Post Mastectomy Pain Syndrome
Dear Sisters.. Has anyone had Post Mastectomy Pain Syndrome? 12 years after my first Mastectomy and full auxiliary clearance, I’ve experienced itching; then prickling pain and feeling of inflammat...
Forum Discussion
Thanks TonyaM. it is strange. I was told, years ago, when being assessed that although there is no evidence of arm swelling,
because all the glands have been removed, some fluid retention
will be present. I have always had a pillow under my arm sleeping
and resting in armchair to keep my arm at heart level.
This attack from left field, came out of no where. Thanks to other suggestions I’ve found a lymphedema physio not far away.
im going to have ultrasound next week to check no recurrences.
Im grateful hearing of others experiences.. I do have a tight feeling
occassionally but my most social embarrassing moments is when I
have chest muscle spasms, just sitting and enjoying myself..
especially if I’m laughing too much! This happened from the beginning . Cardiac issues were excluded! I know wearing the prosthesis help. however, I gave up wearing them because the increased size and weight of the prostheses were too heavy.
I had different surgeons in different States do the mastectomies.
like most other experiences in Adelaide, the surgery here was not as complete as my first.So, I’m left with folds of tissue which meant
i needed larger size prosthesis! Not happy! As with most events here! I’m desperately trying to connect to either Peter Mac or Olivia Newton centres in Melbourne but it’s very hard to cross State borders unless referred by an Onc.
Thanks for support on this forum, I’m finding my experiences
are not uncommon. Does anyone know of any other disease that
is full of so many unwanted effects...that perhaps with more individual treatments could be minimised or eliminated!
Having the disease is sufficient.
because all the glands have been removed, some fluid retention
will be present. I have always had a pillow under my arm sleeping
and resting in armchair to keep my arm at heart level.
This attack from left field, came out of no where. Thanks to other suggestions I’ve found a lymphedema physio not far away.
im going to have ultrasound next week to check no recurrences.
Im grateful hearing of others experiences.. I do have a tight feeling
occassionally but my most social embarrassing moments is when I
have chest muscle spasms, just sitting and enjoying myself..
especially if I’m laughing too much! This happened from the beginning . Cardiac issues were excluded! I know wearing the prosthesis help. however, I gave up wearing them because the increased size and weight of the prostheses were too heavy.
I had different surgeons in different States do the mastectomies.
like most other experiences in Adelaide, the surgery here was not as complete as my first.So, I’m left with folds of tissue which meant
i needed larger size prosthesis! Not happy! As with most events here! I’m desperately trying to connect to either Peter Mac or Olivia Newton centres in Melbourne but it’s very hard to cross State borders unless referred by an Onc.
Thanks for support on this forum, I’m finding my experiences
are not uncommon. Does anyone know of any other disease that
is full of so many unwanted effects...that perhaps with more individual treatments could be minimised or eliminated!
Having the disease is sufficient.