User Profile
Fern88
Member
Joined 6 years ago
User Widgets
Contributions
Re: Last dose of Paclitaxel YAY!
Hi @Cath62 thank you. Yes it certainly is a milestone, I received a call from my radiation oncologist yesterday after looking at my CT scan he has decided to keep my radiation at 5 weeks, something to do with my tissues expander. I'm on the lounge today with this bloody awful bone pain it's the pits! So so glad it's the last time I'm going to experience this awful pain. Hope everyone is going along ok. Hugs xx7Views1like0CommentsLast dose of Paclitaxel YAY!
So my nurse takes me to my cubicle and wow what a lovely surprise someone had decorated it with balloons, streamers and a big congratulations banner, how good is that, I nearly cried.💗👌 So everything went smoothly today. It was different just leaving with my pegfilgrastim injection and no more pills or bloodtest referral. After chemo I had an appointment with my radiation oncologist it was a different Dr than last time, he said he has been looking at my case and said I might only have to have 3 weeks and not 5 weeks as he doesn't think a certain group of lymph nodes which the other Dr wanted to treat isn't necessary. He only wants to do chest wall & axilla and start in 3 weeks 31/8 but he has to see the CT scan and do the planning yet so things might change, but I hope not, sounds good to me. Talked a bit more then I was off for my C T scan, it was over and done with pretty quick, a little confronting, so I have three tiny blue tattoos dots to align me up each time in the exact place I can hardly see them. Talked about using mepitel and yes they have it and I can give it ago, hopefully I won't have to much trouble as soon it will be getting humid up here in the N.T. they say leave it on till Fri then take it off for the weekend and moisturize then reapply with new on the Mon. Fingers crossed it will be ok after all I've read about it I'd really like to try it? So pleased to have got through another stage of my journey☺ but still have those wonderful side effects to go through YUK! Not looking forward to that dreadful bone pain, it's like you just just start to feel good again then you have to go through it all again I'm not going to miss that one bit. Such a happy, wonderful, relived feeling came over me today finishing chemo. I hope everyone else is going alright in their journey's Hugs xx162Views3likes13CommentsRe: First cycle of Paclitaxel dose dense
@Afraser thank you I'm having my 3rd dose of paclitaxel right now, so far so good 👍 @Ween I hope yor leg pain lessons for you and good that you have a script. @ChezaH sorry to hear that it gets annoying hay. But best to be safe hugs xo So after not having my treatment yesterday I had to have another whole dose of premeds which have made my face red they say it's all the steroids lol, Hugs xo14Views0likes0CommentsRe: First cycle of Paclitaxel dose dense
Hi @ween maybe as yours is 12 weeks @ a lower dose I'm guessing? Hi @ChezaH that sounds painful, I asked my oncologist today he said I can try 2 anti-inflammatory pills only once a day & my pain is a result of white cells getting made (from my pegfilgrastim injection) in my bone marrow creating pressure, and this apparently happens in your bigger bones. Isn't it the pits when you get infections and then delays in treatment. Totally understand "let's do this & get it done!" Hi @Afraser so I talked to my oncologist before treatment about my numb & tingling feelings and he decided not to go ahead with today's cycle and wants to reduce my dose by 25% So apparently it gets made up intersate & will be on tomorrows 11am flight, so I'm booked in for 11am tomorrow. Hugs xo1View0likes0CommentsRe: First cycle of Paclitaxel dose dense
Hi @Ween hope your not feeling to sore, do you have pegfilgrastim 24 hrs after your chemo? Few days after chemo my hip, lower back, leg pain got worse before it got better and my fingers & toes had numb & tingly feelings, not feeling to bad after the 1st week. So I wasn't keen to see if it was going to happen again on my 2nd dose of paclitaxel (7th July) well it did and the hip, lower back etc pain was even worse & for longer this time (I wonder if it has any thing to do with the pegfilgrastim I have 24hrs after chemo) didn't notice anything like this on AC though. Fingers & toes funny feelings again. I see my oncologist before my next dose this Tues 21st so will be asking some questions. Hugs to all xo22Views0likes0Comments
Groups
Invasive Lobular Cancer (ILC)
This group is for anyone diagnosed with invasive lobular breast cancer (ILC), which begins in the milk-producing lobules and accounts for around 10% of invasive breast cancers (US statistics). Connect with others, share experiences, and access peer support from people who understand the unique aspects of an ILC diagnosis.Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.