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Cyn
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Joined 15 years ago
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Re: Anti-anxiety - effexor/pristiq? Advice or experience
Hi Strong Coffee! Effexor and Pristiq are safe to take whilst on Tamoxifen apparently. I was on Effexor for the seven years I was on Tamoxifen, then I had my ovaries out, mostly due to false positives for possible endometrial cancer and side effects of Tamoxifen. After that, hitting menopause instantly, I switched to an aromatase inhibitor for three years, and am now on Pristiq. I also had a full supportive medical team that included a psychologist and a oncology massage therapist. Anxiety and depression have been long term issues for me, and dealing with breast cancer and other physical health problems have really tested my mental health along the way. Hope you are going well. 😃🦋28Views0likes0CommentsRe: Ongoing Pain
noosa_blue150 said: I still,get odd stabbing pain every so,often in my lumpectomy breast , and tissue is a little painful still 16 months post surgery and radiation . -seems to be a fairly normal occurence post radiation fibrosis and scar tissue . Having said that , If you’re concerned you should check in with GP just in case it’s a sign of,something more,serious we have access on Sunshine Coast to a great Breast Cancer physio, and she posts numerous free,info video on breast cancer topics which may help you https://youtu.be/LvcRQwfOhOc Thanks for the link, sounds good😀 Cyn said: Hi! I was diagnosed with early breast cancer 11years ago, and went onto have a lumpectomy, radiation therapy, and hormone therapy. I recently had my yearly scans, and all came back okay. YAY! I still get daily pain in the affected breast where the cancer was, is this a situation that others get, is it a common long term side effect? I don't see my oncologist any more, but maybe I should arrange a check in, or at least speak with my GP? Wondering what others experience. Hugs to all😀7Views0likes0CommentsOngoing Pain
Hi! I was diagnosed with early breast cancer 11years ago, and went onto have a lumpectomy, radiation therapy, and hormone therapy. I recently had my yearly scans, and all came back okay. YAY! I still get daily pain in the affected breast where the cancer was, is this a situation that others get, is it a common long term side effect? I don't see my oncologist any more, but maybe I should arrange a check in, or at least speak with my GP? Wondering what others experience. Hugs to all😀408Views0likes5CommentsRe: Leg pain whilst on Tamoxifen
Hi Mel! Fibromyalgia is a bugger of an issue, and I still don't understand why I have it...It has been in my life for about 25yrs along with the 'Chronic Fatigue Syndrome' business...also another mystery to me. I just try and keep as fit and healthy as I can (both physically and mentally), and live a very mindful daily existence (which helps keep any depression/anxiety at manageable levels). I also find it necessary to pace myself with daily activities. Your spinal stuff sounds awful...were you aware that there are medications around now that help with nerve pain - they might offer something for you?? All the best of everything to you. Cyn xo19Views0likes0CommentsRe: Leg pain whilst on Tamoxifen
Hi Socoda, Good to hear from you. The magnesium thing I will look into. It will be interesting to hear what you're Onc. says on your next visit. I have since heard that many women get leg pains whilst on Tamoxifen, sometimes so badly that they need to come off it...I am considering the pathway that Deanne took, and having my ovaries out...I also understand that menopause can be an 'achingly uncomfortable time' - especially taking these BC meds. No matter what I am experiencing, I am still enjoying life to the max. - grateful for every day! All the best to you on your journey, Cyn xo11Views0likes0CommentsRe: Leg pain whilst on Tamoxifen
iserbrown said: @Cyn Oh dear - I agree get it checked out! Who'd thought a new side effect would come along after all that time! One assumes the body has adjusted to the daily medication, but there you go! I have been on Tamoxifen for 2 years and 4 months, with 7 years and 8 months to go, not that I am counting! I suffer from what I call aching bones in the legs, up and down the legs...............it was, I thought, settling as I hadn't experienced it for a couple of weeks now but yesterday, well it made up for lost time! As to the ovaries et cetera I also visit a Gynaecology Oncologist and he is monitoring as there are changes occurring. To think before BC all I ever took was an occasional Panadol! Take care xx PS I saw a tribute to Dawn French recently as she had a change of decade birthday and they were singing the green bottles song, but for them it was 99,999 green bottles hanging on the wall.................that's how I feel about the countdown on Tamoxifen Thanks for the feedback! I get the counting the days/weeks/years thing, and when I first went onto Tamoxifen, the medicos were saying 5years, but then they 'upped the ante' and declared best practise to be ten years on Tamoxifen...so it through all my counting and expectations out the window!!! I have fibromyalgia, and one of my specialists thinks Tamoxifen/menopause, has up the experience of the fibro. I am starting hydrotherapy this week to see if that will help. I have been cleared of anything nasty in regards to the leg pain...BC certainly can bend things out of shape in one's life can't it! But I feel lucky, as I was diagnosed early, so hoping no more trouble here..... All the best to you on your journey...and remember, all the green bottles will eventually all fall down!! Cyn xo3Views0likes0CommentsRe: Leg pain whilst on Tamoxifen
Hi Deanne & Molly Thanks for the feedback gals - much appreciated. Am getting things checked out...I too have thought about having my ovaries out - but have been persevering on the Tamoxifen, maybe it's time for some action...Some ladies have side-effects from Tamoxifen that are so bad that they have to come off the medication...I wish you both all the very best, and good luck on your journey ahead xoxo23Views0likes0CommentsLeg pain whilst on Tamoxifen
I have been on Tamoxifen for six years now, and have gone through menopause. In the past year I have started getting very bad leg pain/cramps (as well as the usual pelvic cramps/pain) - could my experience be a side effect of Tamoxifen? Does anyone else experience this issue?952Views0likes11Comments
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