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Rob1's avatar
Rob1
New member
9 hours ago

Recovery after axillary clearance

I had axillary clearance 12 days ago with the removal of 13 lymph nodes. I’m a bit bowled over by the severity of the aftermath of the surgery, including nerve damage and cording. I’m most concerned about the size of my axillary wound swelling, which is quite large (maybe 8cm x 10cm), painful and hard. It feels like I’ve got a tennis ball under my arm. Is this kind of swelling normal and I wonder how long it might be before I see improvement? Thanks for any thoughts. 

4 Replies

  • HiRob1​ I had complete axillary node clearance 3 months ago. I also had a double mastectomy so I had drains everywhere. My surgeon had told me that the node removal and recovery process is more painful than the mastectomy from what his patients tell him and he was right. So I was mentally prepared for that. 
    I had drains for 4 days and the area felt swollen and “big” for 2-3 weeks. It felt big but when I looked at it, it looked normal. If you’re doubting that it’s normal please ask your surgeon or GP. I guess sometimes fluid can build up? I wouldn’t use heat as sometimes numbness means no feedback and you can’t tell if something is too hot or cold. 

    To me the area felt strange and tender all at once. The feeling does subside over time, for me around 6-7 weeks? I’m 3 months out now and feel totally fine, apart from numbness in the scar area and a bit of mild lymphoedema some days, but I’m lifting weights now. 

    When you can move freely do your physio exercises. I personally found an online upper body t’ai chi video and did that every day for weeks, it absolutely helped me feel better physically. I hope you find relief soon 🙏♥️

  • Rob1's avatar
    Rob1
    New member

    Thank you for this reply. Yes, I was sent home with a drain for a week and the swelling has got worse since its removal. I’ve also seen the surgeon and BCN who thought all was fine, but that was a few days ago and am doing recovery exercises. I’m going to see my GP today. I’m surprised and upset at the severity of the swelling which I guess is going to take a while to settle down and some patience. I wonder if a specialist physio could help? Or heat and massage?

    • Rob1​ I'm not surprised that you're upset at the swelling - it sounds uncomfortable and unexpected.  It's good that you've been getting it checked out. 

      I don't remember what was said about heat - best check that with your BCN just in case. 

      Recently I saw a lymphoedema therapist who provided instructions for massage to hopefully avoid having lymphoedema in the future.  Do you know if your healthcare team has someone like that available? They may be able to help.

      I hope that your GP takes a good look and can tell you the cause of the swelling. Hopefully they can provide solutions for you. 

      12 days is not a long time. Recovery will take time and every body is different but hopefully you're reaching the peak of the discomfort now and will start to see improvements little by little.

  • Rob1​ Did you have any drains in place following surgery? Or have you had any medical people (breast care nurse, community nurse, surgeon, GP) look at your wound after surgery?

    I originally had 4 lymph nodes removed with a lumpectomy. That caused a small 1-2cm lump under my armpit which I had checked out by my GP then my surgeon. They determined it was a lymph node dealing with the removal of its friends. A week later it reduced in size and settled down.

    I then had 6 more lymph nodes removed through an incision under my arm pit. I was sent home with two drains which stayed in place for less than a week to collect fluid. I had some general swelling across the breast and armpit but nothing particularly hard or resembling a tennis ball. Paracetamol was enough to help with pain and weird sensations that then started to develop as the healing continued.

    I saw my surgeon two weeks after my surgery and he checked how I was healing. 

    Both surgeries took a while to heal, the second took longer. I was given a booklet of exercises by the breast care nurse that helped recover movement in the arm.

    Three months since the second surgery, I've had full movement in my arm for a few months but there is a little tightness with certain movements so I'm still doing exercises and noticing improvements. There are still some weird sensations (or lack of) under my upper arm.