My journey begins
Breast specialist confirmed today that my core biopsy results show that my diagnosed 'fibroadenoma' is actually a phyllodes tumour with suspect boundaries. I have previously had a 'fibroadenoma' remov...
Forum Discussion
Tania you are being well informed by the sound of things and no guessing game going on. I did not have an MRI, just core biopsy and surgery and my Phyllodes tumour was the size of a guinea pig which I discovered myself. Being big busted and the PT being well back to the chest wall it was pure chance one day in the shower that I found my surprise! I remember thinking gosh with a lump this big I should be near death etc and I looked perfectly well. I had had a lot of discomfort in the back right shoulder blade area beneath it really. I actually used to say I wonder if you can get cancer of the shoulder blades! Still have a lot of discomfort in the same area so wondering?!
Like you I believe your Nana had the same as my Aunt and back then when they were misdiagnosed as we suspect everyone was thrown into the same category as the more common breast cancer. It is also my belief that this is still happening depending on who you get to see.
Phyllodes Group has grown to 35 members while the Breast Cancer support group is only 28 which I attend. Lynn kindly invited me to join them since they local so I hope that you find similar in your area. I dont believe PT is as rare as they first thought, just mis diagnosed as fibroadonema and then bingo later on its recognised as something different and on further investigation they discover Phyllodes.
All the best Tania and keep us posted and I sincerely hope that your surgery once decided is over and done with quickly and then the healing begins. I dont know if my stinging that took place for 6 mths afterwards is just because I have other connective tissue diseases and my Phyllodes was in the connective tissue or that some others endure this too. On my 6mth check up my surgeon seemed a bit surprised that I was still reporting this stinging and he suggested Evening Primrose Capsules. After a week on these I had a noticeable difference but had to use the whole of a very large tub, no quantity on the empty tub but measures 4" x 4" approx before I was game to stop taking them and this did the trick. Just thought if you suffer this post surgery that you might like to know what worked for someone else.
Cheers to a speedy recovery and no nasty surprises!
Colleen