “you have early breast cancer” has been a surreal trip. I don’t feel sick (well I do now post op!) so how is all this happening to me?! I am a psychologist and I know I “know” all the strategies to “ manage the anxiety” and “ one step at a time” and “ don’t let your thoughts become catastrophic “ etc etc but I still feel quite alone on this a journey even with all the support of family and friends. So hence I’m reaching out here with my vulnerabilities. I see my surgeon today for post op check and discussion about treatment etc. They are talking about radiation therapy. I am also HER2 positive and so confused about what this actually means and have confused myself more reading discussions on here. I have my questions ready to ask today as I’ve read HER2 positive requires Chemo? Anyway, just wanted to introduce myself and have say hi and what a shitstorm all this really is and how I am thankful that I was told about BCNA.594Views0likes11Comments
Groups
No places to display